Literature DB >> 32617272

Assessment tools to evaluate Activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL) in older adults: A systematic review.

Marzieh Pashmdarfard1, Akram Azad1.   

Abstract

Background: Given the increasing population of older adults in different societies, it is important to take into account the needs of them. In this regard, the most important things that are closely related to their quality of life are their ability in evaluating Activity of Daily Living (ADL) and Instrumental Activity of Daily Living (IADL) performances. The aims of the present study were to identify the outcome measures specific to the ADL and IADL for older adults and to investigate the psychometric properties of these measures.
Methods: This is a systematic review done on the articles published between June 2019 and February 2019. Articles in English language from these database included: Medline, PubMed, Google Scholar, CINAHL, OVID Medline, Cochrane, ProQuest, Up to Date, Web of Science, OT search, OT direct, Pedro, SID, Magiran, Iran Medex, MEDLIB and Iran doc. English keywords included: "Activity of Daily Living (ADL)", "Instrumental Activity of Daily Living (IADL)", "assessment", "evaluation", "aging", "ageing", "older adults", "elders", "Basic Activity of Daily Living (BADL)", "Advanced Activity of Daily Living (AADL)", "basic functions", "self-care", "mobility", "independency", "dependency", "occupational therapy", "physical therapy", "rehabilitation". The Consensusbased Standards for the selection of health Measurement Instruments (COSMIN) checklist were employed to investigate the psychometric properties of the studies.
Results: Of the initial 482 studies considered, 13 studies met the inclusion criteria that assess the ADL and IADL performance of older adults. In this regard, 8 outcome measures were found especially for ADL assessment and 5 for IADL assessment.
Conclusion: Most of the assessment tools are performance-based and have been developed in especial contexts and especial groups of older adults. Some have been used frequently in different contexts but some were used less than others. None of these measures has been developed in Iran. So, for better assessment and having better intervention plans for older adults in Iran, it is suggested to develop an instrument that is especially designed for Iranian context.
© 2020 Iran University of Medical Sciences.

Entities:  

Keywords:  Elderly; Evaluative; Everyday life; Review

Year:  2020        PMID: 32617272      PMCID: PMC7320974          DOI: 10.34171/mjiri.34.33

Source DB:  PubMed          Journal:  Med J Islam Repub Iran        ISSN: 1016-1430


↑ What is “already known” in this topic:

Assessment tools for evaluating Activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL) are very important. These instruments are developed in especial context and especial community. Given the increase in the number of the ageing population, it is important to identify the barriers and performance problems of this community by these tools.

→ What this article adds:

This artic introduces 8 assessment tools for assessing ADL and 5 assessment tools for IADL of elderly people. These tools were not specific to Iranian culture and were not designed in Iran. Therefore, it is better to have a step towards developing a suitable tool for assessing ADL and IADLs in Iranian elderly.

Introduction

Aging refers to the process of becoming older, which occurs during a series of changes over time such as physical, mental and social changes (1). Aging is one of the greatest known causes for many human diseases (2). According to the United Nation’s (UN) population estimates, the world's population over 65 will reach 2 billion in 2050 (28%) in the world. Concerning the population growth within recent decades, the country's future will be an aging population (1). 30% of people aged 75-79 and 40% of people aged 85 and over have at least one disability from a specific disease, such as stroke, Parkinson's disease (1, 3). Therefore, health and rehabilitation systems in the country should take into account the projections and plans necessary to improve the quality of life of this group, especially rehabilitation services to improve the performance of everyday life activities. Successful performance in activities of daily living to have an independent life is essential for every age (4). According to the definitions of medical and rehabilitation texts, the Activities of Daily Living (ADL) and Instrumental Activities of Daily Living (IADL) are described as follows: The ADL refers to activities oriented toward taking care of one’s own body. These activities are fundamental to living in a social world; they enable basic survival and well-being, such as bathing, toileting, dressing and eating (5). The IADL refers to activities to support daily life within the home and community that often require more complex interactions than those used in ADLs. Examples of such activities include financial management, housekeeping, shopping for groceries, making telephone calls, and taking medication (5). The ADL and IADL functions are important to older adults, and IADL autonomy plays an important role in “successful” aging (6). Older adults experience ADL and IADL disabilities through two pathways: 1) a catastrophic event, such as a hip fracture, or 2) progressive decline in the brain functions (7). Doing day-to-day functions, especially IADLs, has a significant correlation with executive functions such as planning, working memory, attention, problem solving, verbal reasoning and mental flexibility (8, 9). Successful performance in ADL and IADLs are significant health indicators that can predict mild cognitive impairments, dementia, and mortality in older adults (10, 11). To have a comprehensive planning for the older adults to be independent in ADL and IADLs, the rehabilitation specialists, aging medicine and nursing rehabilitation specialists should have an accurate understanding of all types of effective measures of ADL and IADL in older adults. Therefore, the purpose of this study was to review the assessment tools of ADL and IADL functions in older adults to have a common language between rehabilitation specialists, aging medicine and nursing rehabilitation specialists. PRISMA flow chart of the study selection process

Methods

Search Strategy

The present study is a systematic review that aims to explore a variety of assessment tools of ADL and IADL in older adults regardless of time limitations. For data gathering, two researchers (a Librarian and an Occupational Therapist who is working in the field of aging) searched the articles based on keywords and English and Persian database sources individually. English and Persian Electronic databases include Medlin, PubMed, Google scholar, CINAHL, OVID Medline, Cochrane, ProQuest, Up to Date, Web of Science, OT search, OT direct, Pedro, SID, MagIran, Iran Medex, MEDLIB and Iran doc.

