Krupa Krishnaprasad1,2, Alissa Walsh3, Jakob Begun4, Sally Bell5, David Carter6, Rachel Grafton7, Alexandra Sechi8, Karen Sewell4, Anna McMahon9, Susan Connor8, Graham Radford-Smith1,9,10, Jane M Andrews7. 1. Gut Health, QIMR Berghofer Medical Research Institute, Brisbane, Australia. 2. Department of Gastroenterology, St Vincent's Hospital Melbourne, Melbourne, Australia. 3. Translational Gastroenterology Unit, John Radcliffe Hospital, Oxford, UK. 4. Department of Gastroenterology, Mater Hospital, Brisbane, Australia. 5. Department of Gastroenterology, Monash Health, Melbourne, Australia. 6. Stratos Technology Partners, Christchurch, New Zealand. 7. Department of Gastroenterology, Royal Adelaide Hospital & University of Adelaide, Adelaide, Australia. 8. Department of Gastroenterology, Liverpool Hospital, University of NSW & Ingham Institute of Applied Medical Research, Liverpool, Australia. 9. Department of Gastroenterology, Royal Brisbane and Women's Hospital, Brisbane, Australia. 10. University of Queensland School of Medicine, Brisbane, Australia.
Abstract
BACKGROUND: Adherence to evidence-based management is variable in inflammatory bowel disease (IBD), which leads to worse patient outcomes and higher healthcare utilization. Solutions include electronic systems to enhance care, but these have often been limited by lack of clinician design input, poor usability, and low perceived value. A cloud-based IBD-specific clinical management software - 'Crohn's Colitis Care' (CCCare) was developed by Australia and New Zealand Inflammatory Bowel Disease Consortium clinicians and software developers to improve this. METHODS: CCCare captures patient-reported disease activity and medical assessment, medication monitoring, cancer screening, preventative health, and facilitates communication with the IBD team and referring doctor. De-identified longitudinal data are stored separately in a clinical quality registry for research. CCCare was tested for feasibility and usability in routine clinical settings at two large Australian hospitals. Users' experience was evaluated with System Usability Scale (SUS). Value to clinicians and patients was assessed by qualitative feedback. Security was assessed by penetration testing. RESULTS: Users (n = 13; doctors, nurses, patients) reported good usability and learnability (mean SUS score 75 (range 50-95), sub-scores were 77 (50-94) and 68 (38-100), respectively). Patients reported better communication with clinical team and greater ability to track disease. Clinicians highlighted structured management plans, medication adherence, and centralised data repository as positive features. Penetration testing was passed successfully. CONCLUSIONS: Initial evaluation demonstrates CCCare is usable, secure, and valued in clinical use. It is designed to measure outcomes of clinical care, including efficacy, quality, cost, and complications for individuals, and to audit these at hospital and national level.
BACKGROUND: Adherence to evidence-based management is variable in inflammatory bowel disease (IBD), which leads to worse patient outcomes and higher healthcare utilization. Solutions include electronic systems to enhance care, but these have often been limited by lack of clinician design input, poor usability, and low perceived value. A cloud-based IBD-specific clinical management software - 'Crohn's Colitis Care' (CCCare) was developed by Australia and New Zealand Inflammatory Bowel Disease Consortium clinicians and software developers to improve this. METHODS: CCCare captures patient-reported disease activity and medical assessment, medication monitoring, cancer screening, preventative health, and facilitates communication with the IBD team and referring doctor. De-identified longitudinal data are stored separately in a clinical quality registry for research. CCCare was tested for feasibility and usability in routine clinical settings at two large Australian hospitals. Users' experience was evaluated with System Usability Scale (SUS). Value to clinicians and patients was assessed by qualitative feedback. Security was assessed by penetration testing. RESULTS: Users (n = 13; doctors, nurses, patients) reported good usability and learnability (mean SUS score 75 (range 50-95), sub-scores were 77 (50-94) and 68 (38-100), respectively). Patients reported better communication with clinical team and greater ability to track disease. Clinicians highlighted structured management plans, medication adherence, and centralised data repository as positive features. Penetration testing was passed successfully. CONCLUSIONS: Initial evaluation demonstrates CCCare is usable, secure, and valued in clinical use. It is designed to measure outcomes of clinical care, including efficacy, quality, cost, and complications for individuals, and to audit these at hospital and national level.
Authors: Patricia Kaazan; Tracy Li; Warren Seow; Jana Bednarz; Joseph L Pipicella; Krupa Krishnaprasad; Watson Ng; Astrid-Jane Williams; Susan J Connor; Jane M Andrews Journal: JGH Open Date: 2021-08-07