Literature DB >> 32990494

Transitioning to Long-Term Care: Family Caregiver Experiences of Dementia, Communities, and Counseling.

Rachel Zmora1, Tamara L Statz2, Robyn W Birkeland2, Hayley R McCarron1, Jessica M Finlay3, Christina E Rosebush4, Joseph E Gaugler2.   

Abstract

Objectives: Previous analyses of interventions targeting relationships between family caregivers of people with Alzheimer's disease and related dementias and residential long-term care (RLTC) staff showed modest associations with caregiver outcomes. This analysis aimed to better understand interpersonal and contextual factors that influence caregiver-staff relationships and identify targets for future interventions to improve these relationships.
Methods: Using a parallel convergent mixed methods approach to analyze data from an ongoing counseling intervention trial, descriptive statistics characterized the sample of 85 caregivers and thematic analyses explored their experiences over 4 months.
Results: The findings illustrated that communication, perceptions of care, and relationships with staff are valued by family caregivers following the transition of a relative with dementia to RLTC. Discussion: The findings deepen understanding of potential intervention targets and mechanisms. These results can inform future psychosocial and psychoeducational approaches that assist, validate, and empower family caregivers during the transition to RLTC.

Entities:  

Keywords:  care recipient; dementia; family caregiver; residential long-term care; transitions

Year:  2020        PMID: 32990494      PMCID: PMC7891851          DOI: 10.1177/0898264320963588

Source DB:  PubMed          Journal:  J Aging Health        ISSN: 0898-2643


  35 in total

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Review 2.  Staff-family relationships in the care of older people: a report on a systematic review.

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3.  Family caregiver involvement for long-term care residents at the end of life.

Authors:  Sharon W Williams; Sheryl Zimmerman; Christianna S Williams
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2012-08-28       Impact factor: 4.077

4.  Convoys of care: theorizing intersections of formal and informal care.

Authors:  Candace L Kemp; Mary M Ball; Molly M Perkins
Journal:  J Aging Stud       Date:  2012-11-15

5.  Alzheimer's Association Dementia Care Practice Recommendations.

Authors:  Sam Fazio; Douglas Pace; Katie Maslow; Sheryl Zimmerman; Beth Kallmyer
Journal:  Gerontologist       Date:  2018-01-18

6.  Caring for a family member with Alzheimer's disease: coping with caregiver burden post-nursing home placement.

Authors:  Joan Garity
Journal:  J Gerontol Nurs       Date:  2006-06       Impact factor: 1.254

Review 7.  Moving in: adjustment of people living with dementia going into a nursing home and their families.

Authors:  Laura Sury; Kim Burns; Henry Brodaty
Journal:  Int Psychogeriatr       Date:  2013-02-21       Impact factor: 3.878

8.  'We, not them and us?' Views on the relationships and interactions between staff and relatives of older people permanently living in nursing homes.

Authors:  A Hertzberg; S L Ekman
Journal:  J Adv Nurs       Date:  2000-03       Impact factor: 3.187

9.  The importance of family relationships with nursing facility staff for family caregiver burden and depression.

Authors:  Cory K Chen; Myra Sabir; Sheryl Zimmerman; Jill Suitor; Karl Pillemer
Journal:  J Gerontol B Psychol Sci Soc Sci       Date:  2007-09       Impact factor: 4.077

Review 10.  Carers' experiences when the person for whom they have been caring enters a residential aged care facility permanently: a systematic review.

Authors:  Janelle Jacobson; Judith Streak Gomersall; Jared Campbell; Mark Hughes
Journal:  JBI Database System Rev Implement Rep       Date:  2015-08-14
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  4 in total

1.  Building a new life: a qualitative study of how family carers deal with significant changes.

Authors:  Wendy Duggleby; Hannah M O'Rourke; Pamela Baxter; Cheryl Nekolaichuk; Genevieve Thompson; Shelley Peacock; Sunita Ghosh; Jayna Holroyd-Leduc; Carrie McAiney; Véronique Dubé; Jennifer Swindle; Madeleine Pagnucco-Renaud; Samina Sana
Journal:  BMC Geriatr       Date:  2022-07-01       Impact factor: 4.070

2.  Health care transitions for persons living with dementia and their caregivers.

Authors:  Jessica Ashbourne; Veronique Boscart; Samantha Meyer; Catherine E Tong; Paul Stolee
Journal:  BMC Geriatr       Date:  2021-04-29       Impact factor: 3.921

3.  Efficacy of care manager-led support for family caregivers of people with dementia during the COVID-19 pandemic: a randomized controlled study.

Authors:  Kana Kazawa; Tatsuhiko Kubo; Hiroki Ohge; Shinya Ishii
Journal:  BMC Geriatr       Date:  2022-08-15       Impact factor: 4.070

4.  Challenges Experienced by Italian Nursing Home Staff in End-of-Life Conversations with Family Caregivers during COVID-19 Pandemic: A Qualitative Descriptive Study.

Authors:  Silvia Gonella; Paola Di Giulio; Alexandra Antal; Nicola Cornally; Peter Martin; Sara Campagna; Valerio Dimonte
Journal:  Int J Environ Res Public Health       Date:  2022-02-22       Impact factor: 3.390

  4 in total

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