Search Terms

The English keywords used individually or in combination (according to the MeSH) were as follows: “Activity of Daily Living (ADL)”, “Instrumental Activity of Daily Living (IADL)”, “assessment”, “evaluation”, “aging”, “ageing”, “older adults”, “elders”, “Basic Activity of Daily Living (BADL)”, “Advanced Activity of Daily Living (AADL)”, “basic functions”, “self-care”, “mobility”, “independency”, “dependency”, “occupational therapy”, “physical therapy”, “rehabilitation”. The search strategy is seen in Table 1.
Table 1

Search strategy for different database

Database Search strategy
1Medline (exp ACTIVITIES OF DAILY LIVING (ADL)) AND(exp AGING OR exp ASSESSMENT) (exp INSTRUMENTAL ACTIVITIES OF DAILY LIVING (IADL) ) AND (exp AGING, OR ASSESSMENT)1 (exp CHILDREN) AND (exp SOCIAL PARTICIPATION) (1 AND 2) OR (1 AND 3) – limited to human, and English and no limitation in year. (inclusive)
2Psychinfo (exp Activities of Daily Living (ADL)) AND (exp Aging OR exp Ageing OR exp Assessment OR exp older adults OR exp elders OR exp ADL) (exp aging OR exp Instrumental Activities of Daily Living (IADL) ) AND (exp aging OR exp older adilts) (exp aging OR exp ADL) AND (exp “IADL (activity)”) (1 AND 2) OR (1 AND 3) – limited to human, and English and no limitation in year. (inclusive)
3Cinahl (exp AGING) AND(exp ACTIVITIES OF DAILY LIVING(ADL) OR exp INSTRUMENTAL ACTIVITIES OF DAILY LIVING(IADL) OR exp ASSESSMENT) (exp AGING) AND (exp ADL, IADL OR exp ACTIVITIES OR exp ASSESSMENT TOOLS) (exp ADVANCED ADL) AND (exp OLDER ADULTS) (1 AND 2) OR (1 AND 3) – limited to research and no limited in years (Inclusive)
4Embase (‘AGING/exp OR AGEING OR (AGING AND (AGEING/exp OR ELDERS))) AND (ADL/exp OR IADL) AND (ASSESSMENT) ('AGING/exp OR AGIENG) AND ('occupational therapy'/exp OR 'occupational therapy' OR (occupational AND ('therapy'/exp OR therapy))) AND (ASSESSMENT) ('AGONG /exp OR ‘ELDERS’OR (older AND (ADULT/exp OR elder))) AND ('ADL'/exp OR IADL) AND (ASSESSMENT) ('daily life activity'/exp OR 'instrumental daily life activity') AND ('Aging /exp OR ‘ageing’ OR (older AND (elder/exp OR older adults))) AND (assessment) (1 AND 2) OR (1 AND 3) – limited to research and no limited in years.
5Google scholar and other resource"Activities of Daily Living (ADL)" AND ("Instrumental Activities of Daily Living (IADL) " OR "aging" OR " older adults" OR "elders") AND (“Assessment” or scale or evaluation)- No limitation in years.

Study selection and data extraction

All selected articles were assessed by two independent reviewers based on inclusion and exclusion criteria. The inclusion criteria included the articles on assessment tools of ADL and IADL in older adults, and having access to the abstract or full text of the articles. The exclusion criteria were the articles in other than Persian and English language, and the articles on younger populations. Disagreements between reviewers about the articles were resolved by consensus. If consensus was not reached the final decision was made by a third independent reviewer.

Results

Based on the definitions given in medical and rehabilitation texts, ADL and IADL were differentiated from each other (5, 7). The assessment tools for ADL and IADL of older adults categorized into two groups of ADL assessment tools and IADL assessment tools. Figure 1 shows the PRISMA flow diagram for the studies included in the present review (12). Of the initial 482 studies considered, 13 studies met the inclusion criteria, which assess the ADL and IADL performance of older adults. In this regard, 8 outcome measures were especially for ADL assessment and 5 were especially for IADL assessment. The characteristics of the studies were presented in Table 2.
Fig. 1
Table 2

