| Literature DB >> 33120977 |
Gema Serrano-Gemes1,2, Manuel Rich-Ruiz2,3, Rafael Serrano-Del-Rosal1.
Abstract
BACKGROUND: Relocation is a very important event in people's lives in general, but really significant in old age. However, some predictors of relocation still need to be improved. The objective of this review was to synthesize qualitative evidence to understand the reasons of the participants to decide on the place of care of the older people.Entities:
Keywords: decision-making; location of care; older people; push-pull factors; reasons
Year: 2020 PMID: 33120977 PMCID: PMC7712302 DOI: 10.3390/healthcare8040436
Source DB: PubMed Journal: Healthcare (Basel) ISSN: 2227-9032
Figure 1Flow chart (Modified from the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) Flow Diagram [14]). Source: Own elaboration based on the information obtained. More information about the identification in the review protocol [11].
Characteristics of the included studies, quality assessment and relative contributions (a).
| Study Country | Study Aim | Design, Methods/Techniques for Information Collection, Analysis, Sample | Assessment of Quality (AQ) Relative Contribution (RC) |
|---|---|---|---|
| Hartwigsen, 1987 [ | This article discusses a relocation pattern as suggested by a sample of older widows, illuminating the identified steps taken with statements gleaned from interviews that are representative of the respondents as a whole. | Pilot study. Interviews. [Analysis process explained in detail and step by step in the article] Twenty-five older widows. | AQ: Moderate (7.5) |
| RC: 25 | |||
| Groger, 1994 [ | This article allows the care recipients to present their own views of the decision process that resulted in their nursing home placement. | Exploratory, qualitative approach. Long interviews. [Analysis process explained in detail and step by step in the article] Ten elders. | AQ: Low (6.5) |
| RC: 25 | |||
| Dellasega & Mastrian, 1995 [ | To identify and describe specific stressors experienced by family members during and after making the decision to place an elder in a skilled care facility. | Qualitative methodology. Interactive interviews. Using ethnographic summary and content analysis. Seven family members. | AQ: Moderate (8.5) |
| RC: 10 | |||
| Vassallo, 1995 [ | This paper shows how a therapeutic intervention was used to help an elderly couple when one of them required nursing home respite care. | [Case study] The case: a woman [older people] and her husband [family caregiver] | AQ: Low (5.5) |
| RC: 23 | |||
| Iwasiw et al., 1996 [ | To give voice to residents, listen to their experiences of this early phase of relocation, and thus fill a gap in the literature. | A qualitative study. Open-ended interviews. The constant comparative method of qualitative analysis. Twelve residents in long-term care facilities [older people]. | AQ: Moderate (8.5) |
| RC: 9 | |||
| Dellasega & Nolan, 1997 [ | To examine the positive and negative post-placement responses of family members who were involved in the placement process, and to identify possible areas for intervention. | A cross national study. Interview questions were part of a larger questionnaire [which can be consulted in other study]. Six open-ended questions were extracted from the questionnaire. Content analysis. One-hundred-and-two family members: United States: 54; United Kingdom: 48 | AQ: Low (5.5) |
| RC: 10 | |||
| Rodgers, 1997 [ | To gain information regarding specific aspects of the nursing home placement experiences of family members. | [Qualitative study]. In-depth interviews. [Analysis process explained in detail and step by step in the article] Nine family members. | AQ: High (9.5) |
| RC: 37 | |||
| Kao & Stuifbergen, 1999 [ | The research question: ‘What are the experiences of family members related to the decision of institutionalizing an elder in Taiwan?’ | Exploratory qualitative study. Semi-structured interview. Content analysis. Nine family members. | AQ: Moderate (7.5) |
| RC: 23 | |||
| Jenkins, 2003 [ | This article presents results of an exploratory study examining the care arrangement decision process from the perspective of all decision participants. | Exploratory study. In-depth, semi-structured interviews. Thematic analysis. Eleven older women; 9 family members; 5 case managers; 1 nursing home administrator. | AQ:Moderate(7.5) |
| RC: 36 | |||
| Park et al., 2004 [ | To describe the experience of making the decision to place a family member with dementia in a long-term care facility among a group of 19 Korean family caregivers living in Korea. | [Qualitative study]. Semi-structured taped interviews. Thematic analysis. [Analysis process explained in detail in the article] Nineteen family caregivers. | AQ: Moderate (7.5) |
| RC: 11 | |||
| Caron et al., 2006 [ | To explore, from a retrospective viewpoint, the decision-making process used by family caregivers for institutionalizing a family member with dementia; and to develop a theoretical model of this decision-making process, based on the caregivers’ perspectives. | Qualitative research approach. The grounded theory method. In-depth interviews. The constant comparison of data. Fourteen family caregivers. | AQ: High (9) |
