Jens Büntzel1, Stefanie Walter1, Herbert Hellmund2, Michael Klein3, Jutta Hübner1, Petr Vitek4, Judith Büntzel5, Sven Koscielny6, Andreas M Sesterhenn7, Arndt Büssing8. 1. AG Prävention und Integrative Onkologie (PRIO), German Cancer Society, Berlin, Germany. 2. Geschäftsstelle, Bundesverband der Kehlkopfoperierten e. V., Bonn, Germany. 3. Klinik für Hämatoonkologie, Universitätsklinikum Jena, Germany. 4. HNO-Klinik, Südharz Klinikum Nordhausen gGmbH, Nordhausen, Germany. 5. Klinik für Hämatologie und medizinische Onkologie, Universitätsmedizin Göttingen, Göttingen, Germany. 6. HNO-Klinik, Universitätsklinikum Jena, Germany. 7. Klinik für Hals-Nasen-Ohrenheilkunde, Städtisches Klinikum Solingen, Germany. 8. Professur für Lebensqualität, Spiritualität und Coping, Universität Witten-Herdecke, Witten, Germany.
Abstract
OBJECTIVE: COVID-19 pandemic has impact on the oncology service system for tumor patients. What is the view of head and neck cancer patients (HNC) on this situation and which coping strategies were developed? MATERIAL & METHODS: In study 1 PRIO asked 433 tumor patients regarding their impressions/fears during the lockdown between April 15 and May 15, 2020 (online, standardized questionnaire). In 2nd study 292 tumor patients reported their pandemic-induced perceived changes and coping strategies by established questionnaires (WHO-5, MLQ, GrAw-7). An analysis of the HNC-data obtained by standardized questionnaires was performed. RESULTS: Study 1 had 91 HNC, study 2-84 HNC. Study 1 shows high stress levels for the majority of HNC (53,8 %). Personal fears regarding the own disease and therapies (39.6 %) are a central problem. The participants await physical (24.7 %) as well as psychological (21.3 %) consequences due to the pandemic and its current management. During the lockdown the isolation (banned visitors at any hospital) was discussed as critical main point by 58.5 % of HNC patients. Study 2 (after lockdown) underlined the mental stress caused by pandemic. Intensified relations within the families (58/100 points) as well as more intensive experience of nature and silence (58/60 points) are the most perceived changes in corona-times. HNC showed increased own inactivity (MLQ) and depressed well-being (WHO-5) and attention to the moment (GrAw-7). CONCLUSIONS: HNC patients have had high burden and fears due to the COVID-19 pandemic in spring 2020. Their views are important for further strategies to organize and stabilize the oncology service system during further pandemic periods. Thieme. All rights reserved.
OBJECTIVE:COVID-19 pandemic has impact on the oncology service system for tumorpatients. What is the view of head and neck cancerpatients (HNC) on this situation and which coping strategies were developed? MATERIAL & METHODS: In study 1 PRIO asked 433 tumorpatients regarding their impressions/fears during the lockdown between April 15 and May 15, 2020 (online, standardized questionnaire). In 2nd study 292 tumorpatients reported their pandemic-induced perceived changes and coping strategies by established questionnaires (WHO-5, MLQ, GrAw-7). An analysis of the HNC-data obtained by standardized questionnaires was performed. RESULTS: Study 1 had 91 HNC, study 2-84 HNC. Study 1 shows high stress levels for the majority of HNC (53,8 %). Personal fears regarding the own disease and therapies (39.6 %) are a central problem. The participants await physical (24.7 %) as well as psychological (21.3 %) consequences due to the pandemic and its current management. During the lockdown the isolation (banned visitors at any hospital) was discussed as critical main point by 58.5 % of HNC patients. Study 2 (after lockdown) underlined the mental stress caused by pandemic. Intensified relations within the families (58/100 points) as well as more intensive experience of nature and silence (58/60 points) are the most perceived changes in corona-times. HNC showed increased own inactivity (MLQ) and depressed well-being (WHO-5) and attention to the moment (GrAw-7). CONCLUSIONS: HNC patients have had high burden and fears due to the COVID-19 pandemic in spring 2020. Their views are important for further strategies to organize and stabilize the oncology service system during further pandemic periods. Thieme. All rights reserved.