Literature DB >> 33253991

'Not at the diagnosis point': Dealing with contradiction in autism assessment teams.

Jennie Hayes1, Rose McCabe2, Tamsin Ford3, Daisy Parker4, Ginny Russell5.   

Abstract

Social science literature has documented how the concept of diagnosis can be seen as an interactive process, imbued with uncertainty and contradiction, which undermines a straightforward notion of diagnosis as a way to identify underlying biological problems that cause disease. We contribute to this body of work by examining the process of resolving contradiction in autism diagnosis for adults and adolescents. Autism is a useful case study as diagnosis can be a complex and protracted process due to the heterogeneity of symptoms and the necessity to interpret behaviours that may be ambiguous. We audio-recorded and transcribed 18 specialist clinical assessment meetings in four teams in England, covering 88 cases in two adult, one child and one adolescent (14+) setting. We undertook a qualitative analysis of discursive processes and narrative case-building structure utilised by clinicians to counteract contradiction.We identified a three-part interactional pattern which allows clinicians to forward evidence for and against a diagnosis, facilitates their collaborative decision-making process and enables them to build a plausible narrative which accounts for the diagnostic decision. Pragmatism was found to operate as a strategy to help assign diagnosis within a condition which, diagnostically, is permeated by uncertainty and contradiction. Resolution of contradiction from different aspects of the assessment serves to create a narratively-coherent, intelligible clinical entity that is autism.
Copyright © 2020 The Authors. Published by Elsevier Ltd.. All rights reserved.

Entities:  

Keywords:  Autism; Diagnosis; Discourse; Narrative; Sociology of diagnosis; UK; Uncertainty

Mesh:

Year:  2020        PMID: 33253991      PMCID: PMC7814339          DOI: 10.1016/j.socscimed.2020.113462

Source DB:  PubMed          Journal:  Soc Sci Med        ISSN: 0277-9536            Impact factor:   4.634


  49 in total

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2.  Brief report: Interrater reliability of clinical diagnosis and DSM-IV criteria for autistic disorder: results of the DSM-IV autism field trial.

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3.  Experiences of diagnosing autism spectrum disorder: A survey of professionals in the United Kingdom.

Authors:  Claire L Rogers; Lorna Goddard; Elisabeth L Hill; Lucy A Henry; Laura Crane
Journal:  Autism       Date:  2015-12-16

4.  Citing conduct, individualizing symptoms: Accomplishing autism diagnosis in clinical case conferences.

Authors:  Jason Turowetz
Journal:  Soc Sci Med       Date:  2015-08-18       Impact factor: 4.634

5.  Putting a name to it: diagnosis in contemporary society Annemarie Jutel Putting a name to it: diagnosis in contemporary society Johns Hopkins University £23.50 200pp 9781421400679 1421400677 [Formula: see text].

Authors: 
Journal:  Emerg Nurse       Date:  2011-12-07

6.  Patchwork diagnoses: the production of coherence, uncertainty, and manageable bodies.

Authors:  John Gardner; Kevin Dew; Maria Stubbe; Tony Dowell; Lindsay Macdonald
Journal:  Soc Sci Med       Date:  2011-01-18       Impact factor: 4.634

7.  The narrative nature of clinical reasoning.

Authors:  C Mattingly
Journal:  Am J Occup Ther       Date:  1991-11

8.  Beyond 'doctor and patient': developments in the study of healthcare interactions.

Authors:  Alison Pilnick; Jon Hindmarsh; Virginia Teas Gill
Journal:  Sociol Health Illn       Date:  2009-09

Review 9.  Sex/gender differences and autism: setting the scene for future research.

Authors:  Meng-Chuan Lai; Michael V Lombardo; Bonnie Auyeung; Bhismadev Chakrabarti; Simon Baron-Cohen
Journal:  J Am Acad Child Adolesc Psychiatry       Date:  2014-10-16       Impact factor: 8.829

10.  Autism Diagnosis in the United Kingdom: Perspectives of Autistic Adults, Parents and Professionals.

Authors:  Laura Crane; Richard Batty; Hanna Adeyinka; Lorna Goddard; Lucy A Henry; Elisabeth L Hill
Journal:  J Autism Dev Disord       Date:  2018-11
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  2 in total

1.  Yonder: Autism, home visits, suicidal ideation, and young sudden cardiac death.

Authors:  Ahmed Rashid
Journal:  Br J Gen Pract       Date:  2021-02-25       Impact factor: 5.386

2.  Autism diagnosis as a social process.

Authors:  Jennie Hayes; Tamsin Ford; Rose McCabe; Ginny Russell
Journal:  Autism       Date:  2021-07-09
  2 in total

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