Literature DB >> 32584069

Social support, stress, and life satisfaction among adults with rare diseases.

Brooke A Bryson1, Kathleen R Bogart1.   

Abstract

OBJECTIVE: The goal of this study was to examine the role of stress and four different types of social support in satisfaction with life (SWL) among adults with rare diseases (RDs). We examined whether support is directly related to SWL (main effects model) or related through moderating the inverse relationship between stress and SWL (stress-buffering hypothesis).
METHOD: Data came from a cross-sectional survey of adults living in the United States diagnosed with any RD. Participants (n = 1,203) filled out measures of stress, four short-form scales of social support (emotional, informational, tangible, companionship), and SWL. Hierarchical multiple regression was used to test both the main effects model and stress-buffering hypothesis.
RESULTS: Controlling for age, gender, years since diagnosis, and symptom severity, emotional support, but not informational or tangible support, positively predicted SWL. Companionship support was related to SWL over and above other factors. Stress negatively predicted SWL, but none of the types of support moderated this relationship.
CONCLUSION: Results suggest companionship and emotional support are beneficial to individuals with RDs regardless of their stress levels. Intervention research should focus on ways to foster more companionship and emotional support to improve SWL in this underserved population. (PsycInfo Database Record (c) 2020 APA, all rights reserved).

Entities:  

Year:  2020        PMID: 32584069     DOI: 10.1037/hea0000905

Source DB:  PubMed          Journal:  Health Psychol        ISSN: 0278-6133            Impact factor:   4.267


  4 in total

1.  Mental health care for rare disease in the UK - recommendations from a quantitative survey and multi-stakeholder workshop.

Authors:  Rosa Spencer-Tansley; Nick Meade; Farhana Ali; Amy Simpson; Amy Hunter
Journal:  BMC Health Serv Res       Date:  2022-05-14       Impact factor: 2.908

Review 2.  Eight Ways Nurses Can Manage a Burnt-Out Leader.

Authors:  Robin Squellati; George A Zangaro
Journal:  Nurs Clin North Am       Date:  2022-03       Impact factor: 1.208

3.  Towards a Comprehensive Strategy for the Management of Rare Diseases in Slovenia: Outlining an IT-Enabled Ecosystemic Approach.

Authors:  Dalibor Stanimirovic; Eva Murko; Tadej Battelino; Urh Groselj; Mojca Zerjav Tansek
Journal:  Int J Environ Res Public Health       Date:  2021-11-25       Impact factor: 3.390

4.  Acceptance and commitment therapy meets peer-support. Development of a supportive self-care intervention for patients with rare diseases: a multistage development process.

Authors:  Miriam K Depping; Natalie Uhlenbusch; Bernd Löwe
Journal:  BMJ Open       Date:  2021-07-02       Impact factor: 2.692

  4 in total

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