Jamie L Jones1, Claudia Barone, Lana M Brown, Patricia Wright, Anita Mitchell, Trenda Ray. 1. University of Arkansas for Medical Sciences, Little Rock (Drs Jones, Barone, Wright, Mitchell, and Ray); and VISN 16 Geriatric Research, Education, and Clinical Center, Little Rock, Arkansas, and Central Arkansas Veterans Healthcare System, North Little Rock (Dr Brown).
Abstract
BACKGROUND: To provide patient- and family-centered care, health care providers must understand the caregiver experience. Evidence suggests that registered nurses functioning as family caregivers (RNFCs) may have unique experiences and challenges. PURPOSE: The purpose of this study was to explore the lived experiences of RNFCs during an adult family member's episode of care in the southern United States. METHODS: A descriptive phenomenological approach was used to describe the essence of the RNFC experience throughout an episode of care. Twenty-five participants were recruited for semistructured, audio-recorded interviews. Data were analyzed using descriptive data analysis and constant comparison techniques. RESULTS: Participants were predominantly female (88%). The essence of the phenomenon was dual roles. Five themes emerged: (1) blurring the boundaries, (2) revealing my identity, (3) having insider knowledge, (4) managing expectations, and (5) learning from my experience. CONCLUSIONS: While caregiver experiences may be similar, RNFCs struggle with dual roles of registered nurse and caregiver, occasionally blurring boundaries of care.
BACKGROUND: To provide patient- and family-centered care, health care providers must understand the caregiver experience. Evidence suggests that registered nurses functioning as family caregivers (RNFCs) may have unique experiences and challenges. PURPOSE: The purpose of this study was to explore the lived experiences of RNFCs during an adult family member's episode of care in the southern United States. METHODS: A descriptive phenomenological approach was used to describe the essence of the RNFC experience throughout an episode of care. Twenty-five participants were recruited for semistructured, audio-recorded interviews. Data were analyzed using descriptive data analysis and constant comparison techniques. RESULTS:Participants were predominantly female (88%). The essence of the phenomenon was dual roles. Five themes emerged: (1) blurring the boundaries, (2) revealing my identity, (3) having insider knowledge, (4) managing expectations, and (5) learning from my experience. CONCLUSIONS: While caregiver experiences may be similar, RNFCs struggle with dual roles of registered nurse and caregiver, occasionally blurring boundaries of care.