Sara Hanafy1,2,3,4, Vanessa Amodio2,3, Halina Lin Haag3,5, Heather Colquhoun1,6, John Lewko7, Enrico Quilico1,3, Richard Riopelle8, Patrick Archambault9, Angela Colantonio1,2,3,6, Sally Lindsay4,6, Tatyana Mollayeva2,3. 1. Rehabilitation Sciences Institute, University of Toronto, Toronto, Canada. 2. Toronto Rehabilitation Institute, University Health Network, Toronto, Canada. 3. Acquired Brain Injury Research Laboratory, University of Toronto, Toronto, Canada. 4. Bloorview Research Institute, Holland Bloorview Kids Rehabilitation Hospital, Toronto, Canada. 5. Faculty of Social Work, Wilfrid Laurier University, Waterloo, Canada. 6. Department of Occupational Science and Occupational Therapy, University of Toronto, Toronto, Canada. 7. Centre for Research in Human Development, Laurentian University, Sudbury, Canada. 8. Brain Injury Canada, Ottawa, Canada. 9. Department of Family Medicine and Emergency Medicine, Université Laval, Québec City, Canada.
Abstract
PURPOSE: The purpose of this study was to explore rehabilitation clinicians' understanding of how sex and gender facilitate or hinder care provided to patients with traumatic brain injury (TBI). MATERIALS AND METHODS: Sixteen clinicians from various specialities, attending to patients with TBI from a large rehabilitation hospital in Ontario, Canada, were recruited using purposive sampling. Data was collected through semi-structured interviews and thematic analysis was used to identify reoccurring themes. RESULTS: Three themes that facilitate or hinder care of TBI patients were identified: (1) knowledge and evidence; (2) gender and other aspects of recovery; and (3) family caregiving. Lack of education about the topic and inconsistent scientific evidence limited clinicians' attention to sex and gender topics. Social, financial, and cultural characteristics of patients were considered to be more relevant than their sex and gender. The gendered nature of caregiving and its burden on caregivers' health were acknowledged. CONCLUSIONS: Currently, attention to topics of sex and gender as they may influence patients' recovery is limited. However, clinicians are willing to be educated on these topics to enhance rehabilitation care. Further research on the gendered nature of interactions between patient, clinician, and family caregiver during recovery is warranted.IMPLICATIONS FOR REHABILITATIONSex and gender matter for patients undergoing recovery for their traumatic brain injury; however, clinical attention to this topic is limited.Based on the clinicians' perceptions, resources that address patients' psychosocial vulnerabilities should be prioritized (e.g., unequal access to care, financial status, cultural diversity etc.).Clinicians highlighted that psychosocial vulnerability and patients' life roles, before and after injury, are sex and gender specific.Guidelines about sex and gender influences in traumatic brain injury rehabilitation have the potential to enhance clinical practice.
PURPOSE: The purpose of this study was to explore rehabilitation clinicians' understanding of how sex and gender facilitate or hinder care provided to patients with traumatic brain injury (TBI). MATERIALS AND METHODS: Sixteen clinicians from various specialities, attending to patients with TBI from a large rehabilitation hospital in Ontario, Canada, were recruited using purposive sampling. Data was collected through semi-structured interviews and thematic analysis was used to identify reoccurring themes. RESULTS: Three themes that facilitate or hinder care of TBI patients were identified: (1) knowledge and evidence; (2) gender and other aspects of recovery; and (3) family caregiving. Lack of education about the topic and inconsistent scientific evidence limited clinicians' attention to sex and gender topics. Social, financial, and cultural characteristics of patients were considered to be more relevant than their sex and gender. The gendered nature of caregiving and its burden on caregivers' health were acknowledged. CONCLUSIONS: Currently, attention to topics of sex and gender as they may influence patients' recovery is limited. However, clinicians are willing to be educated on these topics to enhance rehabilitation care. Further research on the gendered nature of interactions between patient, clinician, and family caregiver during recovery is warranted.IMPLICATIONS FOR REHABILITATIONSex and gender matter for patients undergoing recovery for their traumatic brain injury; however, clinical attention to this topic is limited.Based on the clinicians' perceptions, resources that address patients' psychosocial vulnerabilities should be prioritized (e.g., unequal access to care, financial status, cultural diversity etc.).Clinicians highlighted that psychosocial vulnerability and patients' life roles, before and after injury, are sex and gender specific.Guidelines about sex and gender influences in traumatic brain injury rehabilitation have the potential to enhance clinical practice.
Entities:
Keywords:
Brain injuries; gender identity; rehabilitation; sex; social determinants of health; traumatic
Authors: Eve M Valera; Annie-Lori C Joseph; Katherine Snedaker; Matthew J Breiding; Courtney L Robertson; Angela Colantonio; Harvey Levin; Mary Jo Pugh; Deborah Yurgelun-Todd; Rebekah Mannix; Jeffrey J Bazarian; L Christine Turtzo; Lyn S Turkstra; Lisa Begg; Diana M Cummings; Patrick S F Bellgowan Journal: J Head Trauma Rehabil Date: 2021-01-01 Impact factor: 3.117