Literature DB >> 33413873

Self-advocacy is associated with lower likelihood of living donor kidney transplantation.

A Cozette Killian1, Rhiannon D Reed2, Alexis Carter3, M Chandler McLeod4, Brittany A Shelton5, Vineeta Kumar6, Haiyan Qu7, Paul A MacLennan8, Babak J Orandi9, Robert M Cannon10, Douglas Anderson11, Michael J Hanaway12, Jayme E Locke13.   

Abstract

BACKGROUND: The Living Donor Navigator (LDN) Program pairs kidney transplant candidates (TC) with a friend or family member for advocacy training to help identify donors and achieve living donor kidney transplantation (LDKT). However, some TCs participate alone as self-advocates.
METHODS: In this retrospective cohort study of TCs in the LDN program (04/2017-06/2019), we evaluated the likelihood of LDKT using Cox proportional hazards regression and rate of donor screenings using ordered events conditional models by advocate type.
RESULTS: Self-advocates (25/127) had lower likelihood of LDKT compared to patients with an advocate (adjusted hazard ratio (aHR): 0.22, 95% confidence interval (CI): 0.03-1.66, p = 0.14). After LDN enrollment, rate of donor screenings increased 2.5-fold for self-advocates (aHR: 2.48, 95%CI: 1.26-4.90, p = 0.009) and 3.4-fold for TCs with an advocate (aHR: 3.39, 95%CI: 2.20-5.24, p < 0.0001).
CONCLUSIONS: Advocacy training was beneficial for self-advocates, but having an independent advocate may increase the likelihood of LDKT.
Copyright © 2021 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Advocacy; Disparities in LDKT; Living donor kidney transplantation (LDKT); Navigator program; Transplantation

Mesh:

Year:  2020        PMID: 33413873      PMCID: PMC8217080          DOI: 10.1016/j.amjsurg.2020.12.035

Source DB:  PubMed          Journal:  Am J Surg        ISSN: 0002-9610            Impact factor:   3.125


  17 in total

1.  Improving propensity for patient self-advocacy through wellness recovery action planning: results of a randomized controlled trial.

Authors:  Jessica A Jonikas; Dennis D Grey; Mary Ellen Copeland; Lisa A Razzano; Marie M Hamilton; Carol Bailey Floyd; Walter B Hudson; Judith A Cook
Journal:  Community Ment Health J       Date:  2011-12-14

2.  Barriers to living kidney donation identified by eligible candidates with end-stage renal disease.

Authors:  Lianne Barnieh; Kevin McLaughlin; Braden J Manns; Scott Klarenbach; Serdar Yilmaz; Brenda R Hemmelgarn
Journal:  Nephrol Dial Transplant       Date:  2010-07-05       Impact factor: 5.992

3.  The patient self-advocacy scale: measuring patient involvement in health care decision-making interactions.

Authors:  D E Brashers; S M Haas; J L Neidig
Journal:  Health Commun       Date:  1999

4.  Self-advocacy during the medical encounter: use of health information and racial/ethnic differences.

Authors:  Jacqueline Wiltshire; Kate Cronin; Gloria E Sarto; Roger Brown
Journal:  Med Care       Date:  2006-02       Impact factor: 2.983

5.  A Smartphone App for Increasing Live Organ Donation.

Authors:  K Kumar; E A King; A D Muzaale; J M Konel; K A Bramstedt; A B Massie; D L Segev; A M Cameron
Journal:  Am J Transplant       Date:  2016-08-10       Impact factor: 8.086

6.  Increasing living donation by implementing the Kidney Coach Program.

Authors:  Dianne LaPointe Rudow; Sara Geatrakas; Jonathan Armenti; Ariella Tomback; Rafael Khaim; Lisa Porcello; Stephanie Pan; Antonios Arvelakis; Ron Shapiro
Journal:  Clin Transplant       Date:  2019-01-20       Impact factor: 2.863

7.  Association of Race and Ethnicity With Live Donor Kidney Transplantation in the United States From 1995 to 2014.

Authors:  Tanjala S Purnell; Xun Luo; Lisa A Cooper; Allan B Massie; Lauren M Kucirka; Macey L Henderson; Elisa J Gordon; Deidra C Crews; L Ebony Boulware; Dorry L Segev
Journal:  JAMA       Date:  2018-01-02       Impact factor: 56.272

8.  Live donor champion: finding live kidney donors by separating the advocate from the patient.

Authors:  Jacqueline M Garonzik-Wang; Jonathan C Berger; Reside Lorie Ros; Lauren M Kucirka; Neha A Deshpande; Brian J Boyarsky; Robert A Montgomery; Erin C Hall; Nathan T James; Dorry L Segev
Journal:  Transplantation       Date:  2012-06-15       Impact factor: 4.939

9.  Enhanced Advocacy and Health Systems Training Through Patient Navigation Increases Access to Living-donor Kidney Transplantation.

Authors:  Jayme E Locke; Rhiannon D Reed; Vineeta Kumar; Beverly Berry; Daagye Hendricks; Alexis Carter; Brittany A Shelton; Margaux N Mustian; Paul A MacLennan; Haiyan Qu; Lonnie Hannon; Clayton Yates; Michael J Hanaway
Journal:  Transplantation       Date:  2020-01       Impact factor: 5.385

10.  Patients' willingness to talk to others about living kidney donation.

Authors:  James R Rodrigue; Danielle L Cornell; Bruce Kaplan; Richard J Howard
Journal:  Prog Transplant       Date:  2008-03       Impact factor: 1.065

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