Willyane de Andrade Alvarenga1, Francine deMontigny2, Sabrina Zeghiche1, Chantal Verdon3, Lucila Castanheira Nascimento4. 1. Département des sciences infirmières, Université du Québec en Outaouais, Gatineau, QC, Canada. 2. Département des sciences infirmières, Université du Québec en Outaouais, Gatineau, QC, Canada. Electronic address: francine.demontigny@uqo.ca. 3. Département des sciences infirmières, Université du Québec en Outaouais, St-Jérôme, QC, Canada. 4. Department of Maternal-Infant and Public Health Nursing, University of São Paulo at Ribeirão Preto College of Nursing, Ribeirão Preto, SP, Brazil.
Abstract
PROBLEM: The negative implications of perinatal death on mothers' mental health are documented, however little is known about their experience of hope. BACKGROUND: Within the broader literature, hope has contributed to better mental health and bereavement adjustment and often bereaved mothers report the importance of hope for the grieving process. AIM: This study aims to explore bereaved mothers' experience of hope following perinatal death. METHODS: Individual interviews were conducted with 33 mothers having experienced the death of an infant in the perinatal period. Data from the interviews were analysed using thematic analysis. FINDINGS: The mothers' experience of hope following perinatal loss is organized into three themes: Hope disrupted by perinatal loss; Transformed hope: a new pregnancy challenged by the sense of foreboding of another loss; and Ways to restore and foster hope in life. DISCUSSION: Although hope has been a motivating force for mothers to reconnect with their life plan and move on after a loss, it is also negatively affected by the experience of perinatal bereavement, social support, and health professionals' clinical practice. CONCLUSION: Bereaved mothers have reported a disruption in their experience of hope. While some experience a loss of hope or a sense of hopelessness, others experience a transformation and restoration of hope, which is reinvested in the grieving process. Mothers' experience of hope highlights the need for the support of a healthcare professional and may contribute to enhanced clinical practice through the promotion of bereavement care, considering the aspects that instil, maintain, and interfere with hope.
PROBLEM: The negative implications of perinatal death on mothers' mental health are documented, however little is known about their experience of hope. BACKGROUND: Within the broader literature, hope has contributed to better mental health and bereavement adjustment and often bereaved mothers report the importance of hope for the grieving process. AIM: This study aims to explore bereaved mothers' experience of hope following perinatal death. METHODS: Individual interviews were conducted with 33 mothers having experienced the death of an infant in the perinatal period. Data from the interviews were analysed using thematic analysis. FINDINGS: The mothers' experience of hope following perinatal loss is organized into three themes: Hope disrupted by perinatal loss; Transformed hope: a new pregnancy challenged by the sense of foreboding of another loss; and Ways to restore and foster hope in life. DISCUSSION: Although hope has been a motivating force for mothers to reconnect with their life plan and move on after a loss, it is also negatively affected by the experience of perinatal bereavement, social support, and health professionals' clinical practice. CONCLUSION: Bereaved mothers have reported a disruption in their experience of hope. While some experience a loss of hope or a sense of hopelessness, others experience a transformation and restoration of hope, which is reinvested in the grieving process. Mothers' experience of hope highlights the need for the support of a healthcare professional and may contribute to enhanced clinical practice through the promotion of bereavement care, considering the aspects that instil, maintain, and interfere with hope.