| RC: 24 | |||
| Groger & Kinney, 2006 [ | To capture the circumstances leading up to the move, events leading to the decision to move, expectations, values guiding the decision, the actors involved in the decision, and knowledge about long-term care options. | [Mixed method study]. Qualitative face-to-face interviews. Using line-by-line text analysis. Twenty elders. | AQ: Moderate (7.5) |
| RC: 34 | |||
| Lynch, 2006 [ | One family’s experience with elder care. | [Case report] [researcher’s mother] | AQ: Moderate (7.5) |
| RC: 42 | |||
| Chen et al., 2008 [ | To develop a substantive theory of the decision-making process associated with relocation to assisted living facilities from the perceptions of elderly individuals who have moved to such setting. | Qualitative grounded theory approach. In-depth semi-structured interviews. Data were analyzed and interpreted utilizing grounded theory. Twenty-eight elders. | AQ: High (9) |
| RC: 19 | |||
| Kemp, 2008 [ | To advance existing knowledge of later-life couples as well as life in these care settings and, in turn, inform policy and practice. | A larger, exploratory study. In-depth, semi-structured, qualitative interviews. [Analysis process explained in detail and step by step in the article] The study involved two separate, simultaneous data collection processes. Twenty married couples [older people]; 10 adult children. | AQ: Moderate (8.5) |
| RC: 28 | |||
| Saunders & Heliker, 2008 [ | To explore the expectations and experiences of 5 newly admitted residents of an ALF [Assisted living facilities] over a 6- month period. | Qualitative exploratory design. Open-ended interview. Content analysis. [Analysis process explained in detail in the article] Five residents [older people] | AQ: High (9.5) |
| RC: 7 | |||
| Bekhet et al., 2009 [ | To understand the reasons of why elders move to retirement communities and what living in retirement communities is like from the perspective of relocated elders. | Qualitative study. Interviews. Qualitative data for this analysis were collected during a quantitative study. Constant comparative method. [Analysis process explained in detail in the article] One-hundred-and-four elders. | AQ: Low (6.5) |
| RC: 25 | |||
| Fjelltun et al., 2009 [ | To explore carers’ and nurses’ appraisals concerning if and when NH placement for frail older people awaiting placement was needed and to illuminate ethical issues involved in deciding upon NH placement. [NH: nursing home] | Descriptive and comparative cross-sectional study using qualitative methods. Interviews. Qualitative content analysis. [Analysis process explained in detail and step by step in the article] Eleven carers with different kinship to the older people; 11 nurses | AQ: Moderate (8.5) |
| RC: 35 | |||
| Gottlieb et al., 2009 [ | To illustrate the manner in which experiences of parents and peers are salient to older adults who may be considering health-related residential adjustments for themselves. | Exploratory study. In-person, semi-structured interviews. Case summaries were prepared from audio-recordings of the interviews. Thirty-four older adults. | AQ: Low (5.5) |
| RC: 40 | |||
| Jorgensen et al., 2009 [ | To investigate why older people entered residential care, and who was instrumental in making that decision. | A mixed method approach. Longitudinal study based on both qualitative and quantitative data. Interviews: structured and semi-structured questions. [The tools differ by group, using from interviews included with structured and/or semi-structured questions, to a standardized tool]. General Inductive approach derived from the Grounded theory. [Analysis process explained in detail in the article] | AQ: Moderate (8.5) |
| RC: 37 | |||
| Tamiya et al., 2009 [ | To explore Japanese caregivers’ decisions to place their older family members in LTC facilities. In particular, we were interested in investigating the evidence of caregivers’ conflict during the decision-making process. [LTC: long-term care] | Case study. Content analysis was conducted on recorded family interviews. Thirty patient records: 3 cases were selected for case studies. | AQ: Low (6.5) |
| RC: 23 | |||
| Chang & Schneider, 2010 [ | To understand the Chinese family caregivers’ decision-making process of nursing home placement. | Grounded theory approach. In-depth individual interviews. [Analysis process explained in detail in the article] Thirty family caregivers. | AQ: High (10) |
| RC: 12 | |||
| Johnson et al., 2010 [ | To identify the extent of older adults’ participation in the nursing home relocation decision and to identify the extent that SOC, functional ability, and physical functioning were related to decision-making participation. [SOC: sense of coherence] | A mixed-methods, descriptive design. Qualitative and semi-structured interviews. [Analysis process explained in detail and step by step in the article] Sixteen older adults. | AQ: Moderate (8.5) |
| RC: 4 | |||
| Peace et al., 2011 [ | To reflect the diversity of people and places in the three areas. The research sought the views of older people living in each locality. | [Qualitative study] Ethnographic methods. Nine focus groups. Fifty-four interviews. Thematic content analysis on detailed interview narratives guided by the grounded theory approach. Fifty-four respondents [older people]. | AQ: Moderate (8) |
