Iris van der Heide1, Nienke van Wezel2, Marco Blom2, Peter Spreeuwenberg3, Walter L J M Devillé4, Anneke L Francke5. 1. Nivel, Netherlands Institute of Health Services Research, P.O. Box 1568, 3500 BN Utrecht, Netherlands. Electronic address: i.vanderheide@nivel.nl. 2. Alzheimer Nederland, Amersfoort, Netherlands. 3. Nivel, Netherlands Institute of Health Services Research, P.O. Box 1568, 3500 BN Utrecht, Netherlands. 4. Nivel, Netherlands Institute of Health Services Research, P.O. Box 1568, 3500 BN Utrecht, Netherlands; Faculty of Social and Behavioral Sciences, University of Amsterdam, Amsterdam, Netherlands; Julius Centre for Health Sciences and Primary Care, University Medical Centre, Utrecht, Netherlands. 5. Nivel, Netherlands Institute of Health Services Research, P.O. Box 1568, 3500 BN Utrecht, Netherlands; Department of Public and Occupational Health, Amsterdam Public Health Research Institute, VU University, Amsterdam, Netherlands.
Abstract
OBJECTIVE: Gaining understanding of the health-related quality of life (HRQL) of family caregivers of people with dementia with Turkish or Moroccan immigrant backgrounds and to examine whether an educational peer group intervention can improve HRQL. METHODS: Understanding of HRQL and associated variables was obtained by multiple linear regression analyses. The effects of the intervention on HRQL were assessed in multilevel analyses using data collected before the start (baseline), directly after the intervention (one to two weeks after baseline) and three months after the start of the intervention. The intervention (two interactive group sessions) entailed providing information about dementia and care/support options. RESULTS: At baseline (n = 319), HRQL was moderately and significantly associated with migration background, gender, self-perceived pressure from informal care and the formal and informal support received (p < .05). The intervention had a small effect on emotional wellbeing directly after the intervention (p < .05) and on perceived general health status three months after (p < .05). CONCLUSION: Culturally sensitive peer group education on dementia and care/support options can to some extent enhance HRQL among family caregivers in the short term. PRACTICE IMPLICATIONS: The intervention as described in this study is recommended for supporting family caregivers of people with dementia with Turkish or Moroccan backgrounds.
RCT Entities:
OBJECTIVE: Gaining understanding of the health-related quality of life (HRQL) of family caregivers of people with dementia with Turkish or Moroccan immigrant backgrounds and to examine whether an educational peer group intervention can improve HRQL. METHODS: Understanding of HRQL and associated variables was obtained by multiple linear regression analyses. The effects of the intervention on HRQL were assessed in multilevel analyses using data collected before the start (baseline), directly after the intervention (one to two weeks after baseline) and three months after the start of the intervention. The intervention (two interactive group sessions) entailed providing information about dementia and care/support options. RESULTS: At baseline (n = 319), HRQL was moderately and significantly associated with migration background, gender, self-perceived pressure from informal care and the formal and informal support received (p < .05). The intervention had a small effect on emotional wellbeing directly after the intervention (p < .05) and on perceived general health status three months after (p < .05). CONCLUSION: Culturally sensitive peer group education on dementia and care/support options can to some extent enhance HRQL among family caregivers in the short term. PRACTICE IMPLICATIONS: The intervention as described in this study is recommended for supporting family caregivers of people with dementia with Turkish or Moroccan backgrounds.
Authors: Manka Nkimbeng; Christina E Rosebush; Kwame O Akosah; Hawking Yam; Wynfred N Russell; Gabriela Bustamante; Elizabeth A Albers; Tetyana P Shippee; Arundhathi P Sasikumar; Joseph E Gaugler Journal: Int J Environ Res Public Health Date: 2022-03-29 Impact factor: 3.390