Victoria D Kolbuck1, Afiya Sajwani1, Moira A Kyweluk2, Courtney Finlayson3,4, Elisa J Gordon5,6, Diane Chen7,8,9,10. 1. Potocsnak Family Division of Adolescent and Young Adult Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, 225 East Chicago Avenue, Box 161B, Chicago, IL, 60611-2605, USA. 2. Department of Medical Ethics and Health Policy, Perelman School of Medicine, University of Pennsylvania, Philadelphia, PA, USA. 3. Division of Endocrinology, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA. 4. Center for Health Services and Outcomes Research and Center for Bioethics and Medical Humanities, Institute for Public Health and Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA. 5. Department of Pediatrics, Northwestern University Feinberg School of Medicine, Chicago, IL, USA. 6. Department of Surgery, Northwestern University Feinberg School of Medicine, Chicago, IL, USA. 7. Potocsnak Family Division of Adolescent and Young Adult Medicine, Ann & Robert H. Lurie Children's Hospital of Chicago, 225 East Chicago Avenue, Box 161B, Chicago, IL, 60611-2605, USA. dichen@luriechildrens.org. 8. Center for Health Services and Outcomes Research and Center for Bioethics and Medical Humanities, Institute for Public Health and Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL, USA. dichen@luriechildrens.org. 9. Pritzker Department of Psychiatry and Behavioral Health, Ann & Robert H. Lurie Children's Hospital of Chicago, Chicago, IL, USA. dichen@luriechildrens.org. 10. Department of Psychiatry & Behavioral Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA. dichen@luriechildrens.org.
Abstract
PURPOSE: No educational and decision support tools exist to aid transgender and non-binary (TNB) adolescents and young adults (AYA) in making decisions about fertility preservation in the context of initiating gender-affirming medical care that can impair fertility. This study identified critical content areas and learning objectives to include in a decision aid about fertility preservation targeted for TNB AYA. METHODS: Delphi methodology was leveraged to engage 80 multidisciplinary experts in reproductive medicine and pediatric transgender health care in a two round consensus building procedure. Proposed content areas rated as "probably keep" or "definitely keep" by 75% of experts were retained. Proposed learning objectives reaching 75% agreement on ratings of importance and priority were also identified. RESULTS: The Delphi procedure identified five priority content areas (Basic Reproduction; Gender-Affirming Medical Interventions: Impacts on Fertility; Established Fertility Preservation Options; Benefits and Risks of Established Fertility Preservation Procedures; Alternative Pathways to Parenting) and 25 learning objectives to prioritize in a fertility-related decision aid for TNB AYA. CONCLUSION: A multidisciplinary panel of experts achieved agreement around content areas and learning objectives to incorporate into a decision aid about fertility preservation for TNB AYA.
PURPOSE: No educational and decision support tools exist to aid transgender and non-binary (TNB) adolescents and young adults (AYA) in making decisions about fertility preservation in the context of initiating gender-affirming medical care that can impair fertility. This study identified critical content areas and learning objectives to include in a decision aid about fertility preservation targeted for TNB AYA. METHODS: Delphi methodology was leveraged to engage 80 multidisciplinary experts in reproductive medicine and pediatric transgender health care in a two round consensus building procedure. Proposed content areas rated as "probably keep" or "definitely keep" by 75% of experts were retained. Proposed learning objectives reaching 75% agreement on ratings of importance and priority were also identified. RESULTS: The Delphi procedure identified five priority content areas (Basic Reproduction; Gender-Affirming Medical Interventions: Impacts on Fertility; Established Fertility Preservation Options; Benefits and Risks of Established Fertility Preservation Procedures; Alternative Pathways to Parenting) and 25 learning objectives to prioritize in a fertility-related decision aid for TNB AYA. CONCLUSION: A multidisciplinary panel of experts achieved agreement around content areas and learning objectives to incorporate into a decision aid about fertility preservation for TNB AYA.
Authors: Wylie C Hembree; Peggy T Cohen-Kettenis; Louis Gooren; Sabine E Hannema; Walter J Meyer; M Hassan Murad; Stephen M Rosenthal; Joshua D Safer; Vin Tangpricha; Guy G T'Sjoen Journal: J Clin Endocrinol Metab Date: 2017-11-01 Impact factor: 5.958
Authors: John F Strang; Jason Jarin; David Call; Brett Clark; Gregory L Wallace; Laura G Anthony; Lauren Kenworthy; Veronica Gomez-Lobo Journal: J Adolesc Health Date: 2017-10-20 Impact factor: 5.012
Authors: Terri L Woodard; Aubri S Hoffman; Laura A Covarrubias; Deborah Holman; Leslie Schover; Andrea Bradford; Derek B Hoffman; Aakrati Mathur; Jerah Thomas; Robert J Volk Journal: J Cancer Surviv Date: 2017-10-15 Impact factor: 4.442
Authors: Diane Chen; Margaret Matson; Kathryn Macapagal; Emilie K Johnson; Ilina Rosoklija; Courtney Finlayson; Celia B Fisher; Brian Mustanski Journal: J Adolesc Health Date: 2018-03-02 Impact factor: 5.012
Authors: Diane Chen; Moira A Kyweluk; Afiya Sajwani; Elisa J Gordon; Emilie K Johnson; Courtney A Finlayson; Teresa K Woodruff Journal: LGBT Health Date: 2019-04 Impact factor: 4.151
Authors: Andres Matoso; Binny Khandakar; Songyang Yuan; Tony Wu; Li J Wang; Kara A Lombardo; Shamlal Mangray; Abul Ala Syed Rifat Mannan; Evgeny Yakirevich Journal: Hum Pathol Date: 2018-03-17 Impact factor: 3.466
Authors: Selena U Park; Devika Sachdev; Shelley Dolitsky; Matthew Bridgeman; Mark V Sauer; Gloria Bachmann; Juana Hutchinson-Colas Journal: F S Rep Date: 2022-07-19