Characteristics of included measures

PROM* (reference to first article) Target population Mode of administration (e.g. self ‐ report, interview ‐ based, parent/proxy Report etc.) Recall period Sub/scales, Number of items Range of scores/scoring Original language Available translations
Barthel Index (BI) Mahoney & Barthel (1995) Stroke,other neuromuscular, musculoskeletal disorders,oncology patientsSelf-report, direct observation.Self-report: 2-5 minutes ;direct observation: 20 minutes,also according to patient’s abilities and tolerance10 activities related to Basic ADL0 (maximum disability and dependency) to 20 (maximum strength and independence)EnglishPortuguese, British, Dutch, German, Taiwanese, Turkish, Chinese (Hong Kong),Persian.
Katz Index of Independence in Activities of Daily Living (ADL) Katz et al (1959) Older adults in the community and all care settings Self-report, direct observation. Self-report: 2-5 minutes; direct observation: 20 minutes,also according to patient’s abilities and tolerance 6 Basic ADL function Total score: between 6 (maximum performance) and 0 (lack of performance). Also: score of 6 (full function), 4 (moderate impairment), and 2 or less (severe functional impairment). American (English) Brazilian, Turkish, Swedish, Persian
Functional Independence Measure (FIM) Instrument American Academy of Physical Medicine and Rehabilitation & American Congress of Rehabilitation Medicine Keith et al (1987) Stroke, TBI, SCI, MS, elderly individuals undergoing inpatient rehabilitation, children as young as 7 years old Performance based (direct observation of the evaluated function) It take between 30-45 minutes to administer and score, with 7 minutes to gather demographic information. 18 items that evaluate 6 functional areas, The 13 items are named as Motor-FIM and its 5 items are named as Cognitive-FIM Each item is scored on a 7-point Likert scale, and the score indicates the amount of assistance required to perform each item (1=total assistance in all areas, 7=total independence in all areas). A final summed score is created and ranges from 18–126 (18 represents complete dependence/total assistance, 126 represents complete independence). English German, Italian,Spanish, Swedish, Finnish, Portuguese, African, Turkish, French,Persian
Activities of Daily Living (ADL) Profile Dutil et al (1990) TBI, Stroke Performance-based evaluation (direct observation of the evaluated function), and semi-structured interviews with the person or other people (individual's caregivers) 30-60 minutes.When administered in preparation for discharge from a rehabilitation hospital up to 7 hours may be required. Assesses the ADL function of in three personal environments (with 6 items), Home (with 5 items), and the Community (with 9 items). 0 (full independency) to 3 (full dependency) Canadian Canadian,French
Activities of Daily Living Questionnaire (ADLQ) Johnson et al (2004) Individual with cognitive impairment,especially Alzheimer Informant-based 5-10 minutes 6 areas 0 (no problem) to 3 (need help for completion and long-term) English American, Chinese, Spanish, Brazilian, Chilean
Australian Therapy Outcome Measures (AusTOMs) Perry et al (2004) Client profiles and patterns of services provision across health care settingsPerformance-based evaluation toolNot mentionedThere are 6 speech pathology scales, 9 physiotherapy scales and 12 occupational therapy scales.0 (sever impairment, complete difficulty) to 5 (no impairment, no difficulty)AustralianEnglish,Swedish
Melbourne Low-Vision ADL Index (MLVAI) Haymes et al (200 1) Individuals with visual impairment Performance-based evaluation tool (desk based clinical assessment) Not mentioned Consisting 18 observational items in the field of ADL functions, and 9 items for self-care activities Scoring for each item is based on independency, speed and accuracy of performance on a five descriptive Likert scale (0-4) English English
Self-Assessment Parkinson's disease Disability Scale (SPDDS) Brown (1989) Parkinson Self-report (paper-pencil) 5 minutes 24 items that assess the ADL performance 5 (ability to do work alone and without difficulty) to 1 (unable to do activity) English English,Serbian
Frenchay Activities Index (FAI) Holbrook & Skilbeck (1983) Stroke Interview 5 minutes 15 items that cover three areas of domestic chores Work/Leisure, and Outdoor activities. 1 (lowest level of activity) to 4 (highest level of activity) English English,Chinese,Dutch
Activities of Daily Living (IADL) Profile Instrumental Bottar et al (2010) TBI Performance-based evaluation (direct observation of the evaluated function), and semi-structured interviews with the person or other people (individual's caregivers 30 -60 minutes 29 items in 8 areas 0 (full independency) to 3 (full dependency) English Canadian
Lawton Instrumental Activities of Daily Living Scale (LIADL) Lawton and Brody (1969) Older adults but isn’t useful for institutionalized older adults Self-report 10-15 minutes 8 activities related to IADL Scoring scale is zero and one. Sum of the scores is varied from 0 (low function, dependence) to 8 (high function, independence) English Spanish, Malay , Korean, Persian
Performance Assessment of Self-care Skills (PASS) Rogers & Holm (1988) Adolescence through old ageThis tool is a criterion reference, client reference, performance-based and observational 26 tasks contain: 5 functional mobility (MOB), 3 (ADL), 14 IADL with a cognitive emphasis (C-IADL), 4 IADL with a physical emphasis (P-IADL). 4 point (0-3) ordinal scale. English EnglishPersian
Texas Functional Living Scale (TFLS) Cullum (2001) Older adults, especially older adults with cognitive impairments, particular Alzheimer'sPerformance-based15-20 minutes24 items in 4 areas of: Time, Money, Calculation, Communication. Scores range from 0 to 5 for each activity with a maximum possible score of 52. Total scores and cumulative percentages are recorded for each of the 4 subscales and an overall T-score is calculated for the entire test. Higher scores are suggestive of better IADL functioning.EnglishOnly American version of this tool is available

Results of the measurement properties

The risk of bias COSMIN checklist was used to investigate the psychometric properties of the measures. This standard can be used either to assess the methodological quality of a study or to compare the properties of various measurement instruments in a systematic review, which was done by two independent reviewers (13). In this study, the measurement properties are divided into two domains: reliability and validity. Concerning the psychometric properties proposed by Terwee et al (14) each issue was rated as positive ‘+’ (adequate description or value or measure or argument related to the psychometric property), negative ‘–’ (inadequate or values below the accepted standards for the psychometric property), indeterminate ‘?’ (Doubtful methods or measures or design) or absent ‘0’ (no information available about the psychometric property). The results of psychometric properties of measures are presented in Table 3.
Table 3

