Maria Løvsletten1,2,3, Tonje Lossius Husum4, Elisabeth Haug5, Arild Granerud2. 1. Division of Mental Health Care, Innlandet Hospital Trust, Brumunddal, Norway. 2. Faculty of Public Health, Inland Norway University of Applied Science, Elverum, Norway. 3. Institute for Health & Society, Universitet I Oslo, Oslo, Norway. 4. Centre for Medical Ethics, Institute for Health & Society, University of Oslo, Oslo, Norway. 5. Division of Mental Health Care, Innlandet Hospital Trust, Reinsvoll, Norway.
Abstract
BACKGROUND: Patients with outpatient commitment have a decision on coercive treatment from the specialist health services even if they are in their own home and receive municipal health services. OBJECTIVE: The aim of this study is to gain more knowledge about how the outpatient commitment system works in the municipal health service and specialist health services, and how they collaborate with patients and across service levels from the perspectives of healthcare professionals. METHODS: This is a qualitative study collecting data through focus group interviews with health personnel from the municipal health service and specialist health services. RESULTS: The results describe the health personnel's experiences with follow-up and interactions with the patients with outpatient commitment decisions, and their experiences with collaboration between service levels. CONCLUSION: The study show that outpatient commitment makes a difference in the way patients with this decision are followed up. The legislative amendment with new requirements for consent competence was challenging. Collaboration between services levels was also challenging.
BACKGROUND: Patients with outpatient commitment have a decision on coercive treatment from the specialist health services even if they are in their own home and receive municipal health services. OBJECTIVE: The aim of this study is to gain more knowledge about how the outpatient commitment system works in the municipal health service and specialist health services, and how they collaborate with patients and across service levels from the perspectives of healthcare professionals. METHODS: This is a qualitative study collecting data through focus group interviews with health personnel from the municipal health service and specialist health services. RESULTS: The results describe the health personnel's experiences with follow-up and interactions with the patients with outpatient commitment decisions, and their experiences with collaboration between service levels. CONCLUSION: The study show that outpatient commitment makes a difference in the way patients with this decision are followed up. The legislative amendment with new requirements for consent competence was challenging. Collaboration between services levels was also challenging.
Outpatient commitment (OC) is an arrangement that has been debated frequently by
healthcare professionals and patient organizations.OC is present in many European countries, the United States, Canada, and Australia,
but the content and laws are different.[1,2] The purpose of these schemes is
to contribute to the improvement and stability of patients’ mental health.
International studies, both qualitative and quantitative, show that patients’
experiences with this scheme have both positive and negative aspects.[3] An Australian study showed that OC reduces the need for hospital admissions
for patients with major care requirements, but it is an ethical dilemma that
treatment given against a patient’s will compromises a patient’s autonomy.[4] Another major study literature review study found no significant correlation
between readmissions and treatment measures, although patients with OC used the
municipal services more.[5] Yet another literature review study has examined the experiences with OC in
seven different western countries and found that patients’ experiences of coercion
was related to the information they received and the relationship with health professionals.[6] Another literature review, including 48 papers, found that planning for
follow-up was important in the experience of those receiving an OC decision.[7]In Norway, OC is a legal decision of the Mental Health Act for compulsory mental
health care when the person stays in their own home.[8] The law governing the use of compulsory mental health care in both specialist
health care (hospital and district centers) and municipal mental health
services.Several Norwegian studies have highlighted different experiences in the interaction
of patients, families, and healthcare professionals. A study of patients in the
assertive community treatment (ACT) teams showed that patients with OC decisions had
greater potential for recovery than those without an OC.[9] A study that interviewed health professionals highlighted the dilemma of
combining the role of the therapist with a control function, even if they saw that
OC provided a secure framework for treatment.[10] Another study of relatives of patients with OC decisions referred to the
positive experience of OC providing safety and ensuring functioning in daily life.[11]The mental health service in Norway is organized on two main levels: a specialist
health service and a primary care level in the municipality. The specialist health
service is divided into hospital and district psychiatric centers (DPCs), which both
provide diagnosis and consider coercive decisions. The hospitals have predominantly
acute functions and the DPCs offer treatment, long-term follow-up and
rehabilitation, and consist of both wards and outpatient clinics. DPCs are a link
between the hospitals and the municipalities. The municipalities offer treatment,
rehabilitation, and habitation to any resident in the municipality who has such
needs.The criteria for placing a patient on OC under the Mental Health Act are the same as
they are for involuntary hospital treatment.[8] The main criterion for using compulsory mental health care is that the
patient must have a serious mental disorder. The patient must also be an obvious and
serious danger to themselves and their health or to others’ lives and health as a
result of the mental disease—or the patient must fulfill the treatment criterion,
which is a reduced prospect of substantial improvement without treatment. Before
patients receive OC decisions, voluntary treatment must have been either attempted
or clearly futile, and the patient must have the opportunity to express their views.
