Literature DB >> 33250625

Lessons from my Elders on Recruitment and Retention into Health Research.

Nina T Harawa1.   

Abstract

In this brief report, the author shares lessons from Loretta Jones, MA and William Jenkins, PhD, two elders who shaped her research with communities that occupy intersecting marginalized categories. These lessons were echoed and amplified by the community panelists at the RCMAR workshop on recruitment and retention of diverse elders. They include centering the priorities of communities themselves, helping community members envision the types of positive transformations that research can help bring about, engaging and valuing the contributions of diverse sectors of the community, and recognizing the desire of aging individuals and communities to leave a legacy. Because heath care, research, and governmental institutions have engendered so much mistrust in racial/ethnic minority communities, researchers must learn first the particular histories and experience of the populations they intend to study. Equipped with this knowledge, cultural humility, and a willingness to listen, researchers can then use these strategies to earn the trust necessary for successful recruitment and retention in research.
Copyright © 2020, Ethnicity & Disease, Inc.

Entities:  

Keywords:  Black/African Americans; Ethics; Older Adults; Racial Disparity

Mesh:

Year:  2020        PMID: 33250625      PMCID: PMC7683032          DOI: 10.18865/ed.30.S2.781

Source DB:  PubMed          Journal:  Ethn Dis        ISSN: 1049-510X            Impact factor:   2.006


  15 in total

Review 1.  Identifying Those Whom Health Promotion Hardly Reaches: A Systematic Review.

Authors:  Rebeccah Sokol; Edwin Fisher; Julia Hill
Journal:  Eval Health Prof       Date:  2015-09-24       Impact factor: 2.651

2.  Story of Stone Soup: a recipe to improve health disparities.

Authors:  Bowen Chung; Loretta Jones; Chrystene Terry; Andrea Jones; Nell Forge; Keith C Norris
Journal:  Ethn Dis       Date:  2010       Impact factor: 1.847

Review 3.  The causes and effects of socio-demographic exclusions from clinical trials.

Authors:  C Bartlett; L Doyal; S Ebrahim; P Davey; M Bachmann; M Egger; P Dieppe
Journal:  Health Technol Assess       Date:  2005-10       Impact factor: 4.014

Review 4.  Enrollment of Racial Minorities in Clinical Trials: Old Problem Assumes New Urgency in the Age of Immunotherapy.

Authors:  Bassel Nazha; Manoj Mishra; Rebecca Pentz; Taofeek K Owonikoko
Journal:  Am Soc Clin Oncol Educ Book       Date:  2019-05-17

Review 5.  Statins for Primary Prevention in Older Adults-Moving Toward Evidence-Based Decision-Making.

Authors:  Sonal Singh; Susan Zieman; Alan S Go; Stephen P Fortmann; Nanette K Wenger; Jerome L Fleg; Barbara Radziszewska; Neil J Stone; Sophia Zoungas; Jerry H Gurwitz
Journal:  J Am Geriatr Soc       Date:  2018-10-02       Impact factor: 5.562

6.  Inclusiveness and ethical considerations for observational, translational, and clinical cancer health disparity research.

Authors:  Michael Behring; Kevin Hale; Bunyamin Ozaydin; William E Grizzle; Stephen O Sodeke; Upender Manne
Journal:  Cancer       Date:  2019-09-10       Impact factor: 6.860

7.  Disparity of Race Reporting and Representation in Clinical Trials Leading to Cancer Drug Approvals From 2008 to 2018.

Authors:  Jonathan M Loree; Seerat Anand; Arvind Dasari; Joseph M Unger; Anirudh Gothwal; Lee M Ellis; Gauri Varadhachary; Scott Kopetz; Michael J Overman; Kanwal Raghav
Journal:  JAMA Oncol       Date:  2019-10-10       Impact factor: 31.777

8.  Representativeness of Black Patients in Cancer Clinical Trials Sponsored by the National Cancer Institute Compared With Pharmaceutical Companies.

Authors:  Joseph M Unger; Dawn L Hershman; Raymond U Osarogiagbon; Anirudh Gothwal; Seerat Anand; Arvind Dasari; Michael Overman; Jonathan M Loree; Kanwal Raghav
Journal:  JNCI Cancer Spectr       Date:  2020-04-24

9.  Demographic Characteristics of Participants in Rheumatoid Arthritis Randomized Clinical Trials: A Systematic Review.

Authors:  Adrienne Strait; Francine Castillo; Sonam Choden; Jing Li; Evans Whitaker; Titilola Falasinnu; Gabriela Schmajuk; Jinoos Yazdany
Journal:  JAMA Netw Open       Date:  2019-11-01

10.  Time- and Race-Specific Haematological Reference Intervals for Healthy Volunteer Trials: A Retrospective Analysis of Pooled Data From Multiple Phase I Trials.

Authors:  Simon Coates; Duolao Wang; Tomasz Pierscionek; Sara Fernandes; Dilshat Djumanov; Ulrike Lorch; Jörg Täubel
Journal:  Front Pharmacol       Date:  2020-03-13       Impact factor: 5.810

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