Literature DB >> 33062296

Protecting the privacy of technology users who have cognitive disabilities: Identifying areas for improvement and targets for change.

Virginie Cobigo1,2, Konrad Czechowski1, Hajer Chalghoumi1, Amelie Gauthier-Beaupre3, Hala Assal1, Jeffery Jutai3, Karen Kobayashi4, Amanda Grenier5,6, Fatoumata Bah1.   

Abstract

INTRODUCTION: Information Technologies (IT) may serve assistive roles that facilitate the interaction of people living with cognitive disabilities (CD) within their environments. However, there are some notable concerns related to privacy threats associated with the use of IT. The purpose of this study was to examine how assistive technology developers may best adapt over time to develop their IT to be resilient against threats to privacy. We therefore focused on the following areas: (1) developers' knowledge and practices related to privacy protection; (2) challenges when applying recommended practices, and; (3) preferred channels to acquire knowledge.
METHOD: We conducted semi-structured interviews with ten technology developers who are members of the AGE-WELL network undertaking research and development of assistive technologies to be used by people who have cognitive disabilities. We used an inductive-deductive method for the analysis of qualitative data to examine participant responses and generate themes related to the study goals.
RESULTS: Principal themes that emerged from the data include practices specific to populations with CD, challenges to obtaining consent to use of information, and preferred channels to acquire knowledge.
CONCLUSION: We identify areas of focus for developing a knowledge mobilization strategy to improve relevant policies and practices.
© The Author(s) 2020.

Entities:  

Keywords:  Privacy; cognitive disabilities; implementation of change; knowledge mobilization; technology development

Year:  2020        PMID: 33062296      PMCID: PMC7536468          DOI: 10.1177/2055668320950195

Source DB:  PubMed          Journal:  J Rehabil Assist Technol Eng        ISSN: 2055-6683


  15 in total

1.  The 'D' word: Reflections on the relationship between stigma, discrimination and dementia.

Authors:  Alison Milne
Journal:  J Ment Health       Date:  2010-06

Review 2.  Assistive technology effects on the employment outcomes for people with cognitive disabilities: A systematic review.

Authors:  Angela L Sauer; Andra Parks; Patricia C Heyn
Journal:  Disabil Rehabil Assist Technol       Date:  2010

3.  Assistive technology, telecare and people with intellectual disabilities: ethical considerations.

Authors:  J Perry; S Beyer; S Holm
Journal:  J Med Ethics       Date:  2009-02       Impact factor: 2.903

4.  Getting evidence into policy and practice: perspective of a health research funder.

Authors:  Ian D Graham; Jacqueline M Tetroe
Journal:  J Can Acad Child Adolesc Psychiatry       Date:  2009-02

5.  Ethical Issues Related to IT Adoption by Elderly Persons with Cognitive Impairments.

Authors:  Hajer Chalghoumi; Virginie Cobigo; Jeffrey Jutai
Journal:  Stud Health Technol Inform       Date:  2017

6.  Emerging new practices in technology to support independent community access for people with intellectual and cognitive disabilities.

Authors:  Steven E Stock; Daniel K Davies; Michael L Wehmeyer; Yves Lachapelle
Journal:  NeuroRehabilitation       Date:  2011       Impact factor: 2.138

7.  Prevalence of cognitive impairment without dementia in the United States.

Authors:  Brenda L Plassman; Kenneth M Langa; Gwenith G Fisher; Steven G Heeringa; David R Weir; Mary Beth Ofstedal; James R Burke; Michael D Hurd; Guy G Potter; Willard L Rodgers; David C Steffens; John J McArdle; Robert J Willis; Robert B Wallace
Journal:  Ann Intern Med       Date:  2008-03-18       Impact factor: 25.391

8.  Why Marginalization, Not Vulnerability, Can Best Identify People in Need of Special Medical and Nutrition Care.

Authors:  Alexis K Walker; Elizabeth L Fox
Journal:  AMA J Ethics       Date:  2018-10-01

9.  People with intellectual disabilities as bloggers: what's social capital got to do with it anyway?

Authors:  Alex McClimens; Frances Gordon
Journal:  J Intellect Disabil       Date:  2009-03

10.  Making sense of implementation theories, models and frameworks.

Authors:  Per Nilsen
Journal:  Implement Sci       Date:  2015-04-21       Impact factor: 7.327

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