OC must also, overall, be the best option for the patient, with its justification as
the best solution for the patient and their environment (Table 1).
Table 1.
An overview of outpatient commitment (OC) according to the Mental Health Act
with guidelines.
Criteria and framework for OC
• The patient’s mental condition must meet the criteria of
OC• The patient must have a known contact person in the
hospital• The patient must have a home address in the
community• The patient has the right to an individual
plan for care• The patient must meet treatment
appointments• The patient can be retrieved at home if
the patient opposes treatment• New assessment of
compulsion every 3 months by psychiatrist or psychologist
An overview of outpatient commitment (OC) according to the Mental Health Act
with guidelines.OC has been debated over the last 20 years in Norway, and the government appointed a
committee, to review the use of coercion in Norway.[12] This work led to changes in the Mental Health Act.[8] On 1 September 2017, the law changed the treatment criterion, and patients
are no longer subject to compulsion if the patient has competence to consent. To be
able to consent, the patient must have sufficient information and insight to assess
their own need for health care, and the consequences of refusing treatment according
to the Patient Rights Act.[13]Most patients with OC decisions have a psychotic disorder, with the most frequent
diagnosis being schizophrenia.[4,14] Patients with a diagnosis of
schizophrenia often have significant functional impairments and may need close
supervision by qualified personnel to function in daily life.[15,16] Norwegian
guidelines for the follow-up of OC are lacking. What treatment patients with OC
decisions should be offered is not described in the national guidelines.
Nevertheless, guidelines have been written about the follow-up and treatment of
patients with psychosis, but they are not specifically related to OC: People
with severe mental illness and needs for specific services, and the
National guidelines for assessment, treatment, and monitoring of people
with psychotic disorders.[17,18]An individual plan (IP) is an interaction tool for patients who need long-term mental
health services and coordinated offers, according to the Mental Health Act, the Act
on Patient and Service User Rights, and the Health and Care Services Act.[8,13,19,20] If a patient with OC does not
have an IP, the specialist health service must initiate its preparation. If the
patient also needs healthcare services in the municipality, the specialist health
service must cooperate with the municipality.Over the last 10 years, however, there has been a noticeable reduction in the number
of hospital beds in Norway. At the same time, the health authorities introduced the
National Health Reform.[21] This provides guidelines recommending that most of the treatment should be in
the municipalities. Several guidelines in mental health care outline what should be
included in the different service levels, but none highlights collaboration around
patients with OC. The guideline Together on coping emphasizes the
interaction of municipalities and the specialist health service for mental health
work, but does not mention patients with OC decisions in particular.[22]Patients with OC decisions live in the community but are patients in the specialist
health service, so it is useful to generate knowledge about how health professionals
interact with patients, families, and each other. Thus, more research in this area
is needed. In Norway, “Tvangsforsk” (Network for research and
knowledge about the use of coercion in mental health care), has made a research
plan, 2014–2019, for this.[23] This plan points to the need for more research-based knowledge about
decision-making processes when using coercion, and the content and frameworks for
municipal health and social services.The aim of the present study is to gain more knowledge about how the OC system works
in the municipal health service and specialist health services, and how they
collaborate with patients and across service levels from the perspectives of
healthcare professionals.
Method
This qualitative, descriptive, exploratory study examines the health personnel’s
experiences using focus group interviews.[24] The focus group interview is an open-ended group discussion on a specific topic.[25] For the present study, an interview guide was developed in collaboration with
the research group. An interview guide with six open questions was developed to
answer the study’s aim. The topics in the interview guide were: The health
personnel’s experiences with OC, how they follow up patients with OC,
experiences of collaboration between service levels, and how OC works in a
treatment context.
