Literature DB >> 33419457

Recruitment and retention of participant and study partner dyads in two multinational Alzheimer's disease registration trials.

Olivia M Bernstein1, Joshua D Grill2,3,4,5, Daniel L Gillen6,2,3.   

Abstract

BACKGROUND: Early study exit is detrimental to statistical power and increases the risk for bias in Alzheimer's disease clinical trials. Previous analyses in early phase academic trials demonstrated associations between rates of trial incompletion and participants' study partner type, with participants enrolling with non-spouse study partners being at greater risk.
METHODS: We conducted secondary analyses of two multinational phase III trials of semagacestat, an oral gamma secretase inhibitor, for mild-to-moderate AD dementia. Cox's proportional hazards regression model was used to estimate the relationship between study partner type and the risk of early exit from the trial after adjustment for a priori identified potential confounding factors. Additionally, we used a random forest model to identify top predictors of dropout.
RESULTS: Among participants with spousal, adult child, and other study partners, respectively, 35%, 38%, and 36% dropped out or died prior to protocol-defined study completion, respectively. In unadjusted models, the risk of trial incompletion differed by study partner type (unadjusted p value = 0.027 for test of differences by partner type), but in models adjusting for potential confounding factors, the differences were not statistically significant (p value = 0.928). In exploratory modeling, participant age was identified as the primary characteristic to explain the relationship between study partner type and the risk of failing to complete the trial. Participant age was also the strongest predictor of trial incompletion in the random forest model.
CONCLUSIONS: After adjustment for age, no differences in the risk of incompletion were observed when comparing participants with different study partner types in these trials. Differences between our findings and the findings of previous studies may be explained by differences in trial phase, size, geographic regions, or the composition of academic and non-academic sites.

Entities:  

Keywords:  Alzheimer’s disease; Clinical trials; Recruitment; Retention; Study partner

Mesh:

Year:  2021        PMID: 33419457      PMCID: PMC7791680          DOI: 10.1186/s13195-020-00762-8

Source DB:  PubMed          Journal:  Alzheimers Res Ther            Impact factor:   6.982


  32 in total

1.  Family and Other Unpaid Caregivers and Older Adults with and without Dementia and Disability.

Authors:  Catherine Riffin; Peter H Van Ness; Jennifer L Wolff; Terri Fried
Journal:  J Am Geriatr Soc       Date:  2017-04-20       Impact factor: 5.562

2.  Age and rate of cognitive decline in Alzheimer disease: implications for clinical trials.

Authors:  Charles Bernick; Jeffrey Cummings; Rema Raman; Xiaoying Sun; Paul Aisen
Journal:  Arch Neurol       Date:  2012-07

3.  Differences in Alzheimer disease clinical trial outcomes based on age of the participants.

Authors:  Lon S Schneider; Richard E Kennedy; Guoqiao Wang; Gary R Cutter
Journal:  Neurology       Date:  2015-02-13       Impact factor: 9.910

4.  Obstacles and opportunities in Alzheimer's clinical trial recruitment.

Authors:  Jennifer L Watson; Laurie Ryan; Nina Silverberg; Vicky Cahan; Marie A Bernard
Journal:  Health Aff (Millwood)       Date:  2014-04       Impact factor: 6.301

Review 5.  Updated systematic review identifies substantial number of retention strategies: using more strategies retains more study participants.

Authors:  Karen A Robinson; Victor D Dinglas; Vineeth Sukrithan; Ramakrishna Yalamanchilli; Pedro A Mendez-Tellez; Cheryl Dennison-Himmelfarb; Dale M Needham
Journal:  J Clin Epidemiol       Date:  2015-06-10       Impact factor: 6.437

6.  Determinants of attrition in a natural history study of Alzheimer disease.

Authors:  E Koss; B Peterson; G G Fillenbaum
Journal:  Alzheimer Dis Assoc Disord       Date:  1999 Oct-Dec       Impact factor: 2.703

7.  Addressing the challenges to successful recruitment and retention in Alzheimer's disease clinical trials.

Authors:  Joshua D Grill; Jason Karlawish
Journal:  Alzheimers Res Ther       Date:  2010-12-21       Impact factor: 6.982

8.  Study partners: essential collaborators in discovering treatments for Alzheimer's disease.

Authors:  Emily A Largent; Jason Karlawish; Joshua D Grill
Journal:  Alzheimers Res Ther       Date:  2018-09-27       Impact factor: 6.982

Review 9.  Clinical Trials for Disease-Modifying Therapies in Alzheimer's Disease: A Primer, Lessons Learned, and a Blueprint for the Future.

Authors:  Jeffrey Cummings; Aaron Ritter; Kate Zhong
Journal:  J Alzheimers Dis       Date:  2018       Impact factor: 4.472

10.  Underrepresentation of African-Americans in Alzheimer's Trials: A Call for Affirmative Action.

Authors:  Jaewook Shin; P Murali Doraiswamy
Journal:  Front Aging Neurosci       Date:  2016-06-03       Impact factor: 5.750

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  5 in total

Review 1.  A geroscience motivated approach to treat Alzheimer's disease: Senolytics move to clinical trials.

Authors:  Mitzi M Gonzales; Sudarshan Krishnamurthy; Valentina Garbarino; Ali S Daeihagh; Gregory J Gillispie; Gagan Deep; Suzanne Craft; Miranda E Orr
Journal:  Mech Ageing Dev       Date:  2021-10-21       Impact factor: 5.498

2.  You've Got a Friend in Me: How Cognitively Unimpaired Older Adults Select a Study Partner to Participate with Them in Alzheimer's Disease Research.

Authors:  Emily A Largent; Twisha Bhardwaj; Justin T Clapp; Olivia Saúl Sykes; Kristin Harkins; Joshua D Grill
Journal:  J Alzheimers Dis       Date:  2022-03-18       Impact factor: 4.160

3.  Dyadic Enrollment in a Phase 3 Mild Cognitive Impairment Clinical Trial.

Authors:  Navneet R Hakhu; Daniel L Gillen; Joshua D Grill
Journal:  Alzheimer Dis Assoc Disord       Date:  2022-04-29       Impact factor: 2.357

4.  Quantifying Recruitment Source and Participant Communication Preferences for Alzheimer's Disease Prevention Research.

Authors:  D Julbe-Delgado; J L O'Brien; R Abdulkarim; E M Hudak; H Maeda; J D Edwards
Journal:  J Prev Alzheimers Dis       Date:  2021

5.  The Challenges of Enrollment and Retention: A Systematic Review of Psychosocial Behavioral Interventions for Patients With Cancer and Their Family Caregivers.

Authors:  Lixin Song; Yousef Qan'ir; Ting Guan; Peiran Guo; Shenmeng Xu; Ahrang Jung; Eno Idiagbonya; Fengyu Song; Erin Elizabeth Kent
Journal:  J Pain Symptom Manage       Date:  2021-04-30       Impact factor: 5.576

  5 in total

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