Literature DB >> 33392443

Using Patient-Reported Outcomes to Describe the Patient Experience on Phase I Clinical Trials.

Ramy Sedhom1, Betty Ferrell2, Nora Ruel2, Marianna Koczywas2, Vincent Chung2, Thomas J Smith1.   

Abstract

BACKGROUND: Symptoms are common among patients enrolled in phase I trials. We assessed the validity of Patient-Reported Outcomes version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE) items in relation to previously validated assessments of quality of life and psychological distress. We used data from a randomized trial testing a palliative care support intervention for patients enrolled on phase I trials.
METHODS: Patients (n = 479) were accrued to the parent study prior to initiating a phase I clinical trial with data collected at baseline, 4, and 12 weeks. We determined the correlation of PRO-CTCAE with distress level, Functional Assessment of Cancer Therapy - General (FACT-G) total, and subscale domain scores.
RESULTS: Patients were predominantly female (56.8%) and older than age 60 years, and 30.7% were from minority populations. The correlation coefficient for distress level for all PRO-CTCAE items was small to moderate (Pearson r = 0.33-0.46). Pearson correlation coefficient for FACT-G total was moderate (r = -0.45 to -0.69). Stronger associations were noted for mood items of the PRO-CTCAE only (with distress level, r = 0.55-0.6; with FACT-G, r = -0.54 to -0.6). PRO-CTCAE symptom interference scores had the strongest correlation with distress level (Pearson r = 0.46) and FACT-G total (Pearson r = -0.69). Correlations between PRO-CTCAE items and corresponding FACT-G (total and subscales) and distress levels reached statistical significance for all items (P <.001).
CONCLUSION: Evidence demonstrates validity of PRO-CTCAE in a heterogeneous US sample of patients undergoing cancer treatment on phase I trials, with small to moderate correlations with distress level for all PRO-CTCAE items and moderate correlations with quality of life as measured by FACT-G total.
© The Author(s) 2020. Published by Oxford University Press.

Entities:  

Year:  2020        PMID: 33392443      PMCID: PMC7768928          DOI: 10.1093/jncics/pkaa067

Source DB:  PubMed          Journal:  JNCI Cancer Spectr        ISSN: 2515-5091


  42 in total

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5.  Characteristics of Participants Enrolled onto a Randomized Controlled Trial of Palliative Care for Patients on Phase I Studies.

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Journal:  Eur J Cancer       Date:  2014-05-28       Impact factor: 9.162

10.  Methods for Implementing and Reporting Patient-reported Outcome (PRO) Measures of Symptomatic Adverse Events in Cancer Clinical Trials.

Authors:  Ethan Basch; Lauren J Rogak; Amylou C Dueck
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