Literature DB >> 32888021

A Prospective Study of Children Aged 0-8 Years with CAH and Adrenal Insufficiency Treated with Hydrocortisone Granules.

Uta Neumann1, Katarina Braune1, Martin J Whitaker2, Susanna Wiegand1, Heiko Krude1, John Porter2, Dena Digweed2, Bernard Voet2, Richard J M Ross3, Oliver Blankenstein1.   

Abstract

CONTEXT: Children with congenital adrenal hyperplasia (CAH) and adrenal insufficiency (AI) require daily hydrocortisone replacement with accurate dosing.
OBJECTIVE: Prospective study of efficacy and safety of hydrocortisone granules in children with AI and CAH monitored by 17-OHP (17-hydroxyprogesterone) saliva profiles.
METHODS: Seventeen children with CAH (9 male) and 1 with hypopituitarism (male), aged from birth to 6 years, had their hydrocortisone medication changed from pharmacy compounded capsules to hydrocortisone granules. Patients were followed prospectively for 2 years. In children with CAH, the therapy was adjusted by 17-OHP salivary profiles every 3 months. The following parameters were recorded: hydrocortisone dose, height, weight, pubertal status, adverse events, and incidence of adrenal crisis.
RESULTS: The study medication was given thrice daily, and the median duration of treatment (range) was 795 (1-872) days, with 150 follow-up visits. Hydrocortisone doses were changed on 40/150 visits, with 32 based on salivary measurements and 8 on serum 17-OHP levels. The median daily mg/m2 hydrocortisone dose (range) at study entry for the different age groups 2-8 years, 1 month to 2 years, <28 days was 11.9 (7.2-15.5), 9.9 (8.6-12.2), and 12.0 (11.1-29.5), respectively, and at end of the study was 10.2 (7.0-14.4), 9.8 (8.9-13.1), and 8.6 (8.2-13.7), respectively. There were no trends for accelerated or reduced growth. No adrenal crises were observed despite 193 treatment-emergent adverse events, which were mainly common childhood illnesses.
INTERPRETATION: This first prospective study of glucocorticoid treatment in children with AI and CAH demonstrates that accurate dosing and monitoring from birth results in hydrocortisone doses at the lower end of the recommended dose range and normal growth, without occurrence of adrenal crises.
© The Author(s) 2020. Published by Oxford University Press on behalf of the Endocrine Society.

Entities:  

Keywords:  adrenal insufficiency; children; congenital adrenal hyperplasia; hydrocortisone; saliva

Mesh:

Substances:

Year:  2021        PMID: 32888021      PMCID: PMC7947757          DOI: 10.1210/clinem/dgaa626

Source DB:  PubMed          Journal:  J Clin Endocrinol Metab        ISSN: 0021-972X            Impact factor:   5.958


  18 in total

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Authors:  John Porter; Mike Withe; Richard J Ross
Journal:  Expert Rev Endocrinol Metab       Date:  2018-03-26

4.  Congenital adrenal hyperplasia due to steroid 21-hydroxylase deficiency: an Endocrine Society clinical practice guideline.

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5.  Quality of compounded hydrocortisone capsules used in the treatment of children.

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6.  Prolonged hypocortisolemia in hydrocortisone replacement regimens in adrenocorticotrophic hormone deficiency.

Authors:  Ann M Maguire; Geoffrey R Ambler; Bin Moore; Mark McLean; Marina G Falleti; Christopher T Cowell
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7.  Longitudinal Assessment of Illnesses, Stress Dosing, and Illness Sequelae in Patients With Congenital Adrenal Hyperplasia.

Authors:  Diala El-Maouche; Courtney J Hargreaves; Ninet Sinaii; Ashwini Mallappa; Padmasree Veeraraghavan; Deborah P Merke
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8.  Children with classic congenital adrenal hyperplasia experience salt loss and hypoglycemia: evaluation of adrenal crises during the first 6 years of life.

Authors:  Brigitte Odenwald; Uta Nennstiel-Ratzel; Helmuth-Günther Dörr; Heinrich Schmidt; Manfred Wildner; Walter Bonfig
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9.  Iatrogenic Cushing Syndrome in a Child With Congenital Adrenal Hyperplasia: Erroneous Compounding of Hydrocortisone.

Authors:  Julia E Barillas; Daniel Eichner; Ryan Van Wagoner; Phyllis W Speiser
Journal:  J Clin Endocrinol Metab       Date:  2018-01-01       Impact factor: 5.958

10.  Congenital Adrenal Hyperplasia Due to Steroid 21-Hydroxylase Deficiency: An Endocrine Society Clinical Practice Guideline.

Authors:  Phyllis W Speiser; Wiebke Arlt; Richard J Auchus; Laurence S Baskin; Gerard S Conway; Deborah P Merke; Heino F L Meyer-Bahlburg; Walter L Miller; M Hassan Murad; Sharon E Oberfield; Perrin C White
Journal:  J Clin Endocrinol Metab       Date:  2018-11-01       Impact factor: 5.958

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Review 6.  Novel treatments for congenital adrenal hyperplasia.

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7.  A 4-hour Profile of 17-hydroxyprogesterone in Salt-wasting Congenital Adrenal Hyperplasia: Is the Serial Monitoring Strategy Worth the Effort?

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