Literature DB >> 32633029

Optimizing health literacy to facilitate reproductive health decision-making in adolescent and young adults with cancer.

Leena Nahata1,2, Antoinette Anazodo3,4,5, Brooke Cherven6,7, Shanna Logan5, Lillian R Meacham6,7, Cathy D Meade8, Sara Zarnegar-Lumley9, Gwendolyn P Quinn10.   

Abstract

Despite being considered "standard of care" by many organizations, fertility and reproductive health communications and counseling practices remain inconsistent for adolescents and young adults (AYAs) newly diagnosed with cancer and during survivorship. One factor known to affect how information is provided and received in the medical setting is health literacy. Providers should consider health literacy to optimize reproductive health communication with AYAs as they cope with their diagnosis, understand what it means for their future, process information about treatment options, learn about their potential harmful effects on fertility, make quick decisions about fertility preservation, and navigate a future family planning course. Thus, the objectives of this manuscript are to (a) summarize literature on reproductive health literacy; (b) describe health literacy frameworks; (c) examine ways to assess health literacy; and (d) identify ways to enhance clinician-patient communication in the AYA oncofertility setting.
© 2020 Wiley Periodicals LLC.

Entities:  

Keywords:  adolescents; cancer; health literacy; reproductive health; young adults

Year:  2020        PMID: 32633029      PMCID: PMC7785658          DOI: 10.1002/pbc.28476

Source DB:  PubMed          Journal:  Pediatr Blood Cancer        ISSN: 1545-5009            Impact factor:   3.167


  86 in total

1.  Smoking media literacy in Vietnamese adolescents.

Authors:  Randy M Page; Nguyen T Huong; Hoang K Chi; Truong Q Tien
Journal:  J Sch Health       Date:  2011-01       Impact factor: 2.118

2.  Oncologists' use of patient educational materials about cancer and fertility preservation.

Authors:  Gwendolyn P Quinn; Susan T Vadaparampil; Teri Malo; Joyce Reinecke; Bethanne Bower; Terrance Albrecht; Marla L Clayman
Journal:  Psychooncology       Date:  2011-07-14       Impact factor: 3.894

3.  Attitudes regarding fertility preservation in female adolescent cancer patients.

Authors:  Karen C Burns; Christian Boudreau; Julie A Panepinto
Journal:  J Pediatr Hematol Oncol       Date:  2006-06       Impact factor: 1.289

4.  Health literacy and adolescents: a framework and agenda for future research.

Authors:  Jennifer A Manganello
Journal:  Health Educ Res       Date:  2007-11-17

5.  Clinician-patient-family decision-making and health literacy in adolescents and young adults with cancer and their families: A systematic review of qualitative studies.

Authors:  Danielle Gessler; Ilona Juraskova; Ursula M Sansom-Daly; Heather L Shepherd; Pandora Patterson; Danielle Marie Muscat
Journal:  Psychooncology       Date:  2019-06-06       Impact factor: 3.894

6.  Recruiting families and children newly diagnosed with cancer for behavioral research: Important considerations and successful strategies.

Authors:  Taylor L Morgan; Olivia E Clark; Stacy Whiteside; Anthony Audino; Nicholas D Yeager; James L Klosky; Sarah H O'Brien; Gwendolyn P Quinn; Cynthia A Gerhardt; Leena Nahata
Journal:  Psychooncology       Date:  2019-02-15       Impact factor: 3.894

7.  Quality cancer care for adolescents and young adults: a position statement.

Authors:  Brad Zebrack; Beth Mathews-Bradshaw; Stuart Siegel
Journal:  J Clin Oncol       Date:  2010-09-20       Impact factor: 44.544

8.  Perceptions of Infertility Risks Among Female Pediatric Cancer Survivors Following Gonadotoxic Therapy.

Authors:  Jordan Gilleland Marchak; Swati V Elchuri; Kristen Vangile; Karen Wasilewski-Masker; Ann C Mertens; Lillian R Meacham
Journal:  J Pediatr Hematol Oncol       Date:  2015-07       Impact factor: 1.289

9.  Fertility as a priority among at-risk adolescent males newly diagnosed with cancer and their parents.

Authors:  James L Klosky; Jessica L Simmons; Kathryn M Russell; Rebecca H Foster; Gina M Sabbatini; Kristin E Canavera; Jason R Hodges; Leslie R Schover; Michael J McDermott
Journal:  Support Care Cancer       Date:  2014-08-02       Impact factor: 3.603

Review 10.  Distress and adjustment among adolescents and young adults with cancer: an empirical and conceptual review.

Authors:  Ursula M Sansom-Daly; Claire E Wakefield
Journal:  Transl Pediatr       Date:  2013-10
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  3 in total

1.  Cancer-Related Decision-Making Among Adolescents, Young Adults, Caregivers, and Oncology Providers.

Authors:  Katie Darabos; Allison J Berger; Lamia P Barakat; Lisa A Schwartz
Journal:  Qual Health Res       Date:  2021-08-12

Review 2.  Reproductive health risks and clinician practices with gender diverse adolescents and young adults.

Authors:  Gwendolyn P Quinn; Amy C Tishelman; Diane Chen; Leena Nahata
Journal:  Andrology       Date:  2021-05-24       Impact factor: 3.842

3.  Evaluation of a Mobile Health App Offering Fertility Information to Male Patients With Cancer: Usability Study.

Authors:  Eden Noah Gelgoot; Katya Kruglova; Peter Chan; Kirk Lo; Zeev Rosberger; Philippa Chown; Jordana Kazdan; Siobhan Bernadette Laura O'Connell; Phyllis Zelkowitz
Journal:  JMIR Cancer       Date:  2022-05-04
  3 in total

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