Psychometric properties of measures

PROM (ref) Country/ Language Study popul a tion/ No. Validity Reliability
Face Content Construct Criterion Test-retest [ICC] Internal consistency [Cronbach’s alpha] Inter-rater [Kappa/ICC] Intra-rater
Barthel Index (BI) England (British) (original version) Stroke/ 258 + 0 Factor analysis co n firmed that it is measu r ing a single domain ( +) ? 0 Excellent [0.90] ( +) Excellent agreement for total score (in 15 stroke) [k=0.63-0.85] 0
Brazil (Portuguese) Stroke/ 57 + - - 0 0 0 Good agreement for total score [k=0.70] 0
Netherland (Dutch) Stroke/ 60 + ? Factor analysis co n firmed that it is measu r ing a single domain ( +) 0 ? Excellent [0.96 ] ( +) Excellent agreement for total score [K=0.88 ] ( +) Excellent agreement for individual items [K=0.82]. (+) 0
Germany (German) Stroke/ 72 + 0 0 0 0 0 Excellent agreement for total score [k=0.93] 0
Barthel Index (BI) USA (American) Older adults in a variety of care settings 0 ? 0 Convergent or Concurrent Validity: High correlation (0.95) between the Activity index and the Katz index. (+) 0 0 0 0
Katz Index of Independence in Activities of Daily Living (ADL)
Brazil (Portuguese) Older adults/ 650 0 0 In factor analysis, only one factor was extracted (named independence to ADL) and other factors were confirmed. (+) 0 Excellent [0.978] (+) Good [>0.70 ] ( +) ? 0
Turkey (Turkish) Older adults/ 211 0 0 Exploratory Factor Analysis high factor loading were obtained for items bathing, dressing, toileting and tran s ferring. Maintaining cont i nence and feeding correlated less with other items and the total scale. (+) Convergent Validity: Strong associations b e tween Katz ADL, BI and SF-36 PF [r=0.988, p<0.001 and r=0.674, p<0.001 ] ( +) [1.000] (+) Good [0.838 ] ( +) Excellent ICC=0.999 (+) 0
Iran (Persian) Stroke/ 87 0 ? Factor analysis of the Persian Katz Index indicated two factors including Motion (bathing, toileting, and tran s ferring) and Self-care (dres s ing, bowel & bladder control, and feeding). (+) Criterion Validity: Excellent correlation with Persian KI and BI. (ρ=0.92, p<0.001). Also, an Excellent (ρ=0.93) and High (ρ=0.88) corr e lations between the Pe r sian KI with self-care and motion scores of BI. (+) 0 Good [0.79 ] ( +) [ICC 2.1 =0.93, p<0.001] (+) [ICC 2,1 =0.83, p<0.001] (+)
Functional Independence Measure (FIM) Instr u ment English Stroke /? 0 + Construct validity was a s sessed by examining the FIM scores of 11,102 patients upon their entering and lea v ing a rehabilitation facility. Results showed that there was significant discrimin a tion between admission and discharge, in the expected direction (p<0.001 ) ( +) Moderate to High co n current validity of the FIM with other measures has been reported, i n cluding correlation with the Barthel Index (r=0.84), Katz’s Index of ADL (r=0.68), and Spitzer’s Quality of Life Index (r=0.45) (+) 0 0 High [ICC: mean of 0.92] (+) 0
Functional Independence Measure (FIM) Instrument Germany (German) Stroke/ 48 0 + 0 Convergent Validity: Strong correlation with Katz ADL, BI [r=0.97, p<0.001 and r=0.69, p<0.001 ] ( +) 0 Excellent [0.95 ] ( +) 0 0
Italy (Italian) SCL/ 103 ? + 0 Validity of i-SCIM3 was confirmed by the close correlation with FIM results both at admission and di s charge (r=0.91, p<0.01 ) ( +) Excellent [0.99 ] ( +) Excellent [0.91 ] ( +) [K>89%] 0
Spain (Spanish) SCI/ 64 0 + 0 Convergent Validity: Validity of Spanish version of FIM was confirmed by the close correlation with FIM (r=0.94, p<0.0001) (+) Excellent [>0.97 ] ( +) Excellent [0.93 ] ( +) [K>0.90] 0
Sowed (Swedish) Stroke/ 52 0 - ? 0 Good [0.89 ] ( +) Excellent [0.91] (+) [ICC 2.1 =0.90, p<0.001] (+) 0
Brazil (Portuguese) Stroke/ 61 0 + ? 0 Good [0.89 ] ( +) 0 0.51<K<0.90 (+) ?
Finland (Finish) Stroke/ 65 0 ؟ 0 ? ? Excellent [0.93] (+) [CC 2.1 =0.92, p<0.001] 0
Africa (African) Stroke/ 44 0 + 0 Convergent Validity: Validity of African version of FIM was confirmed by the close correlation with FIM (r=0.90, p<0.0001) Excellent [0.98 ] ( +) 0 [K=0.64 (0.55–0.71)] (+) 0
Turkey (Turkish) consecutive Stroke/ 51, SCI/ 62 0 ? Construct validity showed e x pected associations with the impairment scales. (+) Convergent validity: In the SCI group, total and subscale scores of motor FIM were significantly related to the ASIA Impairment (Kruskal-Wallis test, p<0.05). No correlation was observed between cognitive FIM and ASIA Motor/sensory scores in stroke group. (+) Excellent ICC for motor FIM was= 0.90 and for cognitive FIM was=0.98 in SCI, and for motor FIM was=0.93 and for cogn i tive FIM was=0.92 in stroke ( +) Excellent [0.934 for motor FIM 0.983 for cognitive FIM] (+) k>0.48 for SCI and K>0.44 for Stroke 0
France (French) consecutive Stroke/ 127 0 0 First factor corresponded to mobility and locomotion items (sub-scores 3 and 4); the second factor corresponded to cognitive items (sub scores 5 and 6); the third factor corresponded to the first sub-score (self-care); and the fourth factor was explained by the main contribution of sphin c ter items (sub score 2). (+) 0 0 Excellent [0.93 ] ( +) 0 0
Functional I n dependence Measure (FIM) Instrument Iran (Persian) Stroke/ 40 ? ? Construct validity was supported by a significant Pearson correlation between the PFIM and the Persian Barthel Index (r = 0.95; p < 0.001) (+) 0 ? Good to Excellent [0.70< <0.96 ] ( +) Excellent [ICC=0.88-0.98] (+) 0
