Literature DB >> 32807591

Reweighting to address nonparticipation and missing data bias in a longitudinal electronic health record study.

Milena A Gianfrancesco1, Charles E McCulloch2, Laura Trupin3, Jonathan Graf3, Gabriela Schmajuk4, Jinoos Yazdany3.   

Abstract

PURPOSE: We examined whether weighting techniques could account for longitudinal differences in disease activity by race/ethnicity between research participants and nonparticipants with rheumatoid arthritis (RA).
METHODS: We included 377 patients with RA from a public hospital in San Francisco, CA. We estimated the probability of not enrolling in a research study by constructing weights using inverse probability weighting. Disease activity over time by race/ethnicity was analyzed across the entire patient population and among research participants only using multivariable mixed-effects models.
RESULTS: There were no differences in RA disease activity scores between research participants and nonparticipants at baseline; however, longitudinal differences in disease activity between research participants and nonparticipants were found by race/ethnicity. Weighting research participants in accordance with sociodemographic and clinical characteristics of the nonparticipant population did not result in any meaningful changes in disease activity by race/ethnicity over time.
CONCLUSIONS: In our study of patients with RA, inverse probability weighting using select sociodemographic and clinical variables was not sufficient to account for longitudinal disease activity differences by race/ethnicity between research participants and nonparticipants.
Copyright © 2020 Elsevier Inc. All rights reserved.

Entities:  

Keywords:  Electronic health records; Generalizability; Inverse probability weighting; Selection bias

Mesh:

Year:  2020        PMID: 32807591      PMCID: PMC7541711          DOI: 10.1016/j.annepidem.2020.06.008

Source DB:  PubMed          Journal:  Ann Epidemiol        ISSN: 1047-2797            Impact factor:   3.797


  19 in total

1.  Patient-physician discordance in assessments of global disease severity in rheumatoid arthritis.

Authors:  Jennifer L Barton; John Imboden; Jonathan Graf; David Glidden; Edward H Yelin; Dean Schillinger
Journal:  Arthritis Care Res (Hoboken)       Date:  2010-06       Impact factor: 4.794

Review 2.  Participation rates in epidemiologic studies.

Authors:  Sandro Galea; Melissa Tracy
Journal:  Ann Epidemiol       Date:  2007-06-06       Impact factor: 3.797

3.  Representativeness in population-based studies: a detailed description of non-response in a Danish cohort study.

Authors:  Thomas Drivsholm; Lene Falgaard Eplov; Michael Davidsen; Torben Jørgensen; Hans Ibsen; Hanne Hollnagel; Knut Borch-Johnsen
Journal:  Scand J Public Health       Date:  2006       Impact factor: 3.021

4.  Socioeconomic determinants of disability and depression in patients with rheumatoid arthritis.

Authors:  M Margaretten; J Barton; L Julian; P Katz; L Trupin; C Tonner; J Graf; J Imboden; E Yelin
Journal:  Arthritis Care Res (Hoboken)       Date:  2011-02       Impact factor: 4.794

5.  Non-attendance at out-patient clinics: a case study.

Authors:  C Mason
Journal:  J Adv Nurs       Date:  1992-05       Impact factor: 3.187

6.  Patient factors associated with missed appointments in persons with schizophrenia.

Authors:  Shalom Coodin; Douglas Staley; Barb Cortens; Rob Desrochers; Sandy McLandress
Journal:  Can J Psychiatry       Date:  2004-02       Impact factor: 4.356

7.  Acute phase reactants add little to composite disease activity indices for rheumatoid arthritis: validation of a clinical activity score.

Authors:  Daniel Aletaha; Valerie P K Nell; Tanja Stamm; Martin Uffmann; Stephan Pflugbeil; Klaus Machold; Josef S Smolen
Journal:  Arthritis Res Ther       Date:  2005-04-07       Impact factor: 5.156

8.  The Influence of Race and Ethnicity on Becoming a Human Subject: Factors Associated with Participation in Research.

Authors:  Mary A Garza; Sandra Crouse Quinn; Yan Li; Luciana Assini-Meytin; Erica T Casper; Craig S Fryer; James Butler; Natasha A Brown; Kevin H Kim; Stephen B Thomas
Journal:  Contemp Clin Trials Commun       Date:  2017-05-24

9.  Longitudinal drop-out and weighting against its bias.

Authors:  Steffen C E Schmidt; Alexander Woll
Journal:  BMC Med Res Methodol       Date:  2017-12-08       Impact factor: 4.615

10.  Sex-differences in reasons for non-participation at recruitment: Geelong Osteoporosis Study.

Authors:  Shikha Markanday; Sharon L Brennan; Haslinda Gould; Julie A Pasco
Journal:  BMC Res Notes       Date:  2013-03-18
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  1 in total

1.  When a Diagnosis Has No Name: Uncertainty and Opportunity.

Authors:  Michael D Lockshin; Mary K Crow; Medha Barbhaiya
Journal:  ACR Open Rheumatol       Date:  2021-11-21
  1 in total

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