Rosalind Garland1, Saima Ahmed2, Carmen G Loiselle3. 1. Medical Surgical Intensive Care Unit, Jewish General Hospital, Montreal, QC, rosalind.garland@mail.mcgill.ca. 2. Division of Experimental Medicine, McGill University, Montreal, QC, Saima.ahmed2@mail.mcgill.ca. 3. McGill University, Department of Oncology and Ingram School of Nursing, Montreal, QC; Segal Cancer Centre, Jewish General Hospital, Montreal, QC. Address: Ingram School of Nursing and Department of Oncology, Faculty of Medicine, McGill University, 680 Sherbrooke Ouest, Office 1812, Montréal, QC H3A 2M7, Email: carmen.g.loiselle@mcgill.ca, Tel: (514) 398-4163.
Abstract
BACKGROUND: Health-related empowerment is a key concept in person-centred care. However, little is known of its core elements in young adults diagnosed with advanced cancer. OBJECTIVE: To explore empowerment in the context of young adults' healthcare experiences who are now in advanced stages of cancer. SETTING & PARTICIPANTS: Twelve young adults (aged 21 to 39 years) were recruited from a large cancer centre in Montreal, Quebec. METHODS: In-depth interviews lasting between 36 and 90 minutes were conducted individually, audio-recorded, transcribed verbatim, and analyzed using thematic analysis. RESULTS: Throughout the cancer trajectory, participants reported a sustained desire to be actively involved in their treatment and care. Four themes emerged from the data representing processes of waiting, managing, acting, and revisiting. Subsumed under these were notions of body ownership, facing obstacles to care, optimizing health, and (re)considering their legacy. CONCLUSIONS: Overall, participants wanted to remain in control of their situation despite the multiple challenges related to advanced cancer. If corroborated further, these findings should inform supportive cancer care approaches that are truly tailored to the needs of young adults.
BACKGROUND: Health-related empowerment is a key concept in person-centred care. However, little is known of its core elements in young adults diagnosed with advanced cancer. OBJECTIVE: To explore empowerment in the context of young adults' healthcare experiences who are now in advanced stages of cancer. SETTING & PARTICIPANTS: Twelve young adults (aged 21 to 39 years) were recruited from a large cancer centre in Montreal, Quebec. METHODS: In-depth interviews lasting between 36 and 90 minutes were conducted individually, audio-recorded, transcribed verbatim, and analyzed using thematic analysis. RESULTS: Throughout the cancer trajectory, participants reported a sustained desire to be actively involved in their treatment and care. Four themes emerged from the data representing processes of waiting, managing, acting, and revisiting. Subsumed under these were notions of body ownership, facing obstacles to care, optimizing health, and (re)considering their legacy. CONCLUSIONS: Overall, participants wanted to remain in control of their situation despite the multiple challenges related to advanced cancer. If corroborated further, these findings should inform supportive cancer care approaches that are truly tailored to the needs of young adults.
Authors: Sriram Yennurajalingam; Luis Fernando Rodrigues; Omar M Shamieh; Colombe Tricou; Marilène Filbet; Kyaw Naing; Akhileshwaran Ramaswamy; Pedro Emilio Perez-Cruz; Mary Jocylyn S Bautista; Sofia Bunge; Mary Ann Muckaden; Sarah Fakrooden; Vikash Sewram; Antonio Noguera Tejedor; Shobha S Rao; Janet L Williams; Diane D Liu; Minjeong Park; Zhanni Lu; Hilda Cantu; David Hui; Suresh K Reddy; Eduardo Bruera Journal: Palliat Med Date: 2017-12-13 Impact factor: 4.762
Authors: Echo L Warner; Brynn Fowler; Samantha T Pannier; Sara K Salmon; Douglas Fair; Holly Spraker-Perlman; Jeffrey Yancey; R Lor Randall; Anne C Kirchhoff Journal: J Adolesc Young Adult Oncol Date: 2018-05-03 Impact factor: 2.223
Authors: Damon R Reed; Benjamin Oshrine; Christie Pratt; Olivia Fridgen; Cathy Elstner; Leila Wilson; Hatem Soliman; Marie C Lee; Howard L McLeod; Bijal Shah; Kristine A Donovan; Smitha Pabbathi; Mary Turney; Odion Binitie; Christine Healy; Michael Nieder; Peter H Shaw; Andrew Galligan; G Douglas Letson; Marilyn Stern; Gwendolyn P Quinn; Simon Davies Journal: J Adolesc Young Adult Oncol Date: 2017-08-04 Impact factor: 2.223