Literature DB >> 33387242

Predicting Parent Reactions at Diagnostic Disclosure Sessions for Autism.

Emily Anderberg1,2, Mikle South3,4.   

Abstract

Receiving a diagnosis of autism for their child can be a pivotal moment for parents, yet there is little research about how providers can predict parent reactions and adjust their feedback. We investigated factors related to parent reactions during the disclosure session using interviews with providers (n = 6), a parent focus group (n = 10), and a mixed-methods survey of parents (n = 189) of recently diagnosed children. Parents' prior knowledge of autism and anxiety about diagnosis predicted emotional reactions and readiness for next steps. Families anxious about receiving a diagnosis are most in need of information but may leave the session feeling lost and unprepared. Providers can promote positive emotional reactions for parents and prevent confusion by increasing their own positivity, warmth, respect, clarity, and confidence.

Entities:  

Keywords:  Assessment; Autism; Diagnostic disclosure; Diagnostic evaluation; Diagnostic feedback; Parents

Year:  2021        PMID: 33387242     DOI: 10.1007/s10803-020-04817-5

Source DB:  PubMed          Journal:  J Autism Dev Disord        ISSN: 0162-3257


  13 in total

1.  Experiences of diagnosing autism spectrum disorder: A survey of professionals in the United Kingdom.

Authors:  Claire L Rogers; Lorna Goddard; Elisabeth L Hill; Lucy A Henry; Laura Crane
Journal:  Autism       Date:  2015-12-16

2.  How many doctors does it take to make an autism spectrum diagnosis?

Authors:  Robin P Goin-Kochel; Virginia H Mackintosh; Barbara J Myers
Journal:  Autism       Date:  2006-09

3.  The diagnosis of autism and Asperger syndrome: findings from a survey of 770 families.

Authors:  P Howlin; A Asgharian
Journal:  Dev Med Child Neurol       Date:  1999-12       Impact factor: 5.449

4.  Disclosure of developmental disability: a study of parent satisfaction and the determinants of satisfaction.

Authors:  M J Hasnat; P Graves
Journal:  J Paediatr Child Health       Date:  2000-02       Impact factor: 1.954

5.  UK parents' experiences of their child receiving a diagnosis of autism spectrum disorder: A systematic review of the qualitative evidence.

Authors:  Hannah Legg; Anna Tickle
Journal:  Autism       Date:  2019-04-17

6.  A survey of parents' reactions to the diagnosis of an autistic spectrum disorder by a local service: access to information and use of services.

Authors:  Warren Mansell; Kathleen Morris
Journal:  Autism       Date:  2004-12

7.  Communicating a diagnosis of Autism Spectrum Disorder - a qualitative study of parents' experiences.

Authors:  Mandy Abbott; Paul Bernard; Jenny Forge
Journal:  Clin Child Psychol Psychiatry       Date:  2012-08-17       Impact factor: 2.544

8.  Parents' perceptions of communication with professionals during the diagnosis of autism.

Authors:  Lisa A Osborne; Phil Reed
Journal:  Autism       Date:  2008-05

9.  What should autism research focus upon? Community views and priorities from the United Kingdom.

Authors:  Elizabeth Pellicano; Adam Dinsmore; Tony Charman
Journal:  Autism       Date:  2014-04-30

10.  Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals.

Authors:  Laura Crane; Richard Batty; Hanna Adeyinka; Lorna Goddard; Lucy A Henry; Elisabeth L Hill
Journal:  J Autism Dev Disord       Date:  2018-11
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  1 in total

1.  "On-Time Autism Intervention": A Diagnostic Practice Framework to Accelerate Access.

Authors:  Ashley M Penney; Jessica Greenson; Ilene S Schwartz; Annette Mercer Estes
Journal:  Front Psychiatry       Date:  2022-02-17       Impact factor: 4.157

  1 in total

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