Activities of Daily Living (ADL) Profile Canada (Canadian) Stroke / ? - + Significant correlations between 5 tasks of the ADL Profile related to personal care and corresponding tasks of the Functional Independence Measure (Kendall’s tau-c=0.40-0.73; p<0.001 ). (+) 0 0 0 0 0
France (French) Stroke / ? 0 0 0 0 0 0 Adequate [k=0.58-0.68 ] ( +) 0
Activities of Daily Living Questionnaire (ADLQ) USA (American) Alzheimer / 140 0 ? 0 Concurrent Validity: It is high with other measures of temporal decline in patients with probable Alzheimer disease and other forms of dementia. (+) ADLQ has high test-retest reliability and is consistent with other measures of temporal decline in patients with Alzheimer disease and other forms of deme n tia. [r=0.16; p=0.40 ] ( +) Good [0.86 ] ( +) 0 0
China (Chinese) Community-dwelling ind i viduals with Dementia/ 125 ? ? Factor analysis yielded 6 factors Convergent Validity: Significant negative correlation between the total score of the ADLQCV and the CDAD total score (r=−0.917, p<0.001). (+) Excellent [0.998 ] ( +) Good [0.81 ] ( +) Excellent [ICC=0.997] ?
Spain (Spanish) Dementia/ 40 0 0 Factor analysis was indica t ed 6 factors. (+) Concurrent Validity: Significant correlations with CDR and FAQ, both p<0.001). (+) 0 Good [0.88 ] ( +) 0 0
Brazil (Brazilian) Alzheimer/ 60 0 + 6 factors were extracted as expected like the original measurements. (+) Inversely significant correlation (-0.793) at the 5% level between the instruments used in the data collection, which explains the 62% total variance. (+) 0 Good [0.759 ] ( +) 0 0
Chile (Chilean) Dementia/ 31 ? + 0 Convergent Validity: ADLQ exhibits significant correlations (p<0,0001) with other ratings for functional capacity, measurements for dementia severity and global cognitive efficiency tests. (+) 0 Good [0.802 ] ( +) 0 0
Australian Therapy Ou t come Measures (AusTOMs) Australia (English) ? + - 0 0 Good to Excellent [0.616-0.960 ] ( +) 0 Moderate to very High [ICC=0.531-0.922 ] ( +) [ICC=0.675-1.000 ] ( +)
Sowed (Swedish) ? 0 0 0 0 Good to Excellent [0.705 to 0.920 ] ( +) 0 [ICC=0.762-0.904] (+) [ICC≥0.745] (+)
Melbourne Low-V i sion ADL I n dex (MLVAI) Australia (English) Visual impai r ment / 122 - + ? Convergent Validity: M oderately to high correlation with vision impairment (r=-0.68, P<0.001) (+) Good [0.88 ] ( +) Excellent [0.94 ] ( +) High [ICC=0.95 ] ( +) 0
Self-Assessment Parkinson's disease Disability Scale (SPDDS) England (English) Parkinson's / 66 - + 0 - 0 0 Complete agreement varied from 41% (picking up an object from the floor) to 71% (ma k ing a cup of tea, and inser t ing and remo v ing an electr i cal plug). The average was 60% for the whole scale (+) 0
Serbia (Serbian) Parkinson's/ 114 + + According to the ROC curve, 70% of the total area was under curve. (+) 0 Kendall’s concordance coefficient was =0.994 (+) Excellent [0.984 ] ( +) 0 0
Frenchay Activities Index (FAI) England (English) Stroke/ 60 - + 0 0 - - Kappa statistic showed r =0.93, p<0.001 ) ( +) 0
China (Chinese) Stroke/ 52 0 0 0 0 ? Kendall tauB correlation b e tween the two sumscores was 0.72 (ICC=0.63 to 0.81) (+) 0 Weighted kappa varied between 0.36 and 0.89 (+)
Netherland (Dutch) nonstock pop u lations/ 602 0 0 0 ? Good (in 57 people) [r=5.96 ] ( +) Excellent [0.91 ] ( +) ? 91% of kappa coefficients showed almost perfect intra-rater agreement. (+)
Activities of Daily Living (IADL) Profile Instrume n tal Canadian Moderate or severe TBI (16-65 years old)/ 30 - + 0 0 0 ? Comparing ratings of four raters, 95% of kappa coeff i cients indicated moderate to almost perfect agreement. (+) 94% of kappa coefficients showed almost perfect intra-rater agreement. (+)
Lawton Instrumental Activities of Daily Living Scale Spain (Spanish) patients aged 65 or over who suffered an accidental fall with a hip or wrist fracture as a result/ 1,965 0 ? Confirmatory Factor Anal y sis confirmed the homog e neity of the construct valid i ty ( +) Convergent Validity: For all correlation coefficients were >0. 40 ( +) - Excellent [0.94] 0 0
Malaysia (Malay) Older adults/ 65 + + - 0 Excellent [r=0.950, p<0.001 ] ( +) Good [0.838 ] ( +) Excellent [r=0.957, p<0.001] (+) 0
Korea (Korean), Older adults/ 65 + + 0 0 [0.90 (p=0.00)] (+) Excellent [>0.90] (+) High agre e ments for all 8 items [0.75 ∼ 1.00] (+) -
Iran (Persian) Dementia/ 60 + + Construct Validity: Significant negative rel a tionship between the parti c ipants’ score in IADL and FAST (p<0.001 ) ( +) - High [0.988-0.996] (+) Between items and total score [0.606>r>0.427] had almost an average power. (+) High [r=0.961, p<0.001 ] ( +) ?
Performance Asses s ment of Self-care Skills (PASS) USA (English) Older adults/ - + + - 0 0 0 0 0
Iran (Persian) Parkinson's/ 50 + + ? Rate of agreement: Significant agreement (P=95%) between the scores of 5 specialists in all 3 aspects of independence (X2=5.83, DF=4), safety (X2=5.44, DF=4), and outcome (X2=2.45, DF=4 ) ( +) High reliability < Pearson correlation coefficient for test-retest results was 93%, 91%, and 91% for independence, safety, and outcome respectively (P=0.01 ) ( +) 0 0 0
Texas Functio n al Living Scale (TFLS) USA (English) Older adults with cognitive impairments, in particular Alzheimer's/ 21 0 0 0 Convergent Validity: Strong correlation between TFLE with Mini-Mental State Examination (r=0.92 ) ( +) High [r>0.93, p<0.001]. (+) Excellent [0.92 ] ( +) 0 0