Data collection and sample
The present study included two counties in central Norway with a countywide
population of approximately 400,000 people. The health personnel provide
services to patients with OC decisions in the mental health hospital, DPCs, and
municipalities. We conducted four focus groups with health personnel from three
DPCs and three municipalities. The leaders of the different units selected the
participants in the study. All of the included health personnel had education
and experience working with patients with OC decision. Six participants were
invited to each group, although not all invitees met in the actual interview. It
was difficult for the invited units to participate in the focus group
interviews, although the participants decided on the time of the meeting. There
were, therefore, two focus groups with four participants and two with two
participants. We conducted interviews with altogether 12 health personnel, most
of whom were women. The health personnel represented municipal housing, the
wards, and DPCs, and consisted of psychiatrists and mental health nurses. The
four focus group interviews were carried out between March 2018 and April 2018.
There was a good range of experience in the groups, despite there being few
participants in two of them. The main author was the moderator during all the
interviews, and expert by experience was the assistant moderator for two of the
interviews. The interviews lasted between 60 and 90 min and were digitally
recorded and transcribed.
Data analysis
The analysis followed the steps of the qualitative content analysis inspired by
Graneheim and Lundman.[26] Qualitative content analyses focus on subject and context, and emphasize
variation, and similarities within and differences between parts of the text.[27] The main author, a co-author, and an expert by experience were
responsible for the analysis. The expert by experience was engaged to ensure the
user perspective during reflections on the study’s findings.The text was read through several times to get a sense of all the material.
Meaningful units were identified; each meaningful unit was condensed into a
description close to the text and given a code. The analysis at different
abstraction levels identified three categories, each of which had four
subcategories. Finally, based on the latent content of the categories, the
underlying meaning was formulated into a theme. Meaningful units that belonged
together were grouped, and the theme, categories, and subcategories are shown in
Table 2. The
analysis of the four focus group interviews showed many views that coincided,
which helped fill each one out.
Table 2.
Overview of the theme, categories, and subcategories from the analyses of
the interviews.
Theme
Categories
Subcategories
A framework for OC follow-up
• OC is a statutory duty• Legislative amendment of
consent competence makes the OC decision more
demanding• OC provides the opportunity to give
assistance• OC gives responsibility to the
healthcare service
OC makes a difference
Provide flexibility in cooperation with the patient
• Predictability creates security• Provide more help
than the governing law• Implementation of OC depends
on continuity• The dilemma of helping someone who
does not want help
The collaboration between the service levels is vaguely
defined
• Cooperation between municipalities and specialist health
services is characterized by coincidence• The
individual plan does not work as a collaborative
tool• Collaboration is developed through effectives
meetings• The municipalities are experiencing an
increased burden
OC: Outpatient commitment.
Overview of the theme, categories, and subcategories from the analyses of
the interviews.OC: Outpatient commitment.
Ethical considerations
All participants in the study were asked to take part voluntarily and had the
decisional capacity to provide consent and gave their written informed consent.
All the data were anonymized and the study. The present study originally
received ethics approval from the Data Protection Services, in Norway, NSD
project number 54144. The current study followed the principles defined by the
Declaration of Helsinki.[28]
Findings
The results describe the health personnel’s experiences with follow-up and their
interactions with the patients who had OC decisions. A process of reflection and
discussion resulted in one theme, three categories, and several subcategories (Table 2).The theme based on the underlying meaning of the data indicates that “OC makes a
difference” in the meeting between the health personnel and the patients, and across
service levels. The health personnel believe that OC makes a difference, and that
the follow-up of patients with an OC decision is extensive. The health personnel
tend to give patients in the OC regime more time and closer contact than given to
other patients.The first category presents health professionals’ experiences with the use of OC. The
second category discloses how the therapeutic relationships with the OC patients
work. The third category deals with their experiences with the collaboration between
hospital and municipality. The subcategories are presented under the three
categories in Table 2.
Later in the text, they are presented using example quotes.
A framework for OC follow-up
A strongly evident category in the analysis was the framework that OC constitutes
when following up patients outside the institution. The interviewees showed
depth in their reflections on how they thought OC worked in practice, both for
those as health personnel and in meetings with the patients.
