Literature DB >> 33377989

[Ethics in participatory research-reflection on challenges and possible impairments for participants].

Ina Schaefer1, Petra Narimani2.   

Abstract

In medical research, it is established practice to discuss ethical issues, usually based on the criteria informed consent and voluntary participation, protection from harm, confidentiality, and anonymity. The discussion of ethical questions is also gaining importance in social science research. The same applies to participatory research, which is not yet very widespread in Germany. Because this approach is based on equality between all those involved, it results in relationships uncommon in nonparticipatory research. Therefore, ethical questions are raised in a different way. Partly based on an analysis of documents, a case study from participatory health research will be used to illustrate how the principle of harm reduction can be recognized. The case study shows this from the perspective of both the researchers and the peer-researchers.From the peer-researchers' perspective, there are different challenges in participatory teamwork, which can bring impairments and consequently result in a risk of harm. This can lead to disappointments, for example, when from the peer-researchers' perspective individual support during a research process is insufficient.Conclusions for dealing with ethical aspects in participatory research projects will be derived from the gathered experiences. The application of the criteria used in nonparticipatory research can be an opportunity to strengthen the discussion of ethical issues as part of participatory processes. It can also be a chance to combine the ethical discourse in participatory and qualitative social science research.

Entities:  

Keywords:  Ethics; Participatory health research; Process reflection; Protection from harm

Year:  2020        PMID: 33377989     DOI: 10.1007/s00103-020-03270-0

Source DB:  PubMed          Journal:  Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz        ISSN: 1436-9990            Impact factor:   1.513


  4 in total

1.  Ethical dilemmas in community-based participatory research: recommendations for institutional review boards.

Authors:  Sarah Flicker; Robb Travers; Adrian Guta; Sean McDonald; Aileen Meagher
Journal:  J Urban Health       Date:  2007-07       Impact factor: 3.671

Review 2.  Undertaking ethical qualitative research in public health: are current ethical processes sufficient?

Authors:  Sacha Kendall; Lesley E Halliday
Journal:  Aust N Z J Public Health       Date:  2014-08       Impact factor: 2.939

3.  Payment of clinical research subjects.

Authors:  Christine Grady
Journal:  J Clin Invest       Date:  2005-07       Impact factor: 14.808

4.  Governing through community allegiance: a qualitative examination of peer research in community-based participatory research.

Authors:  Adrian Guta; Sarah Flicker; Brenda Roche
Journal:  Crit Public Health       Date:  2013-01-11
  4 in total

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