Philip Moons1,2,3,4, Silke Apers1, Adrienne H Kovacs5,6, Corina Thomet7, Werner Budts8,9, Junko Enomoto10, Maayke A Sluman11,12, Jou-Kou Wang13, Jamie L Jackson14, Paul Khairy15, Stephen C Cook16, Shanthi Chidambarathanu17, Luis Alday18, Erwin Oechslin5, Katrine Eriksen19, Mikael Dellborg3,20,21, Malin Berghammer22,23, Bengt Johansson24, Andrew S Mackie25, Samuel Menahem26, Maryanne Caruana27, Gruschen Veldtman28, Alexandra Soufi29, Susan M Fernandes30, Kamila White31, Edward Callus32,33, Shelby Kutty34,35, Koen Luyckx36,37. 1. KU Leuven Department of Public Health and Primary Care, KU Leuven, Belgium. 2. Institute of Health and Care Sciences, University of Gothenburg, Sweden. 3. Centre for Person-Centred Care (GPCC), University of Gothenburg, Sweden. 4. Department of Paediatrics and Child Health, University of Cape Town, South Africa. 5. Toronto Congenital Cardiac Center for Adults, University Health Network, University of Toronto, Canada. 6. Knight Cardiovascular Institute, Oregon Health & Science University, USA. 7. Center for Congenital Heart Disease, Department of Cardiology, Inselspital - Bern University Hospital, University of Bern, Switzerland. 8. Division of Congenital and Structural Cardiology, University Hospitals Leuven, Belgium. 9. KU Leuven Department of Cardiovascular Sciences, KU Leuven, Belgium. 10. Department of Education, Toyo University, Japan. 11. Coronel Institute of Occupational Health, Amsterdam UMC, University of Amsterdam, the Netherlands. 12. Department of Cardiology, Jeroen Bosch Hospital, the Netherlands. 13. Department of Pediatrics, National Taiwan University Hospital, Taiwan. 14. Center for Biobehavioral Health, Nationwide Children's Hospital, USA. 15. Adult Congenital Heart Center, Montreal Heart Institute, Université de Montréal, Canada. 16. Adult Congenital Heart Disease Center, Helen DeVos Children's Hospital, USA. 17. Pediatric Cardiology, Frontier Lifeline Hospital (Dr. K. M. Cherian Heart Foundation), India. 18. Division of Cardiology, Hospital de Niños, Argentina. 19. Adult Congenital Heart Disease Center, Oslo University Hospital - Rikshospitalet, Norway. 20. Adult Congenital Heart Unit, Sahlgrenska University Hospital/Östra, Sweden. 21. Institute of Medicine, The Sahlgrenska Academy at University of Gothenburg, Sweden. 22. Department of Health Sciences, University West, Sweden. 23. Department of Paediatrics, Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Sweden. 24. Department of Public Health and Clinical Medicine, Umeå University, Sweden. 25. Division of Cardiology, Stollery Children's Hospital, University of Alberta, Canada. 26. Monash Heart, Monash Medical Centre, Monash University, Australia. 27. Department of Cardiology, Mater Dei Hospital, Malta. 28. Adult Congenital Heart Disease Center, Cincinnati Children's Hospital Medical Center, USA. 29. Department of Congenital Heart Disease, Louis Pradel Hospital, Hospices civils de Lyon, France. 30. Adult Congenital Heart Program at Stanford, Lucile Packard Children's Hospital and Stanford Health Care, USA. 31. Adult Congenital Heart Disease Center, Washington University and Barnes Jewish Heart & Vascular Center, University of Missouri, USA. 32. Clinical Psychology Service, IRCCS Policlinico San Donato, Italy. 33. Department of Biomedical Sciences for Health, Università degli Studi di Milano, Italy. 34. Adult Congenital Heart Disease Center University of Nebraska Medical Center/Children's Hospital and Medical Center, USA. 35. Taussig Heart Center, Johns Hopkins School of Medicine, USA. 36. KU Leuven School Psychology and Development in Context, KU Leuven, Belgium. 37. UNIBS, University of the Free State, South Africa.
Abstract
BACKGROUND: Previous studies have found that sense of coherence (SOC) is positively related to quality of life (QoL) in persons with chronic conditions. In congenital heart disease (CHD), the evidence is scant. AIMS: We investigated (i) intercountry variation in SOC in a large international sample of adults with CHD; (ii) the relationship between demographic and clinical characteristics and SOC; (iii) the relationship between cultural dimensions of countries and SOC; and (iv) variation in relative