Diane Armao1,2, Terry S Hartman3,4, Laurence Katz5, Christopher M Shea6, Jenna Koschnitzky7, Richard Yang8, J Keith Smith3, Carolyn Quinsey9. 1. Department of Radiology, University of North Carolina, Campus Box 7510, Chapel Hill, NC, 27599-7510, USA. diane_armao@med.unc.edu. 2. Department of Pathology and Laboratory Medicine, University of North Carolina, Campus Box 7510, Chapel Hill, NC, 27599-7510, USA. diane_armao@med.unc.edu. 3. Department of Radiology, University of North Carolina, Campus Box 7510, Chapel Hill, NC, 27599-7510, USA. 4. Department of Health Informatics, School of Health Professionals, Rutgers University, Newark, NJ, USA. 5. Department of Emergency Medicine, University of North Carolina, Chapel Hill, NC, USA. 6. Department of Health Policy and Management, Gillings School of Global Public Health, University of North Carolina, Chapel Hill, NC, USA. 7. Hydrocephalus Association, Bethesda, MD, USA. 8. School of Osteopathic Medicine, Campbell University, Buies Creek, NC, USA. 9. Department of Neurosurgery, University of North Carolina, Chapel Hill, NC, USA.
Abstract
PURPOSE: Surgically treated hydrocephalus patients are frequently imaged with head computed tomography (CT), and risk/benefit communication with families is inconsistent and unknown. We aimed to educate patients and caregivers about radiation safety in CT and explore their communication preferences. METHODS: We conducted a pediatric CT radiation safety and diagnostic imaging educational workshop for patients and caregivers at a national conference on hydrocephalus to characterize current practice and desired communication about CT imaging. Our workshop consisted of an interactive educational intervention with pre-/post-session surveys followed by feedback from participants. RESULTS: Our session included 34 participants (100% response rate for surveys) with 28 being parents of individuals with hydrocephalus. A total of 76% (n = 26) participants showed an increase in knowledge after the session (p < 0.01). All participants (N = 34) uniformly desired risk/benefit discussions before CT scans. However, 71% stated that they were not informed of risks/benefits of CT scans by a medical professional. Following the session, the number of participants indicating that informed consent should be obtained before CT scans increased from 30 to 33. Respondents also revealed that 14% of children and young adults had received > 100 CT scans for shunt evaluation with the median being 25 scans (IQR 20). CONCLUSIONS: Caregivers desire and deserve to be empowered through education and social support, and continuously engaged through sharing decisions and co-designing care plans. The neurosurgical community is in an ideal position to collaborate with radiologists, primary care providers, and parents in the development and testing of credible, high-quality online and social media resources.
PURPOSE: Surgically treated hydrocephaluspatients are frequently imaged with head computed tomography (CT), and risk/benefit communication with families is inconsistent and unknown. We aimed to educate patients and caregivers about radiation safety in CT and explore their communication preferences. METHODS: We conducted a pediatric CT radiation safety and diagnostic imaging educational workshop for patients and caregivers at a national conference on hydrocephalus to characterize current practice and desired communication about CT imaging. Our workshop consisted of an interactive educational intervention with pre-/post-session surveys followed by feedback from participants. RESULTS: Our session included 34 participants (100% response rate for surveys) with 28 being parents of individuals with hydrocephalus. A total of 76% (n = 26) participants showed an increase in knowledge after the session (p < 0.01). All participants (N = 34) uniformly desired risk/benefit discussions before CT scans. However, 71% stated that they were not informed of risks/benefits of CT scans by a medical professional. Following the session, the number of participants indicating that informed consent should be obtained before CT scans increased from 30 to 33. Respondents also revealed that 14% of children and young adults had received > 100 CT scans for shunt evaluation with the median being 25 scans (IQR 20). CONCLUSIONS: Caregivers desire and deserve to be empowered through education and social support, and continuously engaged through sharing decisions and co-designing care plans. The neurosurgical community is in an ideal position to collaborate with radiologists, primary care providers, and parents in the development and testing of credible, high-quality online and social media resources.
Entities:
Keywords:
Head CT; Hydrocephalus; Pediatric; Radiation exposure; Radiation safety education
Authors: Katarzyna Jończyk-Potoczna; Beata Pucher; Lidia Strzelczuk-Judka; Beata Buraczyńska-Andrzejewska; Barbara Więckowska; Hanna Krauss; Przemysław Biliński; Paulina Wojtyła-Buciora Journal: Int J Occup Med Environ Health Date: 2019-01-24 Impact factor: 1.843
Authors: G Sadigh; N Kadom; P Karthik; D Sengupta; K J Strauss; D Frush; K E Applegate Journal: AJNR Am J Neuroradiol Date: 2018-07-05 Impact factor: 3.825
Authors: Diane Armao; Terry S Hartman; Christopher M Shea; Laurence Katz; Tracey Thurnes; J Keith Smith Journal: J Med Educ Curric Dev Date: 2018-09-10