Literature DB >> 32865775

Public engagement with genomic medicine: a summary of town hall discussions.

Holly Etchegary1, Mercy Winsor2, Angela Power3, Charlene Simmonds2.   

Abstract

Engaging with the public for their input about genomic medicine is critical before it is implemented into routine healthcare practice. In order to inform discussion and planning for the introduction of genome sequencing into clinical care in an Eastern Canadian province, we implemented a program of public engagement activities. Here, we report a qualitative summary of two town hall discussions utilizing a hybrid information-consultation approach with 20 residents of the province of Newfoundland and Labrador, Canada. Discussion revealed largely positive attitudes towards genomic medicine; however, critical reflection around informed consent models, the return of sequencing findings, and access to qualified healthcare professionals revealed numerous public concerns. Public support will be important to realize the potential benefits of genomics and precision medicine to health outcomes. Our findings highlight public concerns that must be addressed in educational and informed consent documents related to sequencing. Town hall attendees endorsed ongoing public education and awareness-building initiatives which could help foster transparency and trust as genomics is integrated into healthcare systems.

Keywords:  Consultation; Genomics; Personalized medicine; Public engagement; Qualitative; Sequencing

Year:  2020        PMID: 32865775     DOI: 10.1007/s12687-020-00485-1

Source DB:  PubMed          Journal:  J Community Genet        ISSN: 1868-310X


  1 in total

1.  The Value of Qualitative Description in Health Services and Policy Research.

Authors:  Roger Chafe
Journal:  Healthc Policy       Date:  2017-02
  1 in total
  1 in total

1.  Public interest in unexpected genomic findings: a survey study identifying aspects of sequencing attitudes that influence preferences.

Authors:  Holly Etchegary; Daryl Pullman; Charlene Simmonds; Proton Rahman
Journal:  J Community Genet       Date:  2022-01-21
  1 in total

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