Literature DB >> 33271447

Stress and emotional wellbeing of parents due to change in routine for children with Autism Spectrum Disorder (ASD) at home during COVID-19 pandemic in Saudi Arabia.

Talal Alhuzimi1.   

Abstract

BACKGROUND: Parents of children with Autism Spectrum Disorder (ASD) experience considerable amounts of stress and impaired emotional well-being. Consequently, it is likely that these have been adversely impacted by COVID-19 outbreak due to disruptions to the schedules of children with ASD. AIM: This study investigated the stress and emotional well-being of parents of children with ASD in Saudi Arabia during the COVID-19 pandemic.
METHOD: The study obtained quantitative data from 150 parents of children with ASD from different regions in Saudi Arabia using an online survey. The data collected included demographic data of the parents, ASD status of the family, ASD support during COVID-19 pandemic, severity of ASD behaviours in comparison to the pre- COVID-19 status eating behaviour of the child with ASD, Parental Stress, and emotional well-being. The PSI-short form (PSI-SF) (Abidin, 1995) scale was utilised to obtain data related to parental stress and the General Health Questionnaire (GHQ-12) (Goldberg, 1992) scale was utilised to obtain data related to parents' emotional well-being.
RESULTS: The study found that family ASD status (in particular, age and gender of child with ASD, and severity of his/her symptoms) had a significant impact on parental stress and emotional well-being. Moreover, parental stress and emotional well-being were negatively impacted by the frequency and usefulness of ASD support received during COVID-19 pandemic. These were also adversely impacted by the change in severity of ASD behaviours of the children with ASD. Finally, parental stress was found to have a negative impact on the emotional well-being of parents. Overall, the study found that the parental stress and emotional well-being of parents of children with ASD in Saudi Arabia had been unfavourably impacted by COVID-19 pandemic.
CONCLUSIONS: Overall, the study found that the parental stress and emotional well-being of parents with ASD in Saudi Arabia had been unfavourably impacted by COVID-19 pandemic. This study recommends the involvement of the Saudi Ministry of Health to establish and extend support services to support parents of children with ASD. Moreover, the provision of training programs to help parents deal with the characteristic behaviour of their children with ASD such as, the ability to maintain routines, aggressive or repetitive behaviour, is also recommended.
Copyright © 2020 Elsevier Ltd. All rights reserved.

Entities:  

Keywords:  Autism Spectrum Disorder (ASD); COVID-19 pandemic; Emotional well-being; Parents; Stress

Year:  2020        PMID: 33271447     DOI: 10.1016/j.ridd.2020.103822

Source DB:  PubMed          Journal:  Res Dev Disabil        ISSN: 0891-4222


  25 in total

1.  Experience of Autistic Children and Their Families During the Pandemic: From Distress to Coping Strategies.

Authors:  Claudine Jacques; Geneviève Saulnier; Agnès Éthier; Isabelle Soulières
Journal:  J Autism Dev Disord       Date:  2021-08-27

2.  Quality of Life Changes during the COVID-19 Pandemic for Caregivers of Children with ADHD and/or ASD.

Authors:  Keith W Pecor; Georgia Barbyannis; Max Yang; Jacklyn Johnson; Sarah Materasso; Mauricio Borda; Disleidy Garcia; Varsha Garla; Xue Ming
Journal:  Int J Environ Res Public Health       Date:  2021-04-01       Impact factor: 3.390

3.  COVID-19 pandemic effects in people with Autism Spectrum Disorder and their caregivers: Evaluation of social distancing and lockdown impact on mental health and general status.

Authors:  Jorge Lugo-Marín; Laura Gisbert-Gustemps; Imanol Setien-Ramos; Gemma Español-Martín; Pol Ibañez-Jimenez; Mireia Forner-Puntonet; Gara Arteaga-Henríquez; Albert Soriano-Día; Juan David Duque-Yemail; Josep Antoni Ramos-Quiroga
Journal:  Res Autism Spectr Disord       Date:  2021-02-25

4.  Impact of the COVID-19 pandemic on children and adolescents with autism spectrum disorder and their families: a mixed-methods study protocol.

Authors:  Linda Dekker; Linde Hooijman; Anneke Louwerse; Kirsten Visser; Dennis Bastiaansen; Leontine Ten Hoopen; Pieter De Nijs; Gwen Dieleman; Wietske Ester; Susan Van Rijen; Femke Truijens; Ruth Van der Hallen
Journal:  BMJ Open       Date:  2022-01-25       Impact factor: 2.692

Review 5.  Magnitude and Factors Affecting Parental Stress and Effective Stress Management Strategies Among Family Members During COVID-19.

Authors:  Usha Rani Kandula; Addisu Dabi Wake
Journal:  Psychol Res Behav Manag       Date:  2022-01-07

6.  COVID-19 vaccination among individuals with autism spectrum disorder: A population-based study.

Authors:  Orly Weinstein; Israel Krieger; Arnon Dov Cohen; Dana Tzur Bitan
Journal:  Res Autism Spectr Disord       Date:  2021-09-17

7.  Investigating the effects of COVID-19 lockdown on Italian children and adolescents with and without neurodevelopmental disorders: a cross-sectional study.

Authors:  Cristiano Termine; Linda Greta Dui; Laura Borzaga; Vera Galli; Rossella Lipari; Marta Vergani; Valentina Berlusconi; Massimo Agosti; Francesca Lunardini; Simona Ferrante
Journal:  Curr Psychol       Date:  2021-10-25

Review 8.  Children and Adolescents with Disabilities and Exposure to Disasters, Terrorism, and the COVID-19 Pandemic: a Scoping Review.

Authors:  Mana Mann; Julia E McMillan; Ellen J Silver; Ruth E K Stein
Journal:  Curr Psychiatry Rep       Date:  2021-10-13       Impact factor: 5.285

9.  Mental health of parents of children with autism spectrum disorder during COVID-19 pandemic: A systematic review.

Authors:  Büşra Yılmaz; Merve Azak; Nevin Şahin
Journal:  World J Psychiatry       Date:  2021-07-19

10.  The COVID-19 pandemic: The evaluation of the emergency remote parent training program based on at-home support for children with down syndrome.

Authors:  S Çelik; G Tomris; D M Tuna
Journal:  Child Youth Serv Rev       Date:  2021-12-02
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