| Literature DB >> 33330344 |
Christina Cheng1,2, Gerald R Elsworth1,2, Richard H Osborne1.
Abstract
Background: The unequal access, challenges and outcomes related to using technology have created the digital divide, which leads to health inequalities. The aim of this study was to apply the Ophelia (Optimizing Health Literacy and Access) process, a widely used systematic approach to whole of community co-design, to the digital context to generate solutions to improve health and equity outcomes.Entities:
Keywords: co-design; digital divide; digital health; eHLQ; eHealth literacy; health equity; ophelia process
Mesh:
Year: 2020 PMID: 33330344 PMCID: PMC7718029 DOI: 10.3389/fpubh.2020.604401
Source DB: PubMed Journal: Front Public Health ISSN: 2296-2565
The 8 guiding principles of the Ophelia (Optimizing Health Literacy and Access) process.
| P1. Outcomes focused | Improved health and reduced health inequities |
| P2. Equity driven | All activities at all stages prioritize disadvantaged groups and those experiencing inequity in access and outcome |
| P3. Co-design approach | In all activities at all stages, relevant stakeholders engage collaboratively to design solutions |
| P4. Needs-diagnostic approach | Participatory assessment of local needs using local data |
| P5. Driven by local wisdom | Intervention development and implementation is grounded in local experience and expertise |
| P6. Sustainable | Optimal health literacy practice becomes normal practice and policy |
| P7. Responsiveness | Recognize that health literacy needs and the appropriate responses vary across individuals, contexts, countries, cultures, and time |
| P8. Systematically applied | A multilevel approach in which resources, interventions, research and policy are organized to optimize health literacy |
P, Principle.
Adapted from Beauchamp et al. Table 1, p. 5 (.
Figure 1The Ophelia (Optimzing Health Literacy and Access) process.
Source: Reproduced from Beauchamp et al. Figure 1, p. 5 (26).
Sociodemographic characteristics of respondents of Site 1 (metropolitan primary care medical practice), Site 2 (metropolitan community health), and Site 3 (regional primary care medical practice).
| Age (mean, SD) years | 53.1 (19.4) | 61.4 (18.3) | 55.1 (16.6) |
| Range: 19–93 | Range: 18–94 | Range: 24–91 | |
| Female | 125 (60.4) | 124 (60.2) | 74 (63.2) |
| Male | 80 (38.6) | 82 (39.8) | 43 (36.3) |
| Primary school or less | 4 (1.9) | 2 (1.0) | 0 (0.0) |
| Completed primary school | 9 (4.3) | 11 (5.3) | 1 (0.9) |
| Did not complete secondary school | 20 (9.7) | 31 (15.0) | 18 (15.4) |
| Completed secondary school | 40 (19.3) | 42 (20.4) | 26 (22.2) |
| TAFE | 56 (27.1) | 46 (22.3) | 39 (33.3) |
| Completed university | 74 (35.7) | 69 (33.5) | 33 (28.2) |
| English | 137 (66.2) | 122 (59.2) | 108 (92.3) |
| Other | 69 (33.3) | 84 (40.8) | 9 (7.7) |
| IRSD 1 – 2 (lowest) | 89 (43.0) | 0 (0.0) | 29 (24.8) |
| IRSD 3 – 4 | 2 (1.0) | 1 (0.5) | 3 (2.6) |
| IRSD 5 – 6 | 42 (20.3) | 51 (24.8) | 19 (16.2) |
| IRSD 7 – 8 | 66 (31.9) | 69 (33.5) | 0 (0.0) |
| IRSD 9 – 10 (highest) | 2 (1.0) | 76 (36.9) | 63 (53.8) |
| Yes | 116 (56.0) | 75 (36.4) | 60 (51.3) |
| No | 89 (43.0) | 124 (60.2) | 57 (48.7) |
| None | 105 (50.2) | 72 (35.0) | 50 (42.7) |
| Arthritis | 29 (14.0) | 58 (28.2) | 31 (26.5) |
| Cancer | 1 (0.5) | 10 (4.9) | 3 (2.6) |
| Heart disease | 29 (14.0) | 43 (20.9) | 18 (15.4) |
| Diabetes | 18 (8.7) | 41 (19.9) | 9 (7.7) |
| Respiratory condition | 7 (3.4) | 20 (9.7) | 15 (12.8) |
| Anxiety | 29 (14.0) | 25 (12.1) | 17 (14.5) |
