Literature DB >> 32835814

Substantial Loss to Follow-Up and Missing Data in National Arthroscopy Registries: A Systematic Review.

Thomas E Ueland1, Dominic S Carreira2, RobRoy L Martin3.   

Abstract

PURPOSE: To report follow-up methodologies, compliance, and existing strategies for handling missing data in national arthroscopy registries collecting patient-reported outcome measures (PROMs).
METHODS: Annual reports, EMBASE, and MEDLINE were queried following the Preferred Reporting Items for Systematic Reviews and Meta-analyses (PRISMA) guidelines to identify national arthroscopy registries reporting follow-up with a validated PROM and sample size greater than 500. Extracted data included weighted compliance in peer-reviewed publications, cumulative compliance throughout the time span of data collection, and missing-data methodologies.
RESULTS: Nine national arthroscopy registries currently collect PROMs, with cumulative rates of follow-up ranging from less than 10% to more than 70%. We identified 36 publications from 5 national registries reporting hip and knee arthroscopies. The weighted mean compliance with PROMs in national registry publications was 56% at 0.5 years, 44% to 59% at 1 year, 40% to 61% at 2 years, 35% to 54% at 5 years, and 40% at 10 years. A missing-data analysis was reported or referenced in 58% of publications.
CONCLUSIONS: In national arthroscopy registries, compliance with 2-year PROMs does not meet traditional follow-up thresholds of 60% or 80% and reporting of missing-data methodologies is inconsistent. LEVEL OF EVIDENCE: Level IV, systematic review of Level II through IV studies.
Copyright © 2020 Arthroscopy Association of North America. Published by Elsevier Inc. All rights reserved.

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Year:  2020        PMID: 32835814     DOI: 10.1016/j.arthro.2020.08.007

Source DB:  PubMed          Journal:  Arthroscopy        ISSN: 0749-8063            Impact factor:   4.772


  3 in total

1.  Loss to patient-reported outcome measure follow-up after hip arthroplasty and knee arthroplasty : patient satisfaction, associations with non-response, and maximizing returns.

Authors:  Lauren A Ross; Sara C O'Rourke; Gemma Toland; Deborah J MacDonald; Nick D Clement; Chloe E H Scott
Journal:  Bone Jt Open       Date:  2022-04

2.  Registry Studies Use Inconsistent Methods to Account for Patients Lost to Follow-up, and Rates of Patients LTFU Are High.

Authors:  Kalyan Vamshi Vemulapalli; Karadi Hari Sunil Kumar; Vikas Khanduja
Journal:  Arthrosc Sports Med Rehabil       Date:  2021-10-28

3.  The German Arthroscopy Registry DART: what has happened after 5 years?

Authors:  Maximilian Hinz; Christoph Lutter; Ralf Mueller-Rath; Philipp Niemeyer; Oliver Miltner; Thomas Tischer
Journal:  Knee Surg Sports Traumatol Arthrosc       Date:  2022-09-25       Impact factor: 4.114

  3 in total

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