Nathália R S Kimura1, José Pedro Simões2, Raquel Luiza Santos1, Maria Alice Tourinho Baptista1, Maria da Glória Portugal1, Aud Johannessen3,4, Maria Lage Barca3,5, Knut Engedal3,5, Jerson Laks1,6, Valeska Marinho Rodrigues1, Marcia C N Dourado1. 1. Center for Alzheimer's Disease and Related Disorders, Institute of Psychiatry, 28125Federal University of Rio de Janeiro, Rio de Janeiro, Brazil. 2. Department of Sociology and Political Science, Center for Philosophy and Human Sciences, Federal University of Santa Catarina, Florianópolis, Santa Catarina, Brazil. 3. Norwegian National Advisory Unit on Aging and Health, Vestfold Hospital Trust, Tønsberg, Norway. 4. Campus Vestfold, University of South-Eastern Norway, Tønsberg, Norway. 5. Department of Geriatric Medicine, Oslo University Hospital, Oslo, Norway. 6. Postgraduation Program of Translational Biomedicine, Universidade do Grande Rio (Unigranrio), Duque de Caxias, Rio de Janeiro, Brazil.
Abstract
OBJECTIVE: To compare the quality of life, burden, and depressive symptoms of caregivers of individuals with young-onset dementia (YOD) and late-onset dementia (LOD). METHODS: Using a cross-sectional design, a convenience sample of 110 dyads of individuals with dementia and their caregivers, all living in the community, was included. The care recipients completed assessments about cognition, quality of life, and awareness of disease. Caregivers' quality of life, resilience, depressive and anxiety symptoms, hopelessness, and burden of care were assessed. RESULTS: A significant difference was found in caregivers' burden and depressive symptoms according to the age of onset. However, there was no difference in caregivers' quality of life between YOD and LOD groups. In both groups, a linear regression analysis indicated that caregivers' perspective of quality of life of care recipient and caregivers' hopelessness were associated with their quality of life. In addition, in the LOD group, caregivers' burden was associated with their perspective of the quality of life of care recipient, type of kinship, and presence of emotional problems. In the YOD group, caregivers' burden was associated with duration of caregiving role, cohabitating with care recipient, and their anxiety symptoms. Caregivers' depressive symptoms were associated with anxiety symptoms in the YOD group, whereas hopelessness was associated with caregivers' depressive symptoms in both the groups. CONCLUSION: Our findings suggest that the factors that affect quality of life, burden, and depressive symptoms of caregivers of individuals with LOD differ from those that affect the caregivers of individuals with YOD.
OBJECTIVE: To compare the quality of life, burden, and depressive symptoms of caregivers of individuals with young-onset dementia (YOD) and late-onset dementia (LOD). METHODS: Using a cross-sectional design, a convenience sample of 110 dyads of individuals with dementia and their caregivers, all living in the community, was included. The care recipients completed assessments about cognition, quality of life, and awareness of disease. Caregivers' quality of life, resilience, depressive and anxiety symptoms, hopelessness, and burden of care were assessed. RESULTS: A significant difference was found in caregivers' burden and depressive symptoms according to the age of onset. However, there was no difference in caregivers' quality of life between YOD and LOD groups. In both groups, a linear regression analysis indicated that caregivers' perspective of quality of life of care recipient and caregivers' hopelessness were associated with their quality of life. In addition, in the LOD group, caregivers' burden was associated with their perspective of the quality of life of care recipient, type of kinship, and presence of emotional problems. In the YOD group, caregivers' burden was associated with duration of caregiving role, cohabitating with care recipient, and their anxiety symptoms. Caregivers' depressive symptoms were associated with anxiety symptoms in the YOD group, whereas hopelessness was associated with caregivers' depressive symptoms in both the groups. CONCLUSION: Our findings suggest that the factors that affect quality of life, burden, and depressive symptoms of caregivers of individuals with LOD differ from those that affect the caregivers of individuals with YOD.
Authors: Matthew Kang; Sarah Farrand; Mark Walterfang; Dennis Velakoulis; Samantha M Loi; Andrew Evans Journal: Int J Geriatr Psychiatry Date: 2022-06-07 Impact factor: 3.850
Authors: Yossie Susanti Eka Putri; I Gusti Ngurah Edi Putra; Annida Falahaini; Ice Yulia Wardani Journal: Int J Environ Res Public Health Date: 2022-09-29 Impact factor: 4.614