Lei Cheng1, Qiongfang Kang2, Yanqing Wang3, Pamela S Hinds4. 1. School of Nursing, Fudan University, China. Electronic address: chenglei@fudan.edu.cn. 2. Pediatric Surgical Oncology Unit, Children's Hospital of Fudan University, China. 3. Pediatric Hematology&Oncology Unit, Children's Hospital of Zhejiang University School of Medicine, China. 4. Children's National Hospital; Professor, The George Washington University, DC, USA. Electronic address: PSHinds@childrensnational.org.
Abstract
PROBLEM: Patient-reported outcomes (PROs) are increasingly recognized in pediatric clinical care as adding essential information relevant to actual care. However, the effectiveness of using PROs in pediatric clinical settings has not been fully explored with synthesized evidence. The aim of this study was to evaluate the effectiveness of using patient-reported outcomes in pediatric clinical practices. ELIGIBILITY CRITERIA: We searched four English and three Chinese databases to identify studies that examine the effectiveness of using PROs in pediatric clinical practices published from the inception date of each database to January 2020. SAMPLE: Ten articles met the inclusion criteria. RESULTS: There was wide a variation in the ten studies' designs, samples, PROs administered (type, length, timing, mode), and type of outcomes evaluated. The effect sizes of using PROs on three categories of outcomes (patient, process of care and health service) were assessed. Of 70 measured outcomes, 32 were positive, 5 were negative, and 33 were mixed. CONCLUSIONS: Overall, there is a weak but trending positive impact of using PROs in pediatric clinical practice. IMPLICATIONS: More rigorous study designs with sources of bias controlled are needed to more directly assess the impact of using PROs in pediatric care. If findings continue to be positive, then an implementation model addressing the numerous influencing factors is recommended to integrate PROs into pediatric care.
PROBLEM: Patient-reported outcomes (PROs) are increasingly recognized in pediatric clinical care as adding essential information relevant to actual care. However, the effectiveness of using PROs in pediatric clinical settings has not been fully explored with synthesized evidence. The aim of this study was to evaluate the effectiveness of using patient-reported outcomes in pediatric clinical practices. ELIGIBILITY CRITERIA: We searched four English and three Chinese databases to identify studies that examine the effectiveness of using PROs in pediatric clinical practices published from the inception date of each database to January 2020. SAMPLE: Ten articles met the inclusion criteria. RESULTS: There was wide a variation in the ten studies' designs, samples, PROs administered (type, length, timing, mode), and type of outcomes evaluated. The effect sizes of using PROs on three categories of outcomes (patient, process of care and health service) were assessed. Of 70 measured outcomes, 32 were positive, 5 were negative, and 33 were mixed. CONCLUSIONS: Overall, there is a weak but trending positive impact of using PROs in pediatric clinical practice. IMPLICATIONS: More rigorous study designs with sources of bias controlled are needed to more directly assess the impact of using PROs in pediatric care. If findings continue to be positive, then an implementation model addressing the numerous influencing factors is recommended to integrate PROs into pediatric care.
Authors: Maud M van Muilekom; Lorynn Teela; Hedy A van Oers; Johannes B van Goudoever; Martha A Grootenhuis; Lotte Haverman Journal: Qual Life Res Date: 2021-07-29 Impact factor: 4.147