OC is a statutory duty
Several of the interviewees referred to the OC as an “important duty” for the
community to carry out to follow the law:It’s kind of part of our duties; however, once in a while this can be
both heavy and difficult. (Psychiatrist)All considered OC as a regulation to be used when patients cannot take care
of themselves because of severe psychosis. Some said that OC should not be
seen as an assault and used only when necessary—especially in situations
where the patient is a danger to themselves or others. One said that the OC
scheme has been criticized by several people and believed that public debate
lacks the nuances about the reason for coercion.
Legislative amendment of consent competence makes the OC decision more
demanding
The interviewees pointed out that it was becoming more demanding to make OC
decisions. To make proper reviews of consent assessment, one must have good
knowledge of both psychosis and the patient, because the competence to
consent can often fluctuate rapidly in patients with psychosis:I need more time . . . both on and thinking of writing . . . it is
discretionary, and opinions differ among psychiatrists.
(Psychiatrist)Several mentioned that it could be difficult to assess a review, because many
patients do not experience symptoms as a disease but as part of their
self-image, even if their experience lacks internal logic. Changes in the
Mental Health Act have led to demands for more documentation:Consent competence is a very relative thing and not universal in any
way; it will fluctuate and that is perhaps the biggest problem with
the new law. (Psychiatrist)Several highlighted that it requires a lot of experience to be able to
undertake good reviews before decisions are made, especially if they do not
know the patient. All those who were interviewees believed that OC provides
the opportunity to follow up the patients with the greatest assistance
needs, including those with drug problems:What we see as a huge problem is drugs, very complex issues. When
drugs are in the picture, it makes things much more difficult.
(Mental health nurse)Some thought that OC not only is a control function but also gives meaning
and purpose to the treatment.
OC provides the opportunity to give assistance
The interviewees emphasized that OC enables health personnel to be in a
position to help people who cannot assess the risk of the situation in which
they find themselves. They believe it to be unethical not to give help, even
if the patient does not want this. Several said that OC might be necessary
in certain periods:I must say that the experience I have . . . so there has been a
necessity in the period and it is not as if people are standing on
the OC if they do not need it—a thorough assessment is made to give
informed consent. (Mental health nurse)
OC gives responsibility to the healthcare service
During the interviews, many of the psychiatrists in DPCs said that they felt
stronger responsibility for following up patients with an OC because there
is a duty according to the law:I feel more responsible for the OC patients and I want to give them
the best deal. (Psychiatrist)Interviewees from the municipality say that patients with an OC receive
faster help from the hospital than other patients with psychotic symptoms.
Several believed that an OC ensures use of medication to avoid relapse. They
emphasized that it was important to end controlled forms of OC to prevent
relapse. An OC decision provides a patient with a status that involves free
health care in hospital:Patients with OC do not pay deductibles, receive medication, are
observed and have dinner for free. (Mental health nurse)Those interviewed assessed OC as a protection for the patients, because the
constraint is regulated and requires documentation, so the legislation
safeguards patients’ legal rights.
Provide flexibility in cooperation with the patient
This category shows that cooperation between the health personnel and the
patients was essential. The interviewees emphasized the importance of
flexibility in meeting patients with OC decisions, when following up patients
both in their own home and at DPCs.
Predictability creates security
The interviewees pointed out that they considered patients with OC decisions
to be a small vulnerable group, and it was important for these patients to
feel taken care of. They were concerned that they have to provide a safe
environment for patients with OC decisions, and it was important to define
clearly who was responsible for the patients. Several of the interviewees
mentioned the importance of creating an alliance with the patients, and that
the health personnel have to show consideration in their approach:These are not the patients who want a lot of collaboration . . . they
keep people at a distance and are insecure and paranoid around them
all . . .. (Mental health nurse)Some thought that this means taking “the whole package,” by helping patients
with everything they need. Several of the interviewees said that the
patients seemed safer when they had OC decisions, and this was something
that the patients themselves had told the health personnel.
Provide more help than the governing law
The interviewees believed that monitoring of OC involves providing assistance
beyond what the law says. Several of the personnel from the DPC pointed out
that OC meant showing “generosity,” in addition to what is required by law.
