Literature DB >> 33135283

Assessing clinical education tools for expanded carrier screening.

Chloe Dugger1, Hannah S Anderson2, Christine E Miller2, Bob Wong3, Erin P Johnson4, Erin Rothwell4.   

Abstract

Expanded carrier screening (ECS) is increasingly offered to a broader population and raises challenges of how to best educate and counsel the volume of screened individuals. For this study, we compared three educational tools (brochure, video and comic) about ECS on knowledge and decision making. A convenience online sample of 151 pregnant women was randomized to one of three groups (Video, n = 42; Comic n = 54; Brochure n = 55). Knowledge scores were significantly higher for the comic group compared to the video or the brochure groups (p < .001). No significant differences in preparation for decision making, decisional conflict, or perceptions of shared decision making were identified between the study groups. This study suggests that a comic about ECS may improve patient attention and retention of information. The use of graphic narratives may enable individuals to better understand medical information in general.
© 2020 National Society of Genetic Counselors.

Entities:  

Keywords:  carrier screening; counseling techniques; decision making; education; genetic counseling; population screening

Mesh:

Year:  2020        PMID: 33135283      PMCID: PMC8026544          DOI: 10.1002/jgc4.1349

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.537


  22 in total

1.  The role of transportation in the persuasiveness of public narratives.

Authors:  M C Green; T C Brock
Journal:  J Pers Soc Psychol       Date:  2000-11

2.  Communicating contraceptive effectiveness: A randomized controlled trial to inform a World Health Organization family planning handbook.

Authors:  Markus J Steiner; James Trussell; Neha Mehta; Sean Condon; Sumathi Subramaniam; Deborah Bourne
Journal:  Am J Obstet Gynecol       Date:  2006-04-19       Impact factor: 8.661

3.  Expanded carrier screening in reproductive medicine-points to consider: a joint statement of the American College of Medical Genetics and Genomics, American College of Obstetricians and Gynecologists, National Society of Genetic Counselors, Perinatal Quality Foundation, and Society for Maternal-Fetal Medicine.

Authors:  Janice G Edwards; Gerald Feldman; James Goldberg; Anthony R Gregg; Mary E Norton; Nancy C Rose; Adele Schneider; Katie Stoll; Ronald Wapner; Michael S Watson
Journal:  Obstet Gynecol       Date:  2015-03       Impact factor: 7.661

4.  Attitudes and opinions of pregnant women who are not offered cystic fibrosis carrier screening.

Authors:  Liane Ioannou; John Massie; Sharon Lewis; Veronica Collins; Belinda McClaren; Martin B Delatycki
Journal:  Eur J Hum Genet       Date:  2013-11-20       Impact factor: 4.246

5.  Telling stories, saving lives: creating narrative health messages.

Authors:  Lauren B Frank; Sheila T Murphy; Joyee S Chatterjee; Meghan B Moran; Lourdes Baezconde-Garbanati
Journal:  Health Commun       Date:  2015

6.  What do patients prefer: informed consent models for genetic carrier testing.

Authors:  K E Ormond; M Iris; S Banuvar; J Minogue; G J Annas; S Elias
Journal:  J Genet Couns       Date:  2007-05-11       Impact factor: 2.537

7.  Storytelling in Mexican Homes: Connections Between Oral and Literacy Practices.

Authors:  Leslie Reese
Journal:  Biling Res J       Date:  2012-12-07

8.  Impact of patient information leaflets on doctor-patient communication in the context of acute conditions: a prospective, controlled, before-after study in two French emergency departments.

Authors:  Marisa Tissot; Julie Tyrant; Mélanie Sustersic; Aurelie Gauchet; Alison Foote; Céline Vermorel; Jean Luc Bosson
Journal:  BMJ Open       Date:  2019-02-20       Impact factor: 2.692

9.  A systematic analysis of online marketing materials used by providers of expanded carrier screening.

Authors:  Davit Chokoshvili; Pascal Borry; Danya F Vears
Journal:  Genet Med       Date:  2017-12-14       Impact factor: 8.822

10.  Choosing between Higher and Lower Resolution Microarrays: do Pregnant Women Have Sufficient Knowledge to Make Informed Choices Consistent with their Attitude?

Authors:  S L van der Steen; E M Bunnik; M G Polak; K E M Diderich; J Verhagen-Visser; L C P Govaerts; M Joosten; M F C M Knapen; A T J I Go; D Van Opstal; M I Srebniak; R J H Galjaard; A Tibben; S R Riedijk
Journal:  J Genet Couns       Date:  2017-07-04       Impact factor: 2.537

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