| Depression | 30 (14.5) | 27 (13.1) | 13 (11.1) |
| Other | 31 (16.9) | 38 (18.4) | 19 (16.2) |
| Good to excellent | 169 (83.7) | 140 (68.0) | 94 (80.3) |
| Fair to poor | 34 (16.3) | 58 (28.2) | 23 (19.6) |
| Computer/laptop | 149 (72.0) | 134 (65.0) | 94 (80.3) |
| Mobile phone or smartphone | 186 (91.6) | 169 (84.9) | 108 (92.3) |
| Tablet | 100 (48.3) | 85 (41.3) | 58 (49.6) |
| Other | 4 (1.9) | 3 (1.5) | 0 (0.0) |
| Average number of devices owned (mean, SD) | 2.2 (0.9) | 2.0 (1.0) | 2.2 (0.8) |
| 155 (74.9) | 141 (65.0) | 102 (87.7) | |
| Text message | 159 (76.8) | 139 (67.5) | 102 (87.7) |
| 115 (55.6) | 85 (41.3) | 69 (59.0) | |
| 14 (6.8) | 10 (4.9) | 7 (6.0) | |
| 53 (25.6) | 32 (15.5) | 19 (16.2) | |
| Snapchat | 26 (12.6) | 10 (4.9) | 15 (12.8) |
| WhatsApp/WeChat | 55 (26.6) | 48 (23.3) | 11 (9.4) |
| Blogging | 5 (2.4) | 5 (2.4) | 5 (4.3) |
| Forum/chat room | 10 (4.8) | 9 (4.4) | 7 (6.0) |
| Other | 8 (3.9) | 5 (2.4) | 4 (3.4) |
| Number of platforms used (mean, SD) | 3.0 (1.9) | 2.4 (1.8) | 2.9 (1.5) |
| Looked for online information | 158 (76.3) | 140 (68.0) | 98 (83.8) |
| Monitored health digitally | 68 (32.9) | 70 (34.0) | 45 (38.5) |
SD, Standard deviation;
TAFE, Technical and Further Education; *Characteristics presented as n (%) unless otherwise stated; **Socioeconomic status is classified by IRSD10 – The Index of Relative Socio-economic Disadvantage Decile 2016, ranking within Australia. This index is based on information provided by the Australian Bureau Statistics (.
eHealth literacy scores of participants of Site 1, Site 2, and Site 3.
| 1. Using technology to process health information | 2.56 (0.61) | 2.57 (0.66) | 2.66 (0.49) |
| 2. Understanding of health concepts and language | 2.92 (0.43) | 2.96 (0.41) | 2.92 (0.38) |
| 3. Ability to actively engage with digital services | 2.66 (0.70) | 2.61 (0.72) | 2.71 (0.60) |
| 4. Feel safe and in control | 2.83 (0.49) | 2.78 (0.50) | 2.95 (0.45) |
| 5. Motivated to engage with digital services | 2.59 (0.54) | 2.64 (0.59) | 2.67 (0.48) |
| 6. Access to digital services that work | 2.64 (0.46) | 2.61 (0.45) | 2.67 (0.43) |
| 7. Digital services that suit individual needs | 2.43 (0.58) | 2.43 (0.57) | 2.44 (0.54) |
Example of and eHealth literacy profiles based on an eight-cluster solution for Site 1 respondents.
| Number of respondents | 6 | 24 | 39 | 51 | 43 | 17 | 17 | 1 |
| % in sample | 3.0 | 12.1 | 19.7 | 25.8 | 21.7 | 8.59 | 8.59 | 0.51 |
| 1. Using technology to process health information | 3.73 | 3.27 | 2.73 | 2.69 | 2.21 | 2.51 | 1.38 | 1.00 |
| 2. Understanding of health concepts and language | 3.93 | 3.43 | 2.98 | 2.90 | 2.68 | 2.66 | 2.85 (0.37) | 1.20 |
| 3. Ability to actively engage with digital services | 3.77 | 3.40 | 3.11 | 2.67 | 2.33 | 2.57 | 1.36 | 1.00 |
| 4. Feel safe and in control | 3.83 | 3.28 | 2.93 | 2.72 | 2.80 | 1.93 | 2.79 | 1.60 |
| 5. Motivated to engage with digital services | 3.77 | 3.17 | 2.79 | 2.71 | 2.21 | 2.54 | 1.69 | 1.00 |
| 6. Access to digital services that work | 3.56 | 3.08 | 2.90 | 2.72 | 2.35 | 2.20 | 2.11 | 1.17 |
| 7. Digital services that suit individual needs | 3.46 | 2.96 | 2.98 | 2.40 | 2.09 | 2.02 | 1.41 | 1.00 |
| Mean age | 52.7 | 44.3 | 50.0 | 51.4 | 57.0 | 49.3 | 71.3 | 93.0 |
| % Female | 83.3 | 62.5 | 61.5 | 54.9 | 58.1 | 58.8 | 76.5 | 100.0 |
| % Do not speak english at home | 16.7 | 25.0 | 25.6 | 31.4 | 34.9 | 47.1 | 64.7 | 100.0 |
| Average education | 5.6 | 5.0 | 5.1 | 5.0 | 4.6 | 5.4 | 2.8 | 2.0 |
| Average IRSD10 | 7.2 | 5.9 | 6.4 | 5.2 | 5.8 | 6.3 | 3.9 | 3.0 |