The health personnel showed this “generosity” and accepted the patients even
if they came with no appointment:The patient can show up without an appointment because they are
scared or have something to discuss with the psychiatrist . . . then
we clear a little space for them . . .. (Mental health nurse)The interviewees found that many patients felt a connection to the DPC after
cancelation of the OC decision and wanted further contact. They pointed out
that OC assumes comprehensive follow-up and this is much more than only medication:So it is a lot about practicing habits and routines; things are as
predictable as they have always been and . . . it helps to create
the structure that they have so much trouble making themselves.
(Psychiatrist)
Implementation of OC depends on continuity
The interviewees emphasized that follow-up of OC requires the follow-up to be
holistic, with user involvement and facilitation of the patient’s need for
help. Frames and agreements were highlighted as important in meetings with
patients. This was mentioned as an important part of environmental therapy,
because external frameworks can help patients with the internal chaos
resulting from their mental state. The interviewees saw it as a problem that
it can be difficult to obtain frameworks for outpatient care, but it can
also be difficult to get environmentally therapeutic measures into patients’
homes. Some patients in the DPC are offered a “user-controlled bed,” which
patients can use as they wish. Many of the interviewees said that patients
with OC decisions have often had long-term needs and extensive problems:It’s a fairly large system around every patient, quite demanding
stories . . . some have a user-led voluntary admission agreement . .
.. (Mental health nurse)However, for many patients, the interviewees felt that it was best to be
followed up at home and not at the DPC. User participation was an area that
interviewees felt was hard to achieve and explain to patients with psychoses:Getting into a position to achieve dialogue is difficult; some who
have been ill for many years and have been coerced several times do
not want to talk about medications or vulnerable topics . . ..
(Mental health nurse)The interviewees emphasized that the understanding and knowledge of health
personnel were important in understanding patients’ situations:If we have someone who does not take the medicine or does not relate
to their weekly schedule, we have conversations and wonder what the
cause is—so we wait a few days before contacting therapists or the
contact person in the emergency plan. We are trying to achieve some
kind of understanding and cooperation to solve the situation.
(Mental health nurse)
The dilemma of helping someone who does not want help
The interviewees spoke about patients with psychotic symptoms who do not want
contact and isolate themselves. Some patients with an OC decision do not
experience symptoms of psychosis as health issues, but as problems caused by
others, and medication is identified as coercion. The interviewees found
that many relatives reported their concerns about the support system. Many
relatives assume a great deal of responsibility:Relatives have often been overinvolved, and are tired both physically
and mentally . . . and have given money to the patient.
(Psychiatrist)Some of those interviewed questioned whether there should be a human right
not to receive treatment.
The collaboration between the service levels is vaguely defined
This category deals with collaboration between the service levels for patients
with OC. This collaboration was a problem for the interviewees, who felt that
collaboration between service levels was vaguely defined in relation to their
experiences.
Cooperation between municipalities and specialist health services is
characterized by coincidence
The interviewees believed that the responsibility shared by the DPC and the
municipality seems to be fragmented both organizationally and in relation to
responsibilities and roles—and that this could prevent cooperation:I find it challenging here too, to get on with help, that it gets
fragmented . . . there can be many levels and people, and who is
really responsible? (Mental health nurse)Many of the interviewees felt that cooperation depends on the individual and
the distribution of responsibilities appears unclear. The municipalities
were organized differently and the services consisted of many parts, which
could be challenging. The interviewees had a problem in that follow-up of
patients requires a lot of cooperation, which may be difficult to achieve.
The DPC interviewees believed that, as a specialist health service, they
were responsible for the patients with OC decisions, and they should be
responsible for all the follow-up of these patients:The way we do it with day care is most correct and justifiable and
really easiest for healthcare personnel and patients to practice.
Because we see the patient more often we have better control of
medication and collaboration, and we often have more people who can
ensure that this works. (Psychiatrist)
The IP does not work as a collaboration tool
The legislation provides guidelines, for patients who need coordinated and
compound services, to put an IP in place to achieve good health services.
The interviewees experienced this collaboration tool not working. In
particular, they found it difficult when the patient had psychotic symptoms:He was very psychotic and it was not possible to get any writing at
all from this patient. We collaborated, but it was simply not
practical to write. We tried a few times, but the psychosis was so
serious that what was written was not understandable.
(Psychiatrist)The interviewees said that many patients did not want the treatment being
offered and did not want an IP; others did not understand what an IP was.