| RC: 42 | |||
| Tyvimaa & Kemp, 2011 [ | To identify the main attributes and features that influence the decision-making process for Finnish seniors. | Case study. In-depth interviews and open-ended survey question data. Content analysis. The three cases: Loppukiri, Kotosalla, and Keinusaari. On-hundred-and-twenty residents [older people]: 22 Keinusaari; 34 Loppukiri; 64 Kotosalla | AQ: Moderate (8) |
| RC: 29 | |||
| Cheng et al., 2012 [ | To discuss how a sample of older people and their family members made the decision to move to a specific RCF and what factors influenced the decision-making process in the socio-economic and cultural context of Beijing. [RCF: residential care facility] | [Qualitative study]. In-depth semi-structured interviews. The analysis of the data was based on the constant comparative method. [Analysis process explained in detail and step by step in the article] Twenty-seven older residents; 16 family members; 5 residential care facility managers | AQ: Moderate (8.5) |
| RC: 31 | |||
| Couture et al.,2012 [ | To describe the role of the health care professionals within decision-making process regarding the placement of a cognitively impaired relative. | [Qualitative study]. A grounded theory approach. Semistructured interviews. Constant comparative method. [Analysis process explained in detail and step by step in the article] Eighteen family caregivers. | AQ: High (9) |
| RC: 24 | |||
| Ducharme et al., 2012 [ | To build an explanatory model of the decision-making process by carrying out a prospective qualitative follow-up of family caregivers having thought about placing an elderly relative. | Qualitative grounded theory approach. Semi-structured interviews. Using ongoing comparative analysis. Eighteen family caregivers. | AQ: High (9) |
| RC: 53 | |||
| Söderberg et al., 2012 [ | To reveal how family members act, react and reason when their elderly relative considers relocation to a residential home. | [Qualitative study]. Open, semi-structured interviews. A thematic analysis. [Analysis process explained in detail and step by step in the article] Seventeen family members. | AQ: Moderate (7.5) |
| RC: 8 | |||
| Ewen & Chahal, 2013 [ | To elucidate the push-pull factors associated with moving into congregate senior housing. To investigate the perceived and experienced stresses associated with moving into a congregate living environment. | Qualitative and quantitative approaches. Phenomenological approach. Two a mixed-methods in-depth, semi-structured research interviews. [Analysis process explained in detail and step by step in the article] Twenty-six older women. | AQ: High (9) |
| RC: 24 | |||
| Löfqvist et al., 2013 [ | To explore how very old communityliving people reason about aging in place and relocation in very old age. | Quantitative and qualitative data. Qualitative interviews. Secondary analysis of interview data. Conventional qualitative content analyses. Eighty older people, 40 from each country. | AQ: Moderate (8.5) |
| RC: 22 | |||
| Söderberg et al., 2013 [ | To reveal how the culture of independence influences the decision-making process preceding the relocation to a residential home; and since there is a predominant ideology of ageing in place, how a continued life in ordinary housing is justified versus how relocation to a residential home is excused. | [Qualitative study]. Open semi-structured interviews. Hermeneutics. [Analysis process explained in detail in the article] Twenty-one older people. | AQ: High (10) |
| RC: 30 | |||
| Walker & McNamara, 2013 [ | To identify key factors over different stages of relocation; to determine the range of strategies employed by older adults in relocating and maintaining a sense of home; and to explore the scope for preventative occupational therapy in promoting health and well-being throughout relocation for relatively healthy older adults. | [Qualitative study]. Semi-structured in-depth interviews. Grounded theory approach. [Analysis process explained in detail and step by step in the article] Sixteen older adults. | AQ: High (9) |
| RC: 34 | |||
| Wilson et al., 2013 [ | To gain an understanding of the lived experience of older patients as they wait in hospital for a nursing home bed, describe waiting placement patients and clarify their share of hospital utilization in Alberta, a western-Canadian province. | Two-part mixed method study. Interviews. Constant-comparative data analysis method. Nine older persons | AQ: High (9) |
| RC: 6 | |||
| Heppenstall et al., 2014 [ | To describe in-depth factors related to subsequent institutionalization and, in particular, to highlight the perceived role of social context in preventing or precipitating residential care admission. | Two qualitative methods. Telephone interviews. [Key topics from these telephone interviews were then examined in more depth with a purposively selected group of participants: the older people and the carer they chose]. Face-to-face interviews. General inductive approach. Thematic analysis. [Analysis process explained in detail in the article] One-hundred-and-forty-four older people. [Later, it was sought a purposively selected group of 15 participants. Fifteen older people and the caregiver they chose] | AQ: Moderate (7.5) |