Abbreviations: ‘+’: Adequate description or value or measure or argument related to the psychometric property, ‘–’: Inadequate or values below the accepted standards for the psychometric property, ‘?’: Doubtful methods or measures or design or absent, ‘0’: No information available about the psychometric property. ICC: Intraclass Correlation Coefficient, K: Kappa, GFI: Goodness of Fit Index, SCI: Spinal Cord Injury, SCL: Spinal Cord Lesion, PD: Parkinson's disease, AD: Alzheimer Disease.

Abbreviations: ‘+’: Adequate description or value or measure or argument related to the psychometric property, ‘–’: Inadequate or values below the accepted standards for the psychometric property, ‘?’: Doubtful methods or measures or design or absent, ‘0’: No information available about the psychometric property. ICC: Intraclass Correlation Coefficient, K: Kappa, GFI: Goodness of Fit Index, SCI: Spinal Cord Injury, SCL: Spinal Cord Lesion, PD: Parkinson's disease, AD: Alzheimer Disease.

I. Activities of Daily Living (ADL) assessment tools

Barthel Index (BI): Mahoney and Barthel designed this tool in 1955 (15). This tool assesses 10 activities related to Basic ADL consisting: bowels, bladder, grooming, feeding, toilet use, transfer, mobility, dressing, stairs, and bathing. The estimated total score for each person varies from 0 (maximum disability and dependency) to 20 (maximum strength and independence). A total change of at least two points indicates a significant change in the degree of independence and dependence of the individual (16). This tool has been translated into Brazilian, British, Dutch, German, Taiwanese, Turkish, Chinese (Hong Kong) versions (17). Oveisgharan et al. (r2006) have validated the Persian version of Barthel Index in 459 stroke patients with a mean age 68.11 years. The correlation between the items was excellent (α=0.935) and the test-retest reliability after two weeks’ interval was excellent too (ICC=0.989) (18). Katz Index of Independence in Activities of Daily Living (ADL): Katz et al. developed this tool in 1959 (19, 20). This tool is designed to assess the Basic ADL function among older adults in the community and all care settings. The initial version of Katz Index included 8 Basic ADL skills, which adjusted finally to 6 Basic ADL including: bathing, dressing, transfer, toileting, feeding and continence (19). To score this tool, if an older adult is able to perform an activity, he/she gets score 1, and if he/she is unable to do so, will get score 0. The total score varies between 6 (maximum performance) and 0 (lack of performance). A score 6 indicates the full function, 4 indicates moderate impairment, and 2 or less indicates severe functional impairment (20). This tool has been translated into American, Brazilian, and Turkish versions (21-23). The Persian version of Katz Index has been validated by Azad et al. (2017) in 87 acute stroke patients aged 40-80 years. The internal consistency between the items was good (α=0.79) and the inter-rater reliability was reported excellent (ICC2.1=0.93, p<0.001, 95% CI: 0.89-0.95) (24). Functional Independence Measure (FIM): It was developed between 1984 and 1987 by the American Academy of Physical Medicine and Rehabilitation and the American Congress of Rehabilitation Medicine and Keith et al. published the final product in 1987. This tool consists of 18 items that evaluate 6 functional areas of the individual. The 13 items of this tool are named as Motor-FIM and its 5 items are named as Cognitive-FIM. Motor-FIM items of this tool is based on the Barthel Index items. This tool is useful for stroke patients in all age groups, and the use of this tool requires training and specialty courses under the supervision of trained people (25). This tool has been translated and validated in German, Italian, Spanish, Swedish, Finnish, Portuguese, African, Turkish, and French versions (26). The Persian version of this instrument has been validated by Naghdi et al. (2016) in 40 stroke patients with an average age of 60 years. The internal consistency of the items was good to excellent (0.70<α<0.96) and the inter-rater reliability has been reported excellent (ICC: 0.88-0.98) (27). Activities of Daily Living (ADL) Profile: This tool was designed by Dutil et al. in 1990 to evaluate the ADL of traumatic brain injuries. The ADL Profile is a criterion reference instrument consisting of 20 Items. The 17 items of this tool are based on performance-based evaluation (direct observation of the evaluated function), and 3 items are based on semi-structured interviews with the person or other people (individual's caregivers) and completed by a questionnaire. The tool assesses the ADL function in three personal environments (with 6 items in self-care dimensions), Home (with 5 items in the Home dimensions’ category), and the Community (with 9 items). The Scoring of this tool varies from 0 (full independency) to 3 (full dependency). It measures individual autonomy in ADL based on four executive performance skills including formulating the goal, planning, carrying out the task, and verifying the initial goal (28). This tool is available in both Canadian and French versions (29, 30). The validity and reliability of this tool have not been studied in Iran. Activities of Daily Living Questionnaire (ADLQ): This tool was developed by Johnson et al. in 2004 to evaluate the ADL performance of individual with cognitive impairment, especially Alzheimer's patients. This tool assesses the ADL performance of individuals with Alzheimer's in six areas of self-care, household care, employment and recreation, shopping and money, travel and communication. Each of the areas of this tool includes a set of activities that individuals or caregivers should answer to them. For scoring each item a 4-point scale from 0 (no problem) to 3 (need help for completion and long-term) is used. Also, there is a score of 9 in each question, which indicates that there is a lack of ability to do activity or not knowing the activity by the individuals. If the person is not familiar with the activity and has not done it in the past, the score of 9 is given to that task. The scoring and calculations of the questionnaire are available in the questionnaire. Individual independence ranges from 0 to 33% (impairment) to +67% (severe impairment) (31). This tool is available in versions of American, Chinese, Spanish, Brazilian and Chilean (31-35). The validity and reliability of this tool have not been studied in Iran. Australian Therapy Outcome Measures (AusTOMs): Perry et al. (2004) developed the tool for interdisciplinary use between the three rehabilitation teams of Occupational Therapy, Speech Therapy and Physiotherapy. The AusTOMs is a performance-based evaluation tool designed based on the International Classification of Functioning, Disability and Health (ICF) model, and the Occupational Therapy section includes 12 domains. This tool is available in both Australian and Swedish versions (36). The validity and reliability of this tool have not been studied in Iran. Melbourne Low-Vision ADL Index (MLVAI): Haymes et al. (2001) developed this tool. It evaluates the ADL performance of individuals with visual impairment. This tool is designed as a desk based clinical assessment and includes two areas: the first contains 18 observational items in the field of ADL functions, and the second includes 9 items for self-care activities. Scoring for each item is based on independence, speed, and accuracy of performance on a five descriptive Likert scale (4-0) (37). The Persian version of this tool is not available. Self-Assessment Parkinson's disease Disability Scale (SPDDS): This scale was developed by Brown in 1989 to evaluate the ADL performance of individuals with Parkinson's disease. This scale includes 24 items that assess the ADL performance of individuals with Parkinson's. The scoring scale for this tool is 5 points for each activity and varies from 5 (ability to do work alone and without difficulty) to 1 (unable to do activity) (38). This is available in two British and Serbian versions (38, 39). The Persian version of this scale is not available.

