Literature DB >> 33026944

A Call to Action to Address Disparities in Palliative Care Access: A Conceptual Framework for Individualizing Care Needs.

Katie E Nelson1, Rebecca Wright1, Marlena Fisher1, Binu Koirala1, Benjamin Roberts2, Danetta H Sloan3, David S Wu4, Patricia M Davidson1.   

Abstract

Palliative care is a values-driven approach for providing holistic care for individuals and their families enduring serious life-limiting illness. Despite its proven benefits, access and acceptance is not uniform across society. The genesis of palliative care was developed through a traditional Western lens, which dictated models of interaction and communication. As the importance of palliative care is increasingly recognized, barriers to accessing services and perceptions of relevance and appropriateness are being given greater consideration. The COVID-19 pandemic and recent social justice movements in the United States, and around the world, have led to an important moment in time for the palliative care community to step back and consider opportunities for expansion and growth. This article reviews traditional models of palliative care delivery and outlines a modified conceptual framework to support researchers, clinicians, and staff in evaluating priorities for ensuring individualized patient needs are addressed from a position of equity, to create an actionable path forward.

Entities:  

Keywords:  COVID-19; conceptual framework; health care disparities; palliative care; race factors

Mesh:

Year:  2020        PMID: 33026944      PMCID: PMC8255316          DOI: 10.1089/jpm.2020.0435

Source DB:  PubMed          Journal:  J Palliat Med        ISSN: 1557-7740            Impact factor:   2.947


  15 in total

1.  Racial disparities in the outcomes of communication on medical care received near death.

Authors:  Jennifer W Mack; M Elizabeth Paulk; Kasisomayajula Viswanath; Holly G Prigerson
Journal:  Arch Intern Med       Date:  2010-09-27

2.  Racial and ethnic disparities in palliative care.

Authors:  Kimberly S Johnson
Journal:  J Palliat Med       Date:  2013-09-27       Impact factor: 2.947

3.  Statewide Differences in Personality Associated with Geographic Disparities in Access to Palliative Care: Findings on Openness.

Authors:  Michael Hoerger; Laura M Perry; Brittany D Korotkin; Leah E Walsh; Adina S Kazan; James L Rogers; Wasef Atiya; Sonia Malhotra; James I Gerhart
Journal:  J Palliat Med       Date:  2019-01-07       Impact factor: 2.947

4.  Methods for overcoming barriers in palliative care for ethnic/racial minorities: a systematic review.

Authors:  Donna P Mayeda; Katherine T Ward
Journal:  Palliat Support Care       Date:  2019-12

5.  Race as a Predictor of Palliative Care Referral Time, Hospice Utilization, and Hospital Length of Stay: A Retrospective Noncomparative Analysis.

Authors:  Brooke Worster; Declan Kennedy Bell; Vibin Roy; Amy Cunningham; Marianna LaNoue; Susan Parks
Journal:  Am J Hosp Palliat Care       Date:  2017-01-05       Impact factor: 2.500

6.  The Influence of Race/Ethnicity and Education on Family Ratings of the Quality of Dying in the ICU.

Authors:  Janet J Lee; Ann C Long; J Randall Curtis; Ruth A Engelberg
Journal:  J Pain Symptom Manage       Date:  2015-09-16       Impact factor: 3.612

7.  Cultural diversity in heart failure management: findings from the DISCOVER study (Part 2).

Authors:  Patricia M Davidson; Peter Macdonald; Debra K Moser; Esther Ang; Glenn Paull; Sam Choucair; John Daly; Leila Gholizadeh; Kathleen Dracup
Journal:  Contemp Nurse       Date:  2007 May-Jun       Impact factor: 1.787

8.  Recommendations to Leverage the Palliative Nursing Role During COVID-19 and Future Public Health Crises.

Authors:  William E Rosa; Tamryn F Gray; Kimberly Chow; Patricia M Davidson; J Nicholas Dionne-Odom; Viola Karanja; Judy Khanyola; Julius D N Kpoeh; Joseph Lusaka; Samuel T Matula; Polly Mazanec; Patricia J Moreland; Shila Pandey; Amisha Parekh de Campos; Salimah H Meghani
Journal:  J Hosp Palliat Nurs       Date:  2020-08       Impact factor: 1.918

Review 9.  A Comprehensive Approach to the Patient at End of Life: Assessment of Multidimensional Suffering.

Authors:  Amy B Wachholtz; Christina E Fitch; Suzana Makowski; Jennifer Tjia
Journal:  South Med J       Date:  2016-04       Impact factor: 0.954

Review 10.  Access to palliative care: discrepancy among low-income and high-income countries.

Authors:  Arjun Poudel; Bhuvan Kc; Shakti Shrestha; Lisa Nissen
Journal:  J Glob Health       Date:  2019-12       Impact factor: 4.413

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  2 in total

Review 1.  Sociodemographic Disparities in Access to Hospice and Palliative Care: An Integrative Review.

Authors:  Katie E Nelson; Rebecca Wright; Anna Peeler; Teresa Brockie; Patricia M Davidson
Journal:  Am J Hosp Palliat Care       Date:  2021-01-11       Impact factor: 2.500

Review 2.  Advance Care Planning, Palliative Care, and End-of-life Care Interventions for Racial and Ethnic Underrepresented Groups: A Systematic Review.

Authors:  Tessa Jones; Elizabeth A Luth; Shih-Yin Lin; Abraham A Brody
Journal:  J Pain Symptom Manage       Date:  2021-05-11       Impact factor: 5.576

  2 in total

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