Bea Maes1, Sara Nijs1, Sien Vandesande1, Ines Van Keer1, Michael Arthur-Kelly2, Juliane Dind3, Juliet Goldbart4, Geneviève Petitpierre3, Annette Van der Putten5. 1. Faculty of Psychology and Educational Sciences, Research Unit Parenting and Special Education, Catholic University of Leuven, Leuven, Belgium. 2. School of education, University of Newcastle, Callaghan, NSW, Australia. 3. Département de Pédagogie spécialisée, Université de Fribourg, Fribourg, Switzerland. 4. Faculty of Health, Psychology & Social Care, Manchester Metropolitan University, Manchester, UK. 5. Faculty of Behavioural and Social Sciences, University of Groningen, Groningen, The Netherlands.
Abstract
BACKGROUND: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. METHODS: The challenges are centred on six topics. These reflect the main components of a study's design: (a) participant demarcation, (b) participant recruitment, (c) data collection and instruments, (d) data analysis, (e) ethics/including the "voice" of persons with PIMD and (f) theoretical models. RESULTS: Next, to describing the specific challenges, possible solutions and pathways to address them are discussed. These are illustrated by recent studies by the authors and other researchers in the field. CONCLUSIONS: The current contribution wants to stimulate further discussion and exchange of ideas, and the development of creative research techniques.
BACKGROUND: Within the context of the Special Interest Research Group (SIRG) on Persons with Profound Intellectual and Multiple Disabilities (PIMD), researchers often discuss the methodological problems and challenges they are confronted with. The aim of the current article was to give an overview of these challenges. METHODS: The challenges are centred on six topics. These reflect the main components of a study's design: (a) participant demarcation, (b) participant recruitment, (c) data collection and instruments, (d) data analysis, (e) ethics/including the "voice" of persons with PIMD and (f) theoretical models. RESULTS: Next, to describing the specific challenges, possible solutions and pathways to address them are discussed. These are illustrated by recent studies by the authors and other researchers in the field. CONCLUSIONS: The current contribution wants to stimulate further discussion and exchange of ideas, and the development of creative research techniques.
Authors: Yu-Hsin Hsieh; Maria Borgestig; Deepika Gopalarao; Joy McGowan; Mats Granlund; Ai-Wen Hwang; Helena Hemmingsson Journal: Int J Environ Res Public Health Date: 2021-05-12 Impact factor: 3.390