Jenny Velasco1, Verónica Ferraris2, Alfredo Eymann3, Paula A Coccia2, Lidia R Ghezzi2, María C Sánchez4, Carmen L De Cunto5, Daniel D'Agostino4, Jorge R Ferraris2. 1. Servicio de Nefrología y Trasplante Renal Pediátrico, Hospital Italiano de Buenos Aires, Buenos Aires, Argentina. jenny_maribel80@hotmail.com. 2. Servicio de Nefrología y Trasplante Renal Pediátrico, Hospital Italiano de Buenos Aires, Buenos Aires, Argentina. 3. Servicio de Clínica Pediátrica, Hospital Italiano de Buenos Aires, Buenos Aires, Argentina. 4. Servicio de Hepato-Gastroenterología Pediátrica, Hospital Italiano de Buenos Aires, Buenos Aires, Argentina. 5. Sección de Reumatologia Pediátrica. Hospital Italiano de Buenos Aires, Buenos Aires, Argentina.
Abstract
INTRODUCTION: Health-related quality of life (HRQoL) is a measure of health outcomes. It assesses the subjective and overall impact of diseases on daily life. It also provides multidimensional data about physical wellbeing, family and peers relations. HRQoL studies on siblings are limited. OBJECTIVE: To compare HRQoL among siblings of pediatric patients with chronic rheumatic diseases, kidney or liver transplant and healthy children whose siblings had no chronic conditions. RESULTS: The siblings of children with kidney transplant (n: 65), liver transplant (n: 35), and chronic rheumatic diseases (n: 36) were compared to the healthy children group (n: 51). The total siblings group had a lower, statistically significant score in the physical well-being, social support and peers, and financial resources dimensions. The siblings of kidney transplant patients had a low score in the physical wellbeing (p < 0.02; effect size [ES]: 0.66) andfinancial resources (p < 0.01; ES: 0.66) dimensions. The siblings of liver transplant patients perceived a lower physical well-being (p = 0.04), less social support and peers (p < 0.01), and difficulties in relation to school environment (p < 0.02) and financial resources (p <0.01). The siblings of those with chronic rheumatic diseases had a lower score in the physical well-being (p < 0.05; ES: 0.44) and social support and peers (p <0.01; ES: 0.58) dimensions. CONCLUSION: HRQoL among healthy children whose siblings have a chronic disease was lower in the physical well-being, social support and peers, and financial resources dimensions compared to the healthy children group. Sociedad Argentina de Pediatría.
INTRODUCTION: Health-related quality of life (HRQoL) is a measure of health outcomes. It assesses the subjective and overall impact of diseases on daily life. It also provides multidimensional data about physical wellbeing, family and peers relations. HRQoL studies on siblings are limited. OBJECTIVE: To compare HRQoL among siblings of pediatric patients with chronic rheumatic diseases, kidney or liver transplant and healthy children whose siblings had no chronic conditions. RESULTS: The siblings of children with kidney transplant (n: 65), liver transplant (n: 35), and chronic rheumatic diseases (n: 36) were compared to the healthy children group (n: 51). The total siblings group had a lower, statistically significant score in the physical well-being, social support and peers, and financial resources dimensions. The siblings of kidney transplant patients had a low score in the physical wellbeing (p < 0.02; effect size [ES]: 0.66) andfinancial resources (p < 0.01; ES: 0.66) dimensions. The siblings of liver transplant patients perceived a lower physical well-being (p = 0.04), less social support and peers (p < 0.01), and difficulties in relation to school environment (p < 0.02) and financial resources (p <0.01). The siblings of those with chronic rheumatic diseases had a lower score in the physical well-being (p < 0.05; ES: 0.44) and social support and peers (p <0.01; ES: 0.58) dimensions. CONCLUSION: HRQoL among healthy children whose siblings have a chronic disease was lower in the physical well-being, social support and peers, and financial resources dimensions compared to the healthy children group. Sociedad Argentina de Pediatría.
Entities:
Keywords:
chronic disease; family; health-related quality of life; quality of life; sibling relations
Authors: Taylor R House; Abby R Rosenberg; Cortney T Zimmerman; Krysta S Barton; Aaron Wightman Journal: Pediatr Nephrol Date: 2022-02-18 Impact factor: 3.651