Kelsey Moriarty1, Susan M Wolf2, Patricia M Veach1, Bonnie LeRoy1, Ian M MacFarlane3, Heather A Zierhut1. 1. Department of Genetics, Cell Biology & Development, University of Minnesota - Twin Cities, Minneapolis, MN 55455 USA. 2. Law School, Medical School & Consortium on Law & Values in Health, Environment & The Life Sciences, University of Minnesota - Twin Cities, Minneapolis, MN 55455 USA. 3. Department of Psychology, Elizabethtown College, Elizabethtown, PA 17022 USA.
Abstract
Aim: Precision medicine research recruitment poses challenges. To better understand factors impacting recruitment, this study assessed hypothetical willingness, public opinions of and familiarity with precision medicine research. Materials & methods: Adult attendees (n = 942) at the 2017 Minnesota State Fair completed an electronic survey. Results: Few respondents had heard of 'precision medicine' (18%), and familiarity came mostly from media (43%). Fifty-six percent expressed hypothetical willingness to participate in precision medicine research. Significant predictors of willingness were: comfort with unconditional research; perceiving precision medicine research as beneficial, trustworthy and confidential; having a graduate degree; comfort with self- but not family-participation; and familiarity with precision/personalized medicine. Conclusion: This study identified predictors of hypothetical willingness to participate in precision medicine research. Alternative recruitment strategies are needed.
Aim: Precision medicine research recruitment poses challenges. To better understand factors impacting recruitment, this study assessed hypothetical willingness, public opinions of and familiarity with precision medicine research. Materials & methods: Adult attendees (n = 942) at the 2017 Minnesota State Fair completed an electronic survey. Results: Few respondents had heard of 'precision medicine' (18%), and familiarity came mostly from media (43%). Fifty-six percent expressed hypothetical willingness to participate in precision medicine research. Significant predictors of willingness were: comfort with unconditional research; perceiving precision medicine research as beneficial, trustworthy and confidential; having a graduate degree; comfort with self- but not family-participation; and familiarity with precision/personalized medicine. Conclusion: This study identified predictors of hypothetical willingness to participate in precision medicine research. Alternative recruitment strategies are needed.
Authors: Leena Merdad; Lama Aldakhil; Rawan Gadi; Mourad Assidi; Salina Y Saddick; Adel Abuzenadah; Jim Vaught; Abdelbaset Buhmeida; Mohammed H Al-Qahtani Journal: BMC Med Ethics Date: 2017-05-02 Impact factor: 2.652