Katrina R Ellis1, Hillary K Hecht2, Tiffany L Young3,4, Seyoung Oh5, Shikira Thomas6, Lori S Hoggard7, Zaire Ali7, Ronke Olawale5, Dana Carthron8, Giselle Corbie-Smith9, Eugenia Eng10. 1. University of Michigan, School of Social Work, Room 3849, Ann Arbor, MI 48109. Email: kahe@umich.edu. 2. University of North Carolina at Chapel Hill, Gillings School of Global Public Health, Department of Health Policy and Management, Chapel Hill, North Carolina. 3. University of North Carolina at Chapel Hill, North Carolina Translational Research and Clinical Sciences Institute, Chapel Hill, North Carolina. 4. Lenell and Lillie Consulting, LLC, New Bern, North Carolina. 5. University of Michigan, School of Social Work, Ann Arbor, Michigan. 6. University of North Carolina at Chapel Hill, Cecil G. Sheps Center for Health Services Research, Chapel Hill, North Carolina. 7. Rutgers University-New Brunswick, Department of Psychology, New Brunswick, New Jersey. 8. North Carolina Central University, College of Behavioral Sciences, Durham, North Carolina. 9. University of North Carolina at Chapel Hill, School of Medicine, Department of Social Medicine, Chapel Hill, North Carolina. 10. University of North Carolina at Chapel Hill, Gillings School of Global Public Health, Department of Health Behavior, Chapel Hill, North Carolina.
Abstract
INTRODUCTION: Chronic diseases are common among African Americans, but the extent to which research has focused on addressing chronic diseases across multiple members of African American families is unclear. This systematic scoping review summarizes the characteristics of research addressing coexisting chronic conditions among African American families, including guiding theories, conditions studied, types of relationships, study outcomes, and intervention research. METHODS: The literature search was conducted in PsycInfo, PubMed, Social Work Abstracts, Sociological Abstracts, CINAHL, and Family and Society Studies Worldwide to identify relevant articles published from January 2000 through September 2016. We screened the title and abstracts of 9,170 articles, followed by full-text screening of 530 articles, resulting in a final sample of 114 articles. Fifty-seven percent (n = 65) of the articles cited a guiding theory/framework, with psychological theories (eg, social cognitive theory, transtheoretical model) being most prominent. The most common conditions studied in families were depression (70.2%), anxiety (23.7%), and diabetes (22.8%), with most articles focusing on a combination of physical and mental health conditions (47.4%). RESULTS: In the 114 studies in this review, adult family members were primarily the index person (71.1%, n = 81). The index condition, when identified (79.8%, n = 91), was more likely to be a physical health condition (46.5%, n = 53) than a mental health condition (29.8%, n = 34). Among 343 family relationships examined, immediate family relationships were overwhelmingly represented (85.4%, n = 293); however, extended family (12.0%, n = 41) and fictive kin (0.6%, n = 2) were included. Most (57.0%, n = 65) studies focused on a single category of outcomes, such as physical health (eg, obesity, glycemic control), mental health (eg, depression, anxiety, distress), psychosocial outcomes (eg, social support, caregiver burden), or health behaviors (eg, medication adherence, disease management, health care utilization); however, 43.0% (n = 49) of studies focused on outcomes across multiple categories. Sixteen intervention articles (14.0%) were identified, with depression the most common condition of interest. CONCLUSION: Recognizing the multiple, simultaneous health issues facing families through a lens of family comorbidity and family multimorbidity may more accurately mirror the lived experiences of many African American families and better elucidate intervention opportunities than previous approaches.
INTRODUCTION:Chronic diseases are common among African Americans, but the extent to which research has focused on addressing chronic diseases across multiple members of African American families is unclear. This systematic scoping review summarizes the characteristics of research addressing coexisting chronic conditions among African American families, including guiding theories, conditions studied, types of relationships, study outcomes, and intervention research. METHODS: The literature search was conducted in PsycInfo, PubMed, Social Work Abstracts, Sociological Abstracts, CINAHL, and Family and Society Studies Worldwide to identify relevant articles published from January 2000 through September 2016. We screened the title and abstracts of 9,170 articles, followed by full-text screening of 530 articles, resulting in a final sample of 114 articles. Fifty-seven percent (n = 65) of the articles cited a guiding theory/framework, with psychological theories (eg, social cognitive theory, transtheoretical model) being most prominent. The most common conditions studied in families were depression (70.2%), anxiety (23.7%), and diabetes (22.8%), with most articles focusing on a combination of physical and mental health conditions (47.4%). RESULTS: In the 114 studies in this review, adult family members were primarily the index person (71.1%, n = 81). The index condition, when identified (79.8%, n = 91), was more likely to be a physical health condition (46.5%, n = 53) than a mental health condition (29.8%, n = 34). Among 343 family relationships examined, immediate family relationships were overwhelmingly represented (85.4%, n = 293); however, extended family (12.0%, n = 41) and fictive kin (0.6%, n = 2) were included. Most (57.0%, n = 65) studies focused on a single category of outcomes, such as physical health (eg, obesity, glycemic control), mental health (eg, depression, anxiety, distress), psychosocial outcomes (eg, social support, caregiver burden), or health behaviors (eg, medication adherence, disease management, health care utilization); however, 43.0% (n = 49) of studies focused on outcomes across multiple categories. Sixteen intervention articles (14.0%) were identified, with depression the most common condition of interest. CONCLUSION: Recognizing the multiple, simultaneous health issues facing families through a lens of family comorbidity and family multimorbidity may more accurately mirror the lived experiences of many African American families and better elucidate intervention opportunities than previous approaches.
Authors: Katrina R Ellis; Tiffany L Young; Dana Carthron; Marcia Simms; Shirley McFarlin; Kia L Davis; Guarav Dave; Giselle Corbie-Smith; Crystal Cené Journal: Am J Health Promot Date: 2018-09-24
Authors: Hannah M L Young; Thomas Yates; Paddy C Dempsey; Louisa Y Herring; Joseph Henson; Jack Sargeant; Ffion Curtis; Harini Sathanapally; Patrick J Highton; Michelle Hadjiconstantinou; Rebecca Pritchard; Selina Lock; Sally J Singh; Melanie J Davies Journal: BMJ Open Date: 2022-05-04 Impact factor: 3.006
Authors: Loren Saulsberry; Keith Danahey; Merisa Middlestadt; Kevin J O'Leary; Edith A Nutescu; Thomas Chen; James C Lee; Gregory W Ruhnke; David George; Larry House; Xander M R van Wijk; Kiang-Teck J Yeo; Anish Choksi; Seth W Hartman; Randall W Knoebel; Paula N Friedman; Luke V Rasmussen; Mark J Ratain; Minoli A Perera; David O Meltzer; Peter H O'Donnell Journal: J Pers Med Date: 2021-12-10