Literature DB >> 33343234

Motivations for advance care and end-of-life planning among lesbian, gay, and bisexual older adults.

Kristie L Seelman1, Terri Lewinson1, Lily Engleman1, Alex Allen1.   

Abstract

Lesbian, gay, and bisexual (LGB) older adults are more likely than their heterosexual peers to experience health disparities, discrimination from healthcare providers based on sexual orientation, and rejection from their family of origin, all of which can complicate medical care and decision making, as well as end-of-life arrangements. Yet, relatively few studies of LGB seniors have looked at motivations for advance care and end-of-life planning, which are strategies that can help ensure that healthcare treatment and end-of-life wishes are enacted as desired. The present qualitative study investigated this topic with a purposive sample of nine LGB and same-gender-loving adults in a metropolitan region of the Southeastern United States. The study involved in-depth face-to-face interviews, followed by a brief pen-and-paper survey. Participants' ages ranged from 65 to 77; the sample included five men and four women. Six individuals were white/Caucasian, while three were African American/Black. We identified three themes related to motivations for advance care and end-of-life planning: wanting a sense of agency, learning from others, and reducing conflict and confusion for loved ones. We discuss the importance of these findings for social work practice with LGB older adults and for social work education, as well as implications for future research.

Entities:  

Keywords:  advance care planning; bisexual; end-of-life care; gay; lesbian; older adults

Year:  2018        PMID: 33343234      PMCID: PMC7747803          DOI: 10.1177/1473325018792396

Source DB:  PubMed          Journal:  Qual Soc Work        ISSN: 1473-3250


  18 in total

1.  Attitudes on end-of-life care and advance care planning in the lesbian and gay community.

Authors:  G L Stein; K A Bonuck
Journal:  J Palliat Med       Date:  2001       Impact factor: 2.947

2.  Differences in Mental, Cognitive, and Functional Health by Sexual Orientation Among Older Women: Analysis of the 2015 Behavioral Risk Factor Surveillance System.

Authors:  Kristie L Seelman
Journal:  Gerontologist       Date:  2019-07-16

3.  Caregiving and post-caregiving experiences of midlife and older gay men and lesbians.

Authors:  Kristina Hash
Journal:  J Gerontol Soc Work       Date:  2006

Review 4.  Investigating the needs and concerns of lesbian, gay, bisexual, and transgender older adults: the use of qualitative and quantitative methodology.

Authors:  Nancy A Orel
Journal:  J Homosex       Date:  2014

5.  Stages of change for the component behaviors of advance care planning.

Authors:  Terri R Fried; Colleen A Redding; Mark L Robbins; Andrea Paiva; John R O'Leary; Lynne Iannone
Journal:  J Am Geriatr Soc       Date:  2010-12       Impact factor: 5.562

6.  The health equity promotion model: Reconceptualization of lesbian, gay, bisexual, and transgender (LGBT) health disparities.

Authors:  Karen I Fredriksen-Goldsen; Jane M Simoni; Hyun-Jun Kim; Keren Lehavot; Karina L Walters; Joyce Yang; Charles P Hoy-Ellis; Anna Muraco
Journal:  Am J Orthopsychiatry       Date:  2014-11

7.  "That's what friends do": Informal caregiving for chronically ill midlife and older lesbian, gay, and bisexual adults.

Authors:  Anna Muraco; Karen Fredriksen-Goldsen
Journal:  J Soc Pers Relat       Date:  2011-12

8.  Creating a vision for the future: key competencies and strategies for culturally competent practice with lesbian, gay, bisexual, and transgender (LGBT) older adults in the health and human services.

Authors:  Karen I Fredriksen-Goldsen; Charles P Hoy-Ellis; Jayn Goldsen; Charles A Emlet; Nancy R Hooyman
Journal:  J Gerontol Soc Work       Date:  2014-05-05

Review 9.  Advance care planning: preferences for care at the end of life.

Authors:  Barbara L Kass-Bartelmes; Ronda Hughes
Journal:  J Pain Palliat Care Pharmacother       Date:  2004

10.  Health disparities among lesbian, gay, and bisexual older adults: results from a population-based study.

Authors:  Karen I Fredriksen-Goldsen; Hyun-Jun Kim; Susan E Barkan; Anna Muraco; Charles P Hoy-Ellis
Journal:  Am J Public Health       Date:  2013-06-13       Impact factor: 9.308

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  2 in total

Review 1.  Palliative and End-of-Life Care for Sexual and Gender Minority Cancer Survivors: a Review of Current Research and Recommendations.

Authors:  Kristin G Cloyes; Carey Candrian
Journal:  Curr Oncol Rep       Date:  2021-03-14       Impact factor: 5.075

Review 2.  A rapid review of end-of-life needs in the LGBTQ+ community and recommendations for clinicians.

Authors:  Lisa Lintott; Robert Beringer; Annie Do; Helena Daudt
Journal:  Palliat Med       Date:  2022-02-17       Impact factor: 4.762

  2 in total

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