Literature DB >> 33334272

Ongoing debate on data governance principles for achieving Universal Health Coverage: a proposal to post-G20 Osaka Summit meetings.

Shuhei Nomura1,2,3,4, Haruka Sakamoto1,2, Aya Ishizuka1,2,4,5, Yasushi Katsuma4,6, Hidechika Akashi7, Hiroaki Miyata1,4,8.   

Abstract

The Group of 20 Summit (G20) in Osaka, which Japan chaired for the first time in June 2019 has created a tailwind for achieving universal health coverage (UHC) globally. In response to the rapid digitalization, the G20 leaders commenced negotiations for the Osaka Track framework to formulate international rules on data flow across borders and systematize the concept of 'Data Free Flow with Trust (DFFT).' The strategic harnessing of the power of data to strengthen the healthcare system can allow for rapid and affordable progress toward achieving UHC. However, world leaders have yet to discuss what data governance approaches the Osaka Track will follow, or even on what values it will seek to create and maximize. In this paper, we propose a people-centered, trust-oriented approach as the key principle of data governance toward achieving UHC, using Japan's experience as an example. We believe that this approach is compatible with other prevailing approaches (e.g. the General Data Protection Regulation (GDPR) in the European Union), and can serve as a bridge to their conceptual differences. We hope that our proposed principles will be fully discussed in post-G20 Osaka Summit meetings.

Entities:  

Keywords:  Data Free Flow with Trust; Data governance; Osaka Track; data health; universal health coverage

Year:  2020        PMID: 33334272      PMCID: PMC7751421          DOI: 10.1080/16549716.2020.1859822

Source DB:  PubMed          Journal:  Glob Health Action        ISSN: 1654-9880            Impact factor:   2.640


  12 in total

Review 1.  Decision aids for people facing health treatment or screening decisions.

Authors:  Dawn Stacey; France Légaré; Krystina Lewis; Michael J Barry; Carol L Bennett; Karen B Eden; Margaret Holmes-Rovner; Hilary Llewellyn-Thomas; Anne Lyddiatt; Richard Thomson; Lyndal Trevena
Journal:  Cochrane Database Syst Rev       Date:  2017-04-12

2.  Japan: universal health care at 50 years.

Authors: 
Journal:  Lancet       Date:  2011-08-30       Impact factor: 79.321

3.  Japan's vision for health care in 2035.

Authors:  Hiroaki Miyata; Satoshi Ezoe; Manami Hori; Machiko Inoue; Kazumasa Oguro; Toshihisa Okamoto; Kensuke Onishi; Kohei Onozaki; Takeshi Sakakibara; Kazuhisa Takeuchi; Yasuharu Tokuda; Yuji Yamamoto; Mayuka Yamazaki; Kenji Shibuya
Journal:  Lancet       Date:  2015-06-27       Impact factor: 79.321

4.  Overall Survival Results of a Trial Assessing Patient-Reported Outcomes for Symptom Monitoring During Routine Cancer Treatment.

Authors:  Ethan Basch; Allison M Deal; Amylou C Dueck; Howard I Scher; Mark G Kris; Clifford Hudis; Deborah Schrag
Journal:  JAMA       Date:  2017-07-11       Impact factor: 56.272

5.  Turning the Tables - The New European General Data Protection Regulation.

Authors:  Charlotte J Haug
Journal:  N Engl J Med       Date:  2018-06-06       Impact factor: 91.245

Review 6.  Information and communication technology-enabled person-centered care for the "big five" chronic conditions: scoping review.

Authors:  Sabine E Wildevuur; Lianne W L Simonse
Journal:  J Med Internet Res       Date:  2015-03-27       Impact factor: 5.428

Review 7.  Systematic review of patients' participation in and experiences of technology-based monitoring of mental health symptoms in the community.

Authors:  Sophie Walsh; Eoin Golden; Stefan Priebe
Journal:  BMJ Open       Date:  2016-06-21       Impact factor: 2.692

Review 8.  ICTs and the challenge of health system transition in low and middle-income countries.

Authors:  Gerald Bloom; Evangelia Berdou; Hilary Standing; Zhilei Guo; Alain Labrique
Journal:  Global Health       Date:  2017-08-07       Impact factor: 4.185

Review 9.  How to use relevant data for maximal benefit with minimal risk: digital health data governance to protect vulnerable populations in low-income and middle-income countries.

Authors:  Nicki Tiffin; Asha George; Amnesty Elizabeth LeFevre
Journal:  BMJ Glob Health       Date:  2019-04-11

10.  Advancing good governance in data sharing and biobanking - international aspects.

Authors:  Buddhika Fernando; Mandella King; Athula Sumathipala
Journal:  Wellcome Open Res       Date:  2019-11-22
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