| RC: 34 | |||
| Johnson & Bibbo, 2014 [ | The present study used interview data immediately following the transition into a nursing home and again six to eight weeks later in order to better understand the experiences of older adults. | A larger longitudinal study. Semi-structured interviews. The analysis employed interpretive phenomenology. Thematic analysis. Eight older adults. | AQ: High (9) |
| RC: 7 | |||
| Koenig et al., 2014 [ | To explore the older adults’ and family members’ perspectives on the decision-making process that lead up to the admission of the older adult into an AL facility. [AL: assisted living] | Qualitative study. A naturalistic paradigm. Interviews. Constant comparative method. Twenty-two older adults; 22 family members | AQ: Moderate (8) |
| RC: 36 | |||
| Légaré et al., 2014 [ | To determine the feasibility of implementing IP-SDM in the clinical practice of IP home care teams. To explore the perceptions of family caregivers about the decision-making process they had experienced regarding relocating their relative and about the applicability of IP-SDM in this context. [IP-SDM: interprofessional approach to shared decision making] | Exploratory case study. Individual interviews. Hybrid process of inductive and deductive thematic analysis. Six family caregivers. | AQ: High (9.5) |
| RC: 7 | |||
| Mamier & Winslow, 2014 [ | To describe the contrasting perspectives between a family caregiver and the caregiver’s professional provider regarding the placement decision-making experience of the caregiver. | Case study. Interviews. Preliminary steps in a grounded theory. The case: One family caregiver (woman/spouse) and one professional (leader of the support group/ social worker) | AQ: High (9) |
| RC: 14 | |||
| Koplow et al., 2015 [ | To understand the ongoing caregiving experiences of primary family caregivers during the first few months following nursing home placement of a family member. | A qualitative descriptive, two-time-point design. Interviews. [Analysis process explained in detail in the article] Ten family caregivers. | AQ: Moderate (8.5) |
| RC: 11 | |||
| Vasara, 2015 [ | To discuss the experiences of those who for various reasons have not chosen to or found it possible to age in place. | [Qualitative study]. Narrative interviews. [The interviews are part of a larger body of data gathered. Information explained in detail in the article] Narrative analysis. Preliminary thematic analysis. Fourteen persons [older people]. | AQ: Low (6.5) |
| RC: 22 | |||
| Ayalon, 2016 [ | This study addresses the issue of autonomy following the transition to a CCRC, as this transition likely represents a defining point in intergenerational relations as well as in older adults’ sense of autonomy. [CCRC: continuing care retirement community] | [Qualitative study]. Interviews. [Analysis process explained in detail and step by step in the article] | AQ: High (9.5) |
| RC: 19 | |||
| Gabrielsson-Jarhult & Nilsen, 2016 [ | To explore older people’s concerns about their needs as expressed in discharge planning meetings at a hospital. | An explorative design based on observations was used in this qualitative study. Observations. Qualitative content analysis using both a manifest and a latent (interpretive) approach. Twenty-seven older people. | AQ: High (9.5) |
| RC: 30 | |||
| Nord, 2016 [ | To explore free choice in relocation to residential care. | A qualitative study. Semi-structured, open-ended interviews. Three free will perspectives were used as the guiding theoretical framework in the analysis. Thirteen older people. | AQ: Low (6.5) |
| RC: 37 | |||
| Laditka, 2017 [ | This study looks at the role of readiness in an older parent’s residential moves. | [Case report] [Researcher’s father] | AQ: Moderate (7.5) |
| RC: 40 | |||
| McKenna & Staniforth, 2017 [ | To gain an in depth understanding of what older people experienced during the move to residential care, the impact this had on each individual and how they coped. | Exploratory study. Semi-structured interviews. Data analyzed thematically. Nine older people | AQ: Moderate (8.5) |
| RC: 9 |
Source: Own elaboration based on the information obtained from the 46 studies included in this systematic review. (a) The columns regarding “Author, Year of publication, Country, Study aim, Design, Methods/Techniques for information collection, Analysis, Sample” of this table have been completed respecting the information provided by the authors in the studies. In some cases, for further explanation, the authors of this review have added information that did not appear explicitly in the study, shown in the table in square brackets [].
Figure 2Main factors involved according to the elders and family members. Source: Own elaboration based on the information obtained from the studies included in this systematic review (more detailed information on these factors can be found in the Supplementary Materials: Table S2: Main factors: elders and family members).