Flávia Borges-Machado1, Duarte Barros1, Óscar Ribeiro2, Joana Carvalho1,3. 1. CIAFEL, Centro de Investigação em Atividade Física, Saúde e Lazer, Universidade do Porto, Porto, Portugal. 2. Departamento de Educação e Psicologia, CINTESIS, Centro de Investigação em Tecnologias e Serviços de Saúde, Universidade de Aveiro, Aveiro, Portugal. 3. Faculdade de Desporto da Universidade do Porto, Porto, Portugal.
Abstract
PURPOSE: This study aims to analyze home confinement impact on individuals with neurocognitive disorders (NCD) through informal caregiver's perspective and examine how it has affected caregiving burden. METHODS: Thirty-six caregivers (64.94 ± 13.54 years, 41.7% female) of individuals with NCD (74.28 ± 6.76 years, 66.7% female) selected from the Body & Brain exercise program were interviewed over the phone. The following instruments were used: Barthel Index (BI) to assess care recipients' ability to function independently on activities of daily living (ADL), the Neuropsychiatric Inventory (NPI) to evaluate neuropsychiatric symptoms, and the CarerQol-7D/ CarerQol-VAS to determine caregiver subjective burden/well-being. RESULTS: Pre and post-confinement comparisons showed that care recipients significantly declined their independence in ADL (p = 0.003) and increased NPI total score (MD = 5.72; 95% CI: 1.19 to 10.25, p = 0.015). As for caregivers, results also showed an increased caregiving burden (MD = -0.17; 95% CI: -0.27 to -0.08; p = 0.001) and a decline in their well-being (p = 0.015). DISCUSSION: COVID-19 crisis sheds light on how imperative it is to find solutions and design contingency plans for future crisis, in order to ensure properly sustained support to dementia caregiving dyads and mitigate caregivers' burden.
PURPOSE: This study aims to analyze home confinement impact on individuals with neurocognitive disorders (NCD) through informal caregiver's perspective and examine how it has affected caregiving burden. METHODS: Thirty-six caregivers (64.94 ± 13.54 years, 41.7% female) of individuals with NCD (74.28 ± 6.76 years, 66.7% female) selected from the Body & Brain exercise program were interviewed over the phone. The following instruments were used: Barthel Index (BI) to assess care recipients' ability to function independently on activities of daily living (ADL), the Neuropsychiatric Inventory (NPI) to evaluate neuropsychiatric symptoms, and the CarerQol-7D/ CarerQol-VAS to determine caregiver subjective burden/well-being. RESULTS: Pre and post-confinement comparisons showed that care recipients significantly declined their independence in ADL (p = 0.003) and increased NPI total score (MD = 5.72; 95% CI: 1.19 to 10.25, p = 0.015). As for caregivers, results also showed an increased caregiving burden (MD = -0.17; 95% CI: -0.27 to -0.08; p = 0.001) and a decline in their well-being (p = 0.015). DISCUSSION: COVID-19 crisis sheds light on how imperative it is to find solutions and design contingency plans for future crisis, in order to ensure properly sustained support to dementia caregiving dyads and mitigate caregivers' burden.
Authors: Clarissa Giebel; Kerry Hanna; Jacqueline Cannon; Justine Shenton; Stephen Mason; Hilary Tetlow; Paul Marlow; Manoj Rajagopal; Mark Gabbay Journal: Health Soc Care Community Date: 2021-11-21
Authors: Giacomo Tondo; Barbara Sarasso; Paola Serra; Fabiana Tesser; Cristoforo Comi Journal: Int J Environ Res Public Health Date: 2021-04-18 Impact factor: 3.390
Authors: Kathy Y Liu; Robert Howard; Sube Banerjee; Adelina Comas-Herrera; Joanne Goddard; Martin Knapp; Gill Livingston; Jill Manthorpe; John T O'Brien; Ross W Paterson; Louise Robinson; Martin Rossor; James B Rowe; David J Sharp; Andrew Sommerlad; Aida Suárez-González; Alistair Burns Journal: Int J Geriatr Psychiatry Date: 2021-05-27 Impact factor: 3.850