| % Have private health insurance | 50.0 | 54.2 | 61.5 | 58.8 | 60.5 | 64.7 | 17.7 | 0.0 |
| % No long-standing health condition | 50.0 | 62.5 | 56.4 | 47.1 | 39.5 | 58.8 | 47.1 | 0.0 |
| % Arthritis | 16.7 | 4.2 | 10.3 | 9.8 | 16.3 | 17.7 | 23.5 | 100.0 |
| % Cancer | 0.0 | 0.0 | 0.0 | 0.0 | 0.0 | 0.0 | 5.9 | 0.0 |
| % CVD/heart disease | 0.0 | 8.3 | 12.8 | 21.6 | 14.0 | 5.9 | 17.7 | 0.0 |
| % Diabetes | 16.7 | 0.0 | 7.7 | 11.8 | 11.6 | 5.9 | 11.6 | 0.0 |
| % Respiratory condition | 16.7 | 4.2 | 2.6 | 2.0 | 0.0 | 5.9 | 5.9 | 0.0 |
| % Anxiety | 16.7 | 20.8 | 7.7 | 13.7 | 16.3 | 23.5 | 5.9 | 0.0 |
| % Depression | 16.7 | 12.5 | 10.3 | 15.7 | 20.9 | 17.6 | 0.0 | 100.0 |
| Average number of health conditions | 1.2 | 0.7 | 0.6 | 1.0 | 1.0 | 0.8 | 0.8 | 2.0 |
| Average self-perceived health status | 2.0 | 2.4 | 2.6 | 2.8 | 2.9 | 2.7 | 3.0 | 3.0 |
| % Use computer | 100.0 | 83.3 | 89.7 | 68.6 | 69.8 | 94.1 | 17.7 | 0.0 |
| % Use mobile phone/smartphone | 100.0 | 95.8 | 94.9 | 94.1 | 86.0 | 100.0 | 52.9 | 0.0 |
| % Use tablet | 66.7 | 62.5 | 64.1 | 51.0 | 30.2 | 58.8 | 23.5 | 0.0 |
| Average number of digital devices | 2.7 | 2.5 | 2.5 | 2.1 | 1.9 | 2.6 | 0.9 | 0.0 |
| % Use email | 100.0 | 91.7 | 89.7 | 80.4 | 60.5 | 88.2 | 11.8 | 0.0 |
| % Use text messaging | 100.0 | 91.7 | 87.2 | 84.3 | 60.5 | 88.2 | 41.2 | 0.0 |
| % Use facebook | 83.3 | 79.2 | 64.1 | 60.8 | 46.5 | 41.2 | 17.7 | 0.0 |
| Average number of digital platforms | 4.7 | 3.0 | 3.6 | 3.0 | 2.2 | 2.9 | 0.9 | 0.0 |
| % Looked for information online | 100.0 | 91.7 | 89.7 | 80.4 | 62.8 | 94.1 | 17.7 | 0.0 |
| % Monitored health digitally | 66.7 | 62.5 | 48.7 | 23.5 | 18.6 | 52.9 | 0.0 | 0.0 |
The eHLQ scores are highlighted using the traffic light system of color coding as recommended in the Ophelia process (.
Description of clusters and vignettes.
| A | Tech-savvy and well-resourced | No |
| B | Young and digitally active | No |
| C | Good digital skills, healthy and digitally active | No |
| D | Average digital skills but digital active | Yes |
| E | Not interested in using technology but think eHealth is fine | Yes |
| F | Willing to use technology but not for health with concern about privacy | Yes |
| G | Good understanding of health with limited digital skills | Yes |
| H | No access or skills to use technology and limited understanding of health | No |
| A | Tech-savvy and well-resourced | No |
| B | Tech-savvy but poor access to useful digital services | No |
| C | Good digital skills and comfortable with eHealth | No |
| D | Good digital skills but concern about privacy | Yes |
| E | Limited digital skills but think eHealth maybe useful | Yes |
| F | Good digital skills but concerns about privacy and poor access to suitable digital services | Yes |
| G | Not interested in using technology but think eHealth is fine | Yes |
| H | Limited digital skills and not interested in technology | Yes |
| I | Good understanding of health and do not see technology useful | Yes |
| A | Tech-savvy, healthy and well-resourced | No |
| B | Tech-savvy with confidence in eHealth systems | No |
| C | Good digital skills and good understanding of health | No |
| D | Good digital skills but concern over privacy and poor experience with digital services | Yes |
| E | Average digital skills with limited access to suitable digital services | Yes |
| F | Average digital skills with poor access to suitable digital services | Yes |
| G | Limited digital skills but think eHealth is fine | Yes |
| H | Limited digital access and skills but good understanding of health | Yes |
Example of a vignette – Cluster G (Maria) of Site 1.