Instead, they highlighted that patients were more positive about making a
crisis plan:A crisis plan is a simple and sometimes a good document; it is quite
easy to work out and very concrete and . . . yes—pretty easy to
relate to then. (Psychiatrist)Several of the interviewees reported that the crisis plan was part of the
patient safety program at the DPC.
Collaboration is developed through effective meetings
To achieve interaction that works across the service levels, the interviewees
emphasized the importance of having effective meetings. They highlighted the
importance of being able to work together around patients with OC decisions.
The interviewees highlighted good dialogue as important across the levels
for discussion and assessment of patients’ situations. They pointed out that
regular meetings and guidance from the specialist health service are of
great importance for a good interaction:I think we work more systematically with management group meetings
and the collaborative meetings for the patients we have with OC.
(Mental health nurse)The interviewees highlighted teams from specialist health care, who traveled
to the DPC and the municipalities to assist health personnel, as important
for a good interaction between service levels:A few years ago there was a patient who had been in the system for
many years, with several admissions. The patient got a new home in
the municipality, and the personnel group felt completely helpless.
We used two full days where we went out and gave guidance to half
the personnel group one day and the other group the next day, and
since then the patient has not been admitted to us. (Mental health
nurse)
The municipalities are experiencing an increased burden
The interviewees stated that the municipalities have had greater challenges
and increased strain over recent years, since the introduction of the
Cooperation Reform, because they have more responsibilities and treatment tasks:One is, of course, required to have people who are pretty much worse
than before in the municipality—more difficult to get into admission
where we see that it might be needed . . .. (Mental health
nurse)The interviewees saw a problem with health personnel in the municipalities
having little expertise with psychoses, and several thought that low
competence leads to more coercion:Now it says that treatment should happen where you live, which means
that health personnel could prevent admissions and require a higher
level of competence. (Mental health nurse)Some of the interviewees believed that, among some employees in the
municipalities, there was a fear of patients with psychosis; they believed
that more resources in the municipality could have provided the opportunity
for better follow-up of such patients, with perhaps fewer OC decisions. The
interviewees pointed to relatives as a resource, so better follow-up of
relatives is important. Some felt that improved collaboration across the
health services could give patients with OC decisions a different follow-up
in the municipality.
Discussion
OC and competence to consent
All those interviewed showed great insight into OC legislation, and the focus
groups were surprisingly consistent in their views across service level and
professional groups. An important finding in the present study is that the
assessment of OC decisions became more demanding, following the law change in
the Mental Health Act on 1 September 2017, related to the ability to consent.
The purpose of this change was to strengthen patient rights, but also to respond
to the criticism that an OC decision based on the treatment criterion is
contrary to human rights.[29] From this perspective, the amendment of the law contributes to a
strengthening of patients’ rights, because the criteria for receiving an OC
decision have become stricter.On the other hand, the present study showed a problem with the fact that the
change in the law can prevent patients with psychosis from receiving the
necessary health care. It became a problem that consent assessments may have
uncertain value when assessing OC decisions. Many patients with psychosis have
fluctuating symptoms which can make them appear consensual, but, soon after, the
psychosis may fluctuate again to create difficulties in making the right
decision.However, the present study also points out that assessment of consent competence
depends on the competence of the specialist making the decision on an OC. To
make a proper assessment, the patient should be well known to the specialist. If
not, the patient’s consent could be considered as made on the wrong basis.As can be seen in the present study, it may seem that the existing criteria,
including the consent competence, are not enough to make a complete assessment
of a patient’s condition. It is possible that more criteria are needed to ensure
that assessments of the needs for OC decisions are as accurate as possible.
