Literature DB >> 32631471

Whole Person, Whole Journey: Developing a Person-Centred Regional Dementia Strategy.

Paul Stolee1, Jessica Ashbourne1, Jacobi Elliott1, Sarah Main1, Nicole Holland1, Cole Edick1, Courtney Ropp1, Catherine Tong1, Sheila Bodemer1.   

Abstract

We present the development of a regional dementia strategy in Southwestern Ontario, Canada. We worked with stakeholders in a regional health authority to develop a dementia strategy. We conducted interviews with persons with dementia and their care partners (n = 26) and health care administrators and policy makers (n = 33); and administered a priority-setting survey (n = 64). Both participant groups identified provider compassion, professionalism, and care in the early stages of dementia as system strengths. Both groups also highlighted a need for more integration and coordination, a need for more person-centred care, support for care partners, and more flexibility in the provision and receipt of services. The highest-ranked priorities were improving care partner support, improving access to care, and improving system-wide quality. We integrate these strengths, needs, and priorities in a strategic framework, "Whole Person, Whole Journey". Organizations developing a dementia strategy may use this framework as a springboard for their own work.

Entities:  

Keywords:  aging; care partners; dementia strategy; dyad interviews; enquête sur les priorités; entretiens en dyade; partenaires de soins; personnes atteintes de démence; persons with dementia; priority survey; qualitative research; recherche qualitative; stratégie en matière de démence; vieillissement

Year:  2020        PMID: 32631471     DOI: 10.1017/S071498082000015X

Source DB:  PubMed          Journal:  Can J Aging        ISSN: 0714-9808


  1 in total

Review 1.  The use of formal care for dementia from a professional perspective: a scoping review.

Authors:  Stefanie Bergmann; Julia Peper; Anja Bieber
Journal:  BMC Health Serv Res       Date:  2022-06-25       Impact factor: 2.908

  1 in total

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