Literature DB >> 33407754

The child with medical complexity.

Manuela Gallo1, Rino Agostiniani2, Roberta Pintus3, Vassilios Fanos1,4.   

Abstract

Children with medical complexity represent a big challenge for the physicians, their families and the society as well. Although there is no clear definition of this type of patients, they are affected by a chronic, often very severe condition for their whole life. They also represent a huge cost for the health care system due to their needs of continuous assistance.In this review we summarized the definitions of child with medical complexity. Then we illustrated the strategies to treat and take care of these children in order to look at them not as a burden or a cost but as an opportunity to growth and improve as clinicians and to improve the society, to give them the best life they can live.We also wanted to give voice to the physicians, the parents and the children themselves to really show and understand what are their experiences and their feelings in dealing with their conditions. We concluded with the description of one example of children with medical complexity: prematurity. We discussed the progresses in their treatment so far in order to illustrate what is the future of pediatrics. Since it has been more and more acknowledged that every child with medical complexity is unique, the future of pediatric is to organize an individualized approach and to "see things with the eye of a child".

Entities:  

Keywords:  Children; Chronic condition; Individualized medicine; Medical complexity; Pediatrics

Mesh:

Year:  2021        PMID: 33407754      PMCID: PMC7788740          DOI: 10.1186/s13052-020-00935-z

Source DB:  PubMed          Journal:  Ital J Pediatr        ISSN: 1720-8424            Impact factor:   2.638


  17 in total

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2.  Hospitalization in children eligible for palliative care.

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Journal:  J Palliat Med       Date:  2010-06       Impact factor: 2.947

Review 3.  Hospitalist care of the medically complex child.

Authors:  Rajendu Srivastava; Bryan L Stone; Nancy A Murphy
Journal:  Pediatr Clin North Am       Date:  2005-08       Impact factor: 3.278

4.  Preterm Birth and Risk of Heart Failure Up to Early Adulthood.

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Journal:  J Am Coll Cardiol       Date:  2017-10-10       Impact factor: 24.094

Review 5.  Ways to Identify Children with Medical Complexity and the Importance of Why.

Authors:  Jay G Berry; Matt Hall; Eyal Cohen; Margaret O'Neill; Chris Feudtner
Journal:  J Pediatr       Date:  2015-05-28       Impact factor: 4.406

6.  Estimating the Global Need for Palliative Care for Children: A Cross-sectional Analysis.

Authors:  Stephen R Connor; Julia Downing; Joan Marston
Journal:  J Pain Symptom Manage       Date:  2016-10-17       Impact factor: 3.612

7.  Patterns and costs of health care use of children with medical complexity.

Authors:  Eyal Cohen; Jay G Berry; Ximena Camacho; Geoff Anderson; Walter Wodchis; Astrid Guttmann
Journal:  Pediatrics       Date:  2012-11-26       Impact factor: 7.124

Review 8.  Prolonging nephrogenesis in preterm infants: a new approach for prevention of kidney disease in adulthood?

Authors:  Vassilios Fanos; Massimo Castagnola; Gavino Faa
Journal:  Iran J Kidney Dis       Date:  2015-05       Impact factor: 0.892

Review 9.  Biomarkers of corticosteroid-induced hypertrophic cardiomyopathy in preterm babies.

Authors:  Pier Paolo Bassareo; Raul Abella; Vassilios Fanos; Giuseppe Mercuro
Journal:  Front Biosci (Elite Ed)       Date:  2010-06-01

10.  Understanding the Needs of Children With Medical Complexity.

Authors:  Kathleen Huth; Sara Long-Gagne; Jessica Mader; Anne Marie Sbrocchi
Journal:  MedEdPORTAL       Date:  2018-04-20
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  3 in total

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Review 2.  Early Prevention of Atherosclerosis: Detection and Management of Hypercholesterolaemia in Children and Adolescents.

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Review 3.  Should Echolalia Be Considered a Phonic Stereotypy? A Narrative Review.

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  3 in total

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