Minh Tuan Hoang1, Ingemar Kåreholt2,3, Mia von Euler4, Lena von Koch5,6, Maria Eriksdotter1,7, Sara Garcia-Ptacek1,7,8. 1. Division of Clinical Geriatrics, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden. 2. Aging Research Center (ARC), Karolinska Institutet and Stockholm University, Stockholm, Sweden. 3. Institute of Gerontology, School of Health and Welfare, Aging Research Network Jönköping (ARN-J), Jönköping University, Jönköping, Sweden. 4. Department of Medical Sciences, School of Medicine, Örebro University, Örebro, Sweden. 5. Division of Family Medicine and Primary Care, Department of Neurobiology, Care Sciences and Society, Karolinska Institutet, Stockholm, Sweden. 6. Neuro Theme, Karolinska University Hospital, Stockholm, Sweden. 7. Aging Theme, Karolinska University Hospital, Stockholm, Sweden. 8. Section for Neurology, Department of Internal Medicine, Södersjukhuset, Stockholm, Sweden.
Abstract
BACKGROUND: Patient dissatisfaction with stroke care is associated with poor self-rated health and unmet care needs. Dementia patients' satisfaction with stroke care is understudied. OBJECTIVE: To compare satisfaction with stroke care in patients with and without dementia. METHODS: This longitudinal cohort study included 5,932 dementia patients (2007-2017) who suffered a first stroke after dementia diagnosis and 39,457 non-dementia stroke patients (2007-2017). Data were retrieved by linking the Swedish Stroke Register, the Swedish Dementia Register, the Swedish National Patient Register, and the Swedish Prescribed Drug Register. The association between dementia and satisfaction was analyzed with ordinal logistic regression. RESULTS: When dementia patients answered themselves, they reported significantly lower odds of satisfaction with acute stroke care (OR: 0.71; 95% CI: 0.60-0.85), healthcare staff's attitude (OR: 0.79; 95% CI: 0.66-0.96), communication with doctors (OR: 0.78; 95% CI: 0.66-0.92), stroke information (OR: 0.62; 95% CI: 0.52-0.74); but not regarding inpatient rehabilitation (OR: 0.93; 95% CI: 0.75-1.16), or outpatient rehabilitation (OR: 0.93; 95% CI: 0.73-1.18). When patients answered with caregivers' help, the association between dementia status and satisfaction remained significant in all items. Subgroup analyses showed that patients with Alzheimer's disease and mixed dementia reported lower odds of satisfaction with acute care and healthcare staff's attitude when they answered themselves. CONCLUSION: Patients with dementia reported lower satisfaction with stroke care, revealing unfulfilled care needs among dementia patients, which are possibly due to different (or less) care, or because dementia patients require adaptations to standard care.
BACKGROUND:Patient dissatisfaction with stroke care is associated with poor self-rated health and unmet care needs. Dementiapatients' satisfaction with stroke care is understudied. OBJECTIVE: To compare satisfaction with stroke care in patients with and without dementia. METHODS: This longitudinal cohort study included 5,932 dementiapatients (2007-2017) who suffered a first stroke after dementia diagnosis and 39,457 non-dementia strokepatients (2007-2017). Data were retrieved by linking the Swedish Stroke Register, the Swedish Dementia Register, the Swedish National Patient Register, and the Swedish Prescribed Drug Register. The association between dementia and satisfaction was analyzed with ordinal logistic regression. RESULTS: When dementiapatients answered themselves, they reported significantly lower odds of satisfaction with acute stroke care (OR: 0.71; 95% CI: 0.60-0.85), healthcare staff's attitude (OR: 0.79; 95% CI: 0.66-0.96), communication with doctors (OR: 0.78; 95% CI: 0.66-0.92), stroke information (OR: 0.62; 95% CI: 0.52-0.74); but not regarding inpatient rehabilitation (OR: 0.93; 95% CI: 0.75-1.16), or outpatient rehabilitation (OR: 0.93; 95% CI: 0.73-1.18). When patients answered with caregivers' help, the association between dementia status and satisfaction remained significant in all items. Subgroup analyses showed that patients with Alzheimer's disease and mixed dementia reported lower odds of satisfaction with acute care and healthcare staff's attitude when they answered themselves. CONCLUSION:Patients with dementia reported lower satisfaction with stroke care, revealing unfulfilled care needs among dementiapatients, which are possibly due to different (or less) care, or because dementiapatients require adaptations to standard care.
Authors: Sara Garcia-Ptacek; Beatriz Contreras Escamez; Eva Zupanic; Dorota Religa; Lena von Koch; Kristina Johnell; Mia von Euler; Ingemar Kåreholt; Maria Eriksdotter Journal: J Am Med Dir Assoc Date: 2017-10-06 Impact factor: 4.669
Authors: Eva Zupanic; Ingemar Kåreholt; Bo Norrving; Juraj Secnik; Mia von Euler; Bengt Winblad; Dorota Religa; Milica Gregoric Kramberger; Kristina Johnell; Maria Eriksdotter; Sara Garcia-Ptacek Journal: J Alzheimers Dis Date: 2018 Impact factor: 4.472
Authors: Ana Subic; Eva Zupanic; Mia von Euler; Bo Norrving; Pavla Cermakova; Dorota Religa; Bengt Winblad; Milica G Kramberger; Maria Eriksdotter; Sara Garcia-Ptacek Journal: Curr Alzheimer Res Date: 2018 Impact factor: 3.498