Literature DB >> 32863787

Multiple Sclerosis Adult Day Programs and Health-Related Quality of Life of Persons with Multiple Sclerosis and Informal Caregivers.

Joseph M Gasper, Megan Lewis, Anne Kroeger, Ben Muz, Nicholas LaRocca, Debra Frankel.   

Abstract

BACKGROUND: Multiple sclerosis adult day programs (MSADPs) offer life-enhancing services for individuals and informal caregivers affected by multiple sclerosis (MS), including medical care, rehabilitation therapies, nutrition therapy, cognitive training, tailored education, exercise programs, and social interaction. The purpose of this study was to examine the effects of MSADPs on health-related quality of life (HRQOL) and health care utilization of persons with MS and HRQOL and well-being of informal caregivers.
METHODS: Using a quasi-experimental design, outcomes between baseline and 1-year follow-up in persons with MS and informal caregivers who used MSADP services and a comparison group of similar persons with MS and caregivers who did not use MSADP services were compared. For persons with MS, outcomes included standardized measures of physical and mental HRQOL and health care utilization. For caregivers, outcomes included physical and mental HRQOL and well-being. Changes in outcomes between baseline and follow-up were examined using propensity score-weighted difference-in-differences regression analysis.
RESULTS: For persons with MS, MSADP use had a significant positive effect on 12-Item Short Form Health Survey physical component scores, although the difference was not clinically meaningful. Use of MSADPs did not have effects on any other outcomes for persons with MS or caregivers.
CONCLUSIONS: Use of MSADPs did not show a clinically meaningful effect on HRQOL for persons with MS or informal caregivers. The MSADPs do not seem to offer sustained benefits to persons with MS or caregivers, but the possibility of initial short-term benefits cannot be ruled out.
© 2020 Consortium of Multiple Sclerosis Centers.

Entities:  

Keywords:  Adult day programs; Caregiver respite; Health-related quality of life (HRQOL); Multiple sclerosis (MS); Wellness programs

Year:  2020        PMID: 32863787      PMCID: PMC7446630          DOI: 10.7224/1537-2073.2019-020

Source DB:  PubMed          Journal:  Int J MS Care        ISSN: 1537-2073


  28 in total

1.  The MOS social support survey.

Authors:  C D Sherbourne; A L Stewart
Journal:  Soc Sci Med       Date:  1991       Impact factor: 4.634

2.  Matching methods for causal inference: A review and a look forward.

Authors:  Elizabeth A Stuart
Journal:  Stat Sci       Date:  2010-02-01       Impact factor: 2.901

3.  Interpreting score differences in the SF-36 Vitality scale: using clinical conditions and functional outcomes to define the minimally important difference.

Authors:  Jakob B Bjorner; Gene V Wallenstein; Marie C Martin; Peggy Lin; Bonnie Blaisdell-Gross; Catherine Tak Piech; Samir H Mody
Journal:  Curr Med Res Opin       Date:  2007-04       Impact factor: 2.580

4.  Factors affecting employment among informal caregivers assisting people with multiple sclerosis.

Authors:  Robert J Buchanan; Chunfeng Huang; Zhida Zheng
Journal:  Int J MS Care       Date:  2013

5.  A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity.

Authors:  J Ware; M Kosinski; S D Keller
Journal:  Med Care       Date:  1996-03       Impact factor: 2.983

6.  People with multiple sclerosis report significantly worse symptoms and health related quality of life than the US general population as measured by PROMIS and NeuroQoL outcome measures.

Authors:  Dagmar Amtmann; Alyssa M Bamer; Jiseon Kim; Hyewon Chung; Rana Salem
Journal:  Disabil Health J       Date:  2017-04-21       Impact factor: 2.554

7.  Health trajectories of family caregivers: associations with care transitions and adult day service use.

Authors:  Yin Liu; Kyungmin Kim; Steven H Zarit
Journal:  J Aging Health       Date:  2014-10-27

8.  Factors associated with carer strain in carers of people with multiple sclerosis.

Authors:  S Y Chipchase; N B Lincoln
Journal:  Disabil Rehabil       Date:  2001-11-20       Impact factor: 3.033

9.  Functional status and well-being of patients with chronic conditions. Results from the Medical Outcomes Study.

Authors:  A L Stewart; S Greenfield; R D Hays; K Wells; W H Rogers; S D Berry; E A McGlynn; J E Ware
Journal:  JAMA       Date:  1989-08-18       Impact factor: 56.272

10.  Wellness and multiple sclerosis: The National MS Society establishes a Wellness Research Working Group and research priorities.

Authors:  Robert W Motl; Ellen M Mowry; Dawn M Ehde; Nicholas G LaRocca; Kathy E Smith; Kathleen Costello; Lynne Shinto; Alexander V Ng; Amy B Sullivan; Barbara Giesser; Kevin K McCully; Bo Fernhall; Malachy Bishop; Matthew Plow; Patrizia Casaccia; Nancy D Chiaravalloti
Journal:  Mult Scler       Date:  2017-01-12       Impact factor: 6.312

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2.  Benefits of Multiple Sclerosis Adult Day Program Participation for People with Multiple Sclerosis: A Qualitative Study.

Authors:  Jocelyn Marrow; Allison Roeser; Joseph Gasper; Nicolas G LaRocca; Debra Frankel
Journal:  Int J MS Care       Date:  2019-12-16
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