Literature DB >> 33355010

Let's not go back to 'normal'! lessons from COVID-19 for professionals working in childhood disability.

Peter L Rosenbaum1, Mindy Silva2, Chantal Camden3.   

Abstract

PURPOSE: The worldwide COVID-19 pandemic has changed almost all aspects of our lives, and the field of childhood disability is no exception.
METHODS: This article is based on an invited lecture by the first author at a conference-the eHealth Summit ("Pediatric Rehabilitation in a Digital Space")-organized by the other authors and their colleagues in May 2020.
RESULTS: The first author offers his own experiences and perspectives, supplemented by comments and observations contributed by many of the 9000+ attendees at this talk, as curated by the second and third authors. The basic messages are that while life for families of children with developmental disabilities, and for service providers who work with them, is significantly altered, many important lessons are being learned.
CONCLUSIONS: The comments from participants support the currency of the ideas that were presented, and encourage childhood disability professionals to reflect on what we are learning, so that we can seize the opportunities they afford to do things differently-and we believe better-moving forward.IMPLICATIONS FOR REHABILITATIONIdeas generated by colleagues and parents suggest that there may be alternatives to "business as usual" in childhood disability services after the COVID pandemic is over.People are recognizing opportunities, and benefits, to offering services virtually, including being able to see children in their natural environments, saving parents time, money and hassles to attend clinics in person, and perhaps increasing the availability of services.Many issues remain to be investigated systematically, including, among others, what services (assessments and interventions) require hands-on connections, what payment structures can accommodate new models of services, how professionals can work together in a virtual world, and what families will want.Regardless of the final answers to these issues, we believe that we should not simply "go back to normal"; rather, we should expand the range, nature and locations of our services for children with developmental disabilities and their families.

Entities:  

Keywords:  COVID-19 pandemic; childhood disability; pediatrics; rehabilitation; telemedicine

Mesh:

Year:  2020        PMID: 33355010     DOI: 10.1080/09638288.2020.1862925

Source DB:  PubMed          Journal:  Disabil Rehabil        ISSN: 0963-8288            Impact factor:   3.033


  5 in total

1.  Augmentative and Alternative Communication Telepractice During the COVID-19 Pandemic: A National Survey of Speech-Language Pathologists.

Authors:  Elizabeth E Biggs; Michelle C S Therrien; Sarah N Douglas; Melinda R Snodgrass
Journal:  Am J Speech Lang Pathol       Date:  2021-12-14       Impact factor: 4.018

2.  Family-centred care for children with traumatic brain injury and/or spinal cord injury: a qualitative study of service provider perspectives during the COVID-19 pandemic.

Authors:  Anna Pollock; Kate D'Cruz; Adam Scheinberg; Edith Botchway; Louise Harms; David J Amor; Vicki Anderson; Bruce Bonyhady; Sarah Knight
Journal:  BMJ Open       Date:  2022-06-13       Impact factor: 3.006

3.  A Mixed-Methods Feasibility Study of Integrated Pediatric Complex Care: Experiences of Parents With Care and the Value of Parent Engagement in Research.

Authors:  Oksana Hlyva; Charlene Rae; Shelby Deibert; Rakhshan Kamran; Haniah Shaikh; Lehana Thabane; Peter Rosenbaum; Anne Klassen; Audrey Lim
Journal:  Front Rehabil Sci       Date:  2021-10-28

4.  The impact of digital physical therapy during COVID-19 lockdown in children with developmental disorders: A qualitative study.

Authors:  Alicia Portillo-Aceituno; Andrea Calderón-Bernal; Jorge Pérez-Corrales; César Fernández-de-Las-Peñas; Domingo Palacios-Ceña; Javier Güeita-Rodríguez
Journal:  Braz J Phys Ther       Date:  2022-09-16       Impact factor: 4.762

5.  Virtual Dr Amy Goes to Clinic.

Authors:  Amy Houtrow
Journal:  Arch Phys Med Rehabil       Date:  2021-01-23       Impact factor: 3.966

  5 in total

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