Andrew M Heitzer1, Douglas Ris1, Kimberly Raghubar1, Lisa S Kahalley1, Marisa E Hilliard1, Marsha Gragert2. 1. Department of Pediatrics, Psychology Section, Baylor College of Medicine / Texas Children's Hospital, 6701 Fannin St., CC 1630, Houston, TX, 77030-2399, USA. 2. Department of Pediatrics, Psychology Section, Baylor College of Medicine / Texas Children's Hospital, 6701 Fannin St., CC 1630, Houston, TX, 77030-2399, USA. mngrager@texaschildrens.org.
Abstract
PURPOSE OF REVIEW: Transition-age patients with history of a pediatric brain tumor are at significant risk for difficulties transitioning to adulthood. We review current transition models and the potential role of neuropsychology in the transition process for adolescent and young adult brain tumor survivors. RECENT FINDINGS: Several recently developed healthcare transition models include consideration of patients' cognitive and functional capacities, yet currently available transition readiness tools are limited in scope and do not possess adequate normative data across pediatric medical populations. We explore the potential utility and added benefit of systematically incorporating neuropsychology in the transition process for pediatric brain tumor survivors. The literature supports increased evaluation and intervention targeted at psychosocial barriers to transition. Based on these findings, we propose a family-centered and multidisciplinary care model that promotes both medical and broader psychosocial transition processes. Neuropsychology is ideally suited to assess the wide-ranging areas encompassed in transition readiness and to facilitate the transition process.
PURPOSE OF REVIEW: Transition-age patients with history of a pediatric brain tumor are at significant risk for difficulties transitioning to adulthood. We review current transition models and the potential role of neuropsychology in the transition process for adolescent and young adult brain tumor survivors. RECENT FINDINGS: Several recently developed healthcare transition models include consideration of patients' cognitive and functional capacities, yet currently available transition readiness tools are limited in scope and do not possess adequate normative data across pediatric medical populations. We explore the potential utility and added benefit of systematically incorporating neuropsychology in the transition process for pediatric brain tumor survivors. The literature supports increased evaluation and intervention targeted at psychosocial barriers to transition. Based on these findings, we propose a family-centered and multidisciplinary care model that promotes both medical and broader psychosocial transition processes. Neuropsychology is ideally suited to assess the wide-ranging areas encompassed in transition readiness and to facilitate the transition process.
Entities:
Keywords:
Adolescence and young adulthood; Brain tumor; Neuropsychological; Pediatric; Psychosocial; Transitions