Jeanette Finderup1,2,3, Jens Dam Jensen1,2, Kirsten Lomborg2,4. 1. Department of Renal Medicine, Aarhus University Hospital, Aarhus N, Denmark. 2. Department of Clinical Medicine, Aarhus University, Aarhus N, Denmark. 3. Research Centre for Patient Involvement, Aarhus University & The Central Denmark Region, Aarhus N, Denmark. 4. Steno Diabetes Center Copenhagen, Gentofte, Denmark.
Abstract
AIMS: To explore how patients remained involved in their treatment and care of their own health following a shared decision-making intervention for dialysis choice. DESIGN: A follow-up study using semi-structured interviews. METHODS: Individual interviews with 13 patients were conducted immediately following their participation in a shared decision-making intervention for dialysis choice and again 3 months after initiating dialysis. This study reports findings from the follow-up interviews 3 month after dialysis initiation. Data were collected from August 2017-February 2019 and analysed using systematic text condensation. RESULTS: The analysis revealed five main findings, which indicated differing levels of: (a) involvement in the decision-making process; (b) involvement in treatment; (c) involvement in care of own health; (d) involvement of a relative; and (e) support from healthcare professionals. CONCLUSIONS: Following the shared decision-making intervention, patients who chose home-based treatment had become more involved in their treatment and care of their own health. The involvement of relatives and support from healthcare professionals contributed positively to this. In contrast, patients who had chosen hospital-based treatment were less involved in their treatment. IMPACT: Shared decision-making in dialysis choice has potential to improve self-management in people with kidney disease. However, support from healthcare professionals for patients and their relatives should be prioritized in an effort to increase all patients' involvement in their treatment and care of their own health.
AIMS: To explore how patients remained involved in their treatment and care of their own health following a shared decision-making intervention for dialysis choice. DESIGN: A follow-up study using semi-structured interviews. METHODS: Individual interviews with 13 patients were conducted immediately following their participation in a shared decision-making intervention for dialysis choice and again 3 months after initiating dialysis. This study reports findings from the follow-up interviews 3 month after dialysis initiation. Data were collected from August 2017-February 2019 and analysed using systematic text condensation. RESULTS: The analysis revealed five main findings, which indicated differing levels of: (a) involvement in the decision-making process; (b) involvement in treatment; (c) involvement in care of own health; (d) involvement of a relative; and (e) support from healthcare professionals. CONCLUSIONS: Following the shared decision-making intervention, patients who chose home-based treatment had become more involved in their treatment and care of their own health. The involvement of relatives and support from healthcare professionals contributed positively to this. In contrast, patients who had chosen hospital-based treatment were less involved in their treatment. IMPACT: Shared decision-making in dialysis choice has potential to improve self-management in people with kidney disease. However, support from healthcare professionals for patients and their relatives should be prioritized in an effort to increase all patients' involvement in their treatment and care of their own health.
Authors: Noel Engels; Gretchen N de Graav; Paul van der Nat; Marinus van den Dorpel; Anne M Stiggelbout; Willem Jan Bos Journal: BMJ Open Date: 2022-09-21 Impact factor: 3.006
Authors: Miriam Vélez-Bermúdez; Jenna L Adamowicz; Natoshia M Askelson; Susan K Lutgendorf; Mony Fraer; Alan J Christensen Journal: BMC Nephrol Date: 2022-08-05 Impact factor: 2.585