OC and follow-up in treatment
The present study points to the dilemma in the use of coercion in the provision
of mental health care. A challenge to the follow-up of patients with psychosis
is that many such patients may not feel that they are ill and do not think that
they need treatment; however, the health personnel experience the situation
differently from the patients. A psychosis presents challenges to functioning in
everyday life.[15] The interviewees were concerned with creating a safe relationship with
the patient, but they sometimes experienced the symptoms of psychosis making it
difficult to establish a good relationship with the patient. This topic needs to
be debated more widely.The present study raises questions about what additional criteria should apply to
OC decisions: what kind of follow-up is best for patients receiving such OC
decisions and what OC treatment should include. On the other hand, the
interviewees point out that a patient with an OC decision is followed up more
closely than one with psychotic symptoms with no OC decision. Patients with OC
decisions often receive their health care fast, so, in this way, the OC scheme
also benefits the patient.However, the OC decision itself may be an obstacle to establishing trust between
patients and health personnel, and gaining user involvement. Patients with OC
decisions receive assistance from both the municipality and the specialist
health service based on different guidelines. Instead, the interviewees
suggested that a small group of health personnel should have overall
responsibility for patients with OC decisions across several health service
levels. One Norwegian study showed that patients with follow-up from one
permanent team experienced better recovery from symptom pressure.[9] That study also points out that high competence in such a team can reduce
the use of coercion.
Collaboration across health service levels
A key finding in the present study is that collaboration between municipality
health services and specialist health services for patients with OC varies
widely, and that the responsibility is too fragmented. The present study points
out that there is no clear structure for cooperation across service levels for a
patient with OC decisions. The Mental Health Act provides guidelines for
patients with OC, stating that they should have a contact person in the
specialist health service available to the patient, family, and municipality.[8] However, the specialist health service has a responsibility for patients
with OC decisions because these patients have patient status and need to be
monitored regularly. Perhaps the contact person in the specialist health service
should also be responsible for coordination between the municipality and the
specialist health service for patients with OC decisions.Patients with psychosis often need a lot of follow-up.[16] Separate guidelines have been prepared to assist patients with psychosis
between service levels, but there are no specific guidelines for patients with
OC decisions, as the present study points out. However, these guidelines for
psychosis point to the IP, which is an important interaction tool in the Mental
Health Act and the Patient Rights Act provides user rights, and is mandatory for
patients with OC decisions.[8,13] However, the coordinating
function for the IP is at the municipal level, although the specialist health
service also has responsibility to implement the IP when the patient has an OC
decision. Some of the interviewees have had good experiences with a crisis plan,
as part of the IP, for patients with OC decisions.Those interviewed in the present study believe that the IP does not act as a
collaborative tool; this is justified by the fact that patients with an OC
decision often do not interact with the IP or even want it. Possibly the
patients are not sufficiently familiar with the IP or it is not a suitable tool
for this patient group. Perhaps a patient lacks knowledge about what an IP is or
should have improved mental health and consent competence before an IP is
introduced. However, an IP shall ensure user involvement, so it is worrying that
it does not work as it should.
Limitation
Focus group interviews for data collection is well known and have confirmability.
To strengthen the validity in the interviews with the health personnel, the same
moderator conducted the interviews together with an expert by experience. We
conducted four focus groups, to achieve the necessary breadth of material.[30] A limitation in this study was that two of the groups was rather small
because it was more difficult to recruit participants than we expected. However,
the study participants had extensive experience working with patients with OC
decisions, and the four group interviews showed that the interviewees shared
many similar experiences, which indicated that the present study had reached
data saturation.To strengthen credibility and dependability, all the authors participated in the
discussions through the analysis process. It was also important that the expert
by experience participated in the analysis work to provide her perspective on
the findings. The analysis process gave neutrality of the data, strengthened
through the systematic documentation in the analysis process. However, this
material was collected from some of the health personnel from a limited
geographical area. More studies that are similar are needed before the findings
can be generalized.
Conclusion
The present study investigated how OC works in treatment as seen from a healthcare
perspective, and how collaboration between municipalities and specialist health
services works. The health personnel believe that an OC decision makes a difference
in the way patients with this decision are followed up. They believe that the OC
decision gives the patient rights and opportunities for the provision of mental
health care. The legislative amendment with new requirements for consent competence
was a problem. To make an OC decision was described as more demanding because
consent competence could fluctuate along with the psychotic symptoms. Although the
change strengthens patient rights, there is also a risk that such patients do not
receive adequate health care. The present study points to the challenges related to
collaboration across service levels. Good routines for collaboration across the
service levels for patients with an OC decision are lacking. The IP, which is a
statutory collaboration plan, was not used much.
Authors: Katherine M Francombe Pridham; Andrea Berntson; Alexander I F Simpson; Samuel F Law; Vicky Stergiopoulos; Arash Nakhost Journal: Psychiatr Serv Date: 2015-10-01 Impact factor: 3.084