Literature DB >> 32969094

Advancing the genetic counseling profession through research: Identification of priorities by the National Society of Genetic Counselors research task force.

Leigha Senter1, Jehannine C Austin2, Meghan Carey3, Megan T Cho4, Stephanie L Harris5, Erin L Linnenbringer6, Ian M MacFarlane7, Vivian Y Pan8, John M Quillin9, Julia Wynn10, Gillian W Hooker11.   

Abstract

To help advance research critical to the achievement of the National Society of Genetic Counselors' (NSGC) strategic objectives, coordination and prioritization of society resources are needed. NSGC convened a task force to advance research necessary for the achievement of our strategic objectives by reviewing existing society-supported research efforts identifying gaps in current research, and coordinating society resources, the task force was formed in order to coordinate and prioritize society resources to advance research critical to the achievement of our strategic objectives. The task force developed a research agenda outlining high-priority research questions for the next 5 years. The questions are organized into four domains: (a) Genetic Counseling Clients; (b) Genetic Counseling Process and Outcomes; (c) Value of Genetic Counseling Services; and (d) Access to Genetic Counseling Services. This framework can be used to advocate for research and funding priorities within NSGC and with other key research entities to stimulate the growth and advancement of the genetic counseling profession.
© 2020 National Society of Genetic Counselors.

Entities:  

Keywords:  genetic counseling; genetic counselors

Mesh:

Year:  2020        PMID: 32969094      PMCID: PMC8279295          DOI: 10.1002/jgc4.1330

Source DB:  PubMed          Journal:  J Genet Couns        ISSN: 1059-7700            Impact factor:   2.717


  6 in total

1.  Assessment of genetic testing and related counseling services: current research and future directions.

Authors:  Catharine Wang; Richard Gonzalez; S D Sofia D Merajver
Journal:  Soc Sci Med       Date:  2004-04       Impact factor: 4.634

2.  Quality in clinical genetics.

Authors:  Marc S Williams
Journal:  Am J Med Genet C Semin Med Genet       Date:  2009-08-15       Impact factor: 3.908

3.  The Genetic Counseling Outcome Scale: a new patient-reported outcome measure for clinical genetics services.

Authors:  M McAllister; A M Wood; G Dunn; S Shiloh; C Todd
Journal:  Clin Genet       Date:  2011-02-14       Impact factor: 4.438

Review 4.  A Systematic Review of Randomized Controlled Trials to Assess Outcomes of Genetic Counseling.

Authors:  Barbara A Athens; Samantha L Caldwell; Kendall L Umstead; Philip D Connors; Ethan Brenna; Barbara B Biesecker
Journal:  J Genet Couns       Date:  2017-03-02       Impact factor: 2.537

Review 5.  Outcome measurement in clinical genetics services: a systematic review of validated measures.

Authors:  Katherine Payne; Stuart Nicholls; Marion McAllister; Rhona Macleod; Dian Donnai; Linda M Davies
Journal:  Value Health       Date:  2008 May-Jun       Impact factor: 5.725

6.  Development of FOCUS-GC: Framework for Outcomes of Clinical Communication Services in Genetic Counseling.

Authors:  Deborah Cragun; Heather Zierhut
Journal:  J Genet Couns       Date:  2017-10-12       Impact factor: 2.537

  6 in total
  1 in total

1.  National Society of Genetic Counselors' Board of Directors response to Myers et al. 'A report of the AGCPD task force to evaluate associations between select admissions requirements, demographics, and performance on ABGC certification examination'.

Authors:  Heather Zierhut; Leila Jamal; Sara Riordan; Patrick Wilson; Meghan Carey; Deepti Babu
Journal:  J Genet Couns       Date:  2022-03-08       Impact factor: 2.717

  1 in total

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