| Literature DB >> 33106749 |
Robert Ranisch1, Niels Nijsingh2, Angela Ballantyne3, Anne van Bergen2, Alena Buyx4, Orsolya Friedrich5, Tereza Hendl2, Georg Marckmann2, Christian Munthe6, Verina Wild2.
Abstract
There is growing interest in contact tracing apps (CT apps) for pandemic management. It is crucial to consider ethical requirements before, while, and after implementing such apps. In this paper, we illustrate the complexity and multiplicity of the ethical considerations by presenting an ethical framework for a responsible design and implementation of CT apps. Using this framework as a starting point, we briefly highlight the interconnection of social and political contexts, available measures of pandemic management, and a multi-layer assessment of CT apps. We will discuss some trade-offs that arise from this perspective. We then suggest that public trust is of major importance for population uptake of contact tracing apps. Hasty, ill-prepared or badly communicated implementations of CT apps will likely undermine public trust, and as such, risk impeding general effectiveness.Entities:
Keywords: Contact tracing apps; Covid-19; Health apps; Public health; Public trust; mHealth
Year: 2020 PMID: 33106749 PMCID: PMC7577205 DOI: 10.1007/s10676-020-09566-8
Source DB: PubMed Journal: Ethics Inf Technol ISSN: 1388-1957
Ethical framework for CT apps: substantive and procedural values
| Substantive values | Guiding questions |
|---|---|
| Public health benefit | Is the pandemic situation such that contact tracing activity is motivated from a public health standpoint? Is the general use of the CT app likely to enhance the effectiveness of contact tracing measures? Is the technological make-up of the app such that it can actually produce public health benefit? Is the pool of potential users who are willing to use a CT app large enough for epidemiological effectiveness? |
| Harm minimisation | Are CT apps the least harmful way of obtaining the desired benefits? Are CT apps easy to use and do they minimise confusion or stress by design? Has the risk of self- and social stigma effects, implicated by an elevated focus on one’s or others’ health status been considered and mitigated? Are safeguards in place to mitigate the vulnerability of and harm to marginalized groups from CT apps and related public health and security measures? Are potential, harmful social effects related to the app (widespread anxiety, ineffective quarantines etc.) adequately considered? |
| Privacy | Are measures in place for data protection and against data loss or misuse?Are data security authorities involved? Is data parsimony guaranteed and access to non-essential personal data minimised? Are the most privacy-preserving solutions (e.g. no real-time data, anonymization) prioritised? Is collection of the tracing-data temporary (e.g. will it be deleted after a certain, specified amount of time)? Is data sharing for other purposes excluded? Are appropriate cyber-resilience measures in place? |
| Justice | Has accessibility and availability been maximised Are benefits and burdens of CT apps equally distributed among the population? Will discrimination of vulnerable and structurally disadvantaged population groups be prevente? Are there measures to safely include marginalized groups or ‘digital immigrants’, without exacerbating their vulnerability? Will resulting scientific knowledge and insights be freely shared for the public good? Are different levels of digital literacy considered in app design? |
| Liberty/autonomy | Are users informed about possible consequences of CT app use? Are CT apps used voluntarily? Is there proper user consent for data use? Are users able to withdraw consent? Are there measures to avoid de-facto mandatory use, e.g. by restricting access to public or work space with CT apps? Are CT apps the least liberty-compromising measures compared to alternative strategies to pandemic management? Are there alternatives for those who choose not to participate in CT apps? |
| Solidarity | Are there measures to avoid negative effects on solidarity, e.g. by not imposing overly disproportionate burdens on specific groups? Has consideration been given to whether negative attitudes towards people who do not use the app may feed into practices of victim blaming? |
| Stewardship | Are effects of CT apps on existing infrastructure considered (e.g. encourage or strengthen power asymmetries, or market monopolies)? Are safeguards against function creep, i.e. the use beyond the purpose of the technology, in place? Are there strategies against malicious, fake CT apps? Are measures and policies reversible? Are CT apps embedded in robust regulatory frameworks? Are safeguards and oversight mechanisms in place? Are strategies in place to limit duration and end measures (sunset provisions)? |
Fig. 1Layers of assessment: To assess CT apps, the interplay between technological aspects and socio-political contexts needs to be considered