II. Instrumental Activities of Daily Living (IADL) assessment tools

Frenchay Activities Index (FAI): Holbrook and Skilbeck (1983) developed this tool. It evaluates the IADL of stroke patients. The original version of this tool consists of 15 items that cover three areas of domestic chores (items 1 to 5), work / leisure (items 7, 9, 11, 13, 15) and outdoor activities (items 1, 6, 8, 10, 12, 14). The score for each item is varied from 1 (lowest level of activity) to 4 (highest level of activity) so that the sum of the minimum points is equal to 15 and the sum of the maximum points is equal to 60 (40). This tool also has two modifications of 13 and 18 items, respectively, by the modified version of 13 items in 2003 by Tooth et al. and the 18-item version in 2004 by Miller et al. (41, 42). However, the original version of the questionnaire (15 items) is still used. This tool has been translated and verified in Canadian, Dutch, and Chinese versions (43-45). The Persian version of this tool is not available. Activities of Daily Living (IADL) Profile Instrumental: Bottar et al. (2010) developed this tool. This tool is actually an upgraded version of the ADL Profile, developed to evaluate the IADL performance of individuals that are closely related to the environmental performance. This tool includes 29 items in 8 areas: putting on outdoor clothes, going to the grocery store, shopping for groceries, preparing a hot meal for guests, having a meal with guests, cleaning up after a meal, getting information and making a budget. This tool is an ecological measure in relation to the degree of individual autonomy in doing activities in the community and at home. The Canadian version of this tool is available and for use requires the presence of workshops held by the developer (46). The Persian version of this tool is not available. Lawton Instrumental Activities of Daily Living Scale: Lawton and Brody (1969) to assess the independence of older adults in IADL performance developed this scale. This tool includes 8 activities: the ability to use a phone, shopping, meal preparation, housekeeping, laundry, the model of transportation, the responsibility for owns medication, and the ability to handle finance. The scoring scale is zero and one, and the sum of the scores is varied from 0 (low function, dependence) to 8 (high function, independence) (47). Given the items in this tool, women can answer up to 8 questions, but men do not need to answer 3 items related to: meal preparation, housekeeping, and laundry. However, recent studies suggest that it is better for men to respond to these items and questions, as these items together provide a good predictor of the independence and dependence of the older adult on IADL performance (48). This scale has been translated and validated in Australian, Spanish, Malay and Korean versions (49-53). This scale was also translated into Persian by Hassani Mehraban et al. (2014); the internal consistency of this questionnaire among the 60 patients with moderate dementia was (0.427 Performance Assessment of Self-care Skills (PASS): This tool is a criterion reference, client reference, performance-based and observational that was developed in 1988 by Rogers and Holm. This tool consists of 26 tasks and 163 sub-tasks. This tool assesses the IADL performance of individuals in four functional areas: functional mobility (including 5 items), Basic ADL (including 3 items), ADL function with an emphasis on physical performance (4 items), ADL function with an emphasis on cognitive function (14 items) (54). This tool has been translated into Persian by Taghizadeh et al. (2008) and its reliability has been evaluated in fifty 45-80 years old individuals with Parkinson’s (r=0.91, at P=0.01) (55). Texas Functional Living Scale (TFLS): Cullum (2001) developed this scale. The TFLS tool assesses the IADL performance of the older adults, especially older adults with cognitive impairments, in particular Alzheimer's. This scale is a performance-based scale that contains 24 items in 4 areas of: time, money, calculation, and communication. Only the American version of this tool is available (56). The Persian version of this tool is not available.