| 17 | 9 | 71.3 | 1.38 | 2.85 | 1.36 | 2.79 | 1.69 | 2.11 | 1.41 |
| Maria is a cheerful 82-year-old grandma with primary school education. She speaks limited English but can manage basic daily conversations. Living with her husband, she has two daughters and five grandchildren, who live close by. Having arthritis does not stop her from doing what she loves most – cooking for her family. | |||||||||
| Maria's daughter gave her a mobile phone last year and her grandson tried to teach her to use it without success. They ring her, but she never answers her phone either because she doesn't hear the phone ring, or she just keeps pressing the wrong buttons. The buttons are just too small, and she can hardly see them. | |||||||||
| Reading text messages is another next to impossible task. She has given up learning as she believes she will die soon, so, there is no need to learn these “new” digital technologies. She notices that her family doctor types her information into his computer, but she has no idea what that means. She knows you can find health information on the internet, but she strongly believes that you should always ask health professionals for advice, not the internet. | |||||||||
Co-designed strategies and number of solutions.
| 1 | Provide training or encourage use of technologies | 7 | 4 | 5 |
| Examples of solutions: | ||||
| • Advertise or provide access to technology training programs | ||||
| • Provide a “digital navigator” to interact with clients in the waiting room to provide information or assist in using digital devices | ||||
| • Support clients to choose appropriate digital device(s) | ||||
| 2 | Provide access to reliable and trustworthy eHealth resources | 3 | 3 | 5 |
| Examples of solutions: | ||||
| • Give clients specific links to navigate to appropriate websites •Sharing of consumer-focused eHealth resources between partner organizations | ||||
| • Establish a way that the clinic's recommended digital services and apps can be easily downloaded by clients to their own devices | ||||
| 3 | Support clients with concerns on privacy and security of eHealth systems | 3 | 5 | 3 |
| Examples of solutions: | ||||
| • Educate clients on how eHealth services are provided with security and privacy considerations | ||||
| • Advocate government to take responsibility in ensuring the safety and security of electronic health records | ||||
| • Provide a health summary in physical form if client decides not to use electronic health records | ||||
| 4 | Provide technologies and eHealth systems that meet different needs | – | 3 | 1 |
| Examples of solutions: | ||||
| • Involve users when developing websites or digital technologies to match their needs and skills | ||||
| • Advocate government to ensure electronic health records are up to date | ||||
| • Ensure organization information technology systems are working smoothly to work with clients efficiently | ||||
| 5 | Ensure effective communication to meet individual needs | 4 | 8 | 2 |
| Examples of solutions: | ||||
| • Provide health information in multiple formats such as prints, audio, video, diagrams, large print or appropriate languages | ||||
| • Encourage clinicians to use plain language and write down information and instructions for clients | ||||
| • Support practitioners with access to culturally appropriate resources | ||||
| 6 | Harness family and social support | 4 | 9 | 1 |
| Examples of solutions: | ||||
| • Encourage volunteers, friends or family members to provide regular practice in using technologies through one-on-one coaching or mentoring | ||||
| • Encourage and support family members to manage health for the elderly | ||||
| • Provide a space and opportunities for social networking among clients to share good health information | ||||
| 7 | Motivate clients to actively engage with own health | 6 | 3 | 6 |
| Examples of solutions: | ||||
| • Educate clients about their health conditions, assist them to set up personal goals and link their interest to health-promoting activities | ||||
| • Connect clients' interest to technologies and provide positive experiences such as using iPad to demonstrate exercise or provide feedback during consultations | ||||
| • Provide access to community educators or nurses to promote understanding of own health condition | ||||
| 8 | Use a tailored and multi-disciplinary approach to health care | 2 | 2 | 5 |
| Examples of solutions: | ||||
| • Refer clients to key services, e.g., mental health, exercise, etc. | ||||
| • Support clinicians with better access to medical history of clients (with clients' consent) to facilitate a team-approach to health care | ||||
| • Provide a comprehensive multi-disciplinary “one-stop-shop” in one session with content that really helps clients | ||||
| 9 | Build capacity for evidence-based practice | 1 | 2 | 1 |
| Examples of solutions: | ||||
| • Ensure health professionals have a genuine understanding of available health education courses | ||||
| • Provide clinicians with ongoing professional development on eHealth | ||||
| • Explore best practice and health evidence and support clinicians with ongoing professional development | ||||
| 10 | Provide access to conventional and digital health services | 2 | 4 | 3 |
| Examples of solutions: | ||||
| • Connect with clients using appropriately tailored communication platform | ||||
| • Provide clients with summaries of medical history and/or medication in printed formats | ||||
| • Keep in mind that there are people who are “out of the web” in strategic planning | ||||