Discussion

Applying the right and proper assessment tools can help therapists achieve a suitable intervention plan. The purpose of this study is to identify the outcome measures specific to the ADL and IADL for older adults and to investigate the psychometric properties of these measures. Each of the above tools has some advantages and limitations that therapists and researchers must take into account to choose the right and proper assessment tools based on its clinical utility or research purpose. In the present study, Barthel, Katz, FIM, ADL profile, ADLQ, AusTOMs, MLVAI, and SPDDS tools were introduced as tools for assessing the ADL performance of older adults. Barthel, Katz and FIM tools have good psychometric properties to ADL function of older adults. Researchers report that the Katz questionnaire, given the shortness (number of items) and the general questions specific to the elderly living in the care centers, can be more effective for therapists than the other two scales (Barthel, FIM) in the elderly care centers (19, 20). On the other hand, translated versions of the two Barthel and FIM scales are more relevant to the Katz questionnaire, which indicates more use of this tool in assessing the ADL performance of older (17, 26). Laura Duffy (2013) in a study showed that the participants reported that Barthel's questionnaire was much easier to complete than the FIM questionnaire (17). Another point to consider is that, given the fact that FIM has used the 7-point Likert scale in scoring, it can report the difference between maximum independence and maximum dependence of individuals with more caution and accuracy (25). Among these three tolls the Katz and Barthel are free and don’t need any special training to use but FIM requires training and specialty courses under the supervision of trained people to use (15, 20, 25). The ADL profile and AusTOMs are performance-based tools, although these tools provide much more accurate information than other tools in relation to ADL performance of individuals, but the time duration for completing this assessment takes hours so it is perhaps more difficult for older adults and make them exhausted (28, 36), besides the AusTOMs tool is a tool developed for the Australian context (36), and it's better to be used in its context and culture. The ADLQ tool is a comprehensive tool for assessing the ADL performance of individuals with cognitive impairment, in particular Alzheimer's patients, and because it is available in Canadian (31), Chinese (32), Spanish (33), Brazilian (35) and Chilean (35) versions it indicate the high utilization of this tool in assessing the ADL performance of older adults with Alzheimer's. According to that, the psychometric properties of this tool in Iran have not been studied yet. It is suggested that the psychometric properties of this tool be studied in Iran to be used as a useful tool for assessing the ADL performance of older adults by therapists and researchers. Among the ADL assessment tools in older adults the MLVAI tool is specially developed for individuals with visual impairment, and since vision loss is one of the first symptoms in the aging process, this tool can be used to evaluate the ADL performance of older adults with visual impairment. However, given the fact that this tool is also a performance-based tool and requires training, it seems less satisfying than other assessment tools (37). The especial tool for assessing the ADL performance of older adults with Parkinson's disease, is the SPDDS tool, which is specific to the Parkinson's disease and is free and does not require any training (38). The psychometric properties of this scale have not been studied in Iran so it is recommended that the Persian version and the psychometric properties of this tool be studied in Iran.

II. Instrumental Activities of Dail y Living (IADL) assessment tools

In this study, FAI, IADL profile, Lawton, PASS and TFLS tools were reported. The FAI tool is developed specifically for patients with stroke and is usable to examine the progress of the IADL function of patients by 3 to 6 months after the stroke period; so it used in these patients frequently (40). As the Persian version of this tool is not available in Iran, it is suggested that the psychometric properties of this tool in Iran be studied. The IADL Profile questionnaire is an ADL profile modification that can be used for assessing both ADL and IADL performance of older adults. But the limiting factor for using this tool is the need for training courses that requires a fee (46). Among these tools, perhaps the most widely used available tool in the Persian version is the Lawton questionnaire, which evaluates 8 IADL performance in older adults (47, 48). An implausible point in using this tool in the context of Iran is the existence of a culture of domestic and out-of-home duties based on gender in Iran. Since some items in the Lawton questionnaire, such as meal preparation and laundry, are the tasks and responsibilities that are most often done by women, the lack of responsiveness to these questions by men leads to a reduction in their rating in the field of IADL performance and this is due to the fact that this reduction is due to cultural differences, not because of the inability to do those tasks. Therefore, it is advisable to be careful about the use of this tool in Iran. The other IADL tool is the PASS tool, which the Persian version of it is also available in Iran (55, 56). While the PASS tool is performance-based and has accurate information about the ability of the older adults to do IADL functions, use of this tool is time-consuming and somewhat boring for older adults. Using the TFLS tool, along with the ADLQ tool, both specially developed for Alzheimer's patients, can provide complete information on Alzheimer's performance in ADL and IADL functions (29, 56).

Application to Occupational Therapy research and clinical practices

One of the best ways that occupational therapists can play a role in health management of elderlies is to find a common language between rehabilitation specialists and other disciplines such as physicians. Comprehensive assessment of the needs of elderlies especially the needs related to ADL and IADL using approved assessment tools is important. This study tried to introduce the ADL and IADL assessment tools of elderlies for the use of occupational therapists and encourage them to use these assessment tools and do there interventions based on the comprehensive evaluation.

Conclusion

Assessment tools that can report ADL and IADL performance of individuals, especially in older adults, is partly dependent on the culture that dominates the community. Because performance-based tools are tools that give information that is more accurate to therapists and researchers, the use of these tools is better than subjective tools, but most performance-based tools have been developed in other communities and cultures. In addition, they are culture-based tools and need cultural adaptation and also require the cost of training courses for use. Therefore, it is recommended that aging and rehabilitation specialists, especially occupational therapists, try to develop performance-based tools and client-centered tools for assessing the ADL and IADL performance of older adults living in Iran.

Acknowledgement

Hereby, we appreciate the authorities of the School of Rehabilitation Sciences in Iran University of Medical and the authors announce their gratitude to all those who helped us with this research.

Funding

This research did not receive any grant from funding agencies in the public, commercial, or not-forprofit sectors.

Conflict of Interests

The authors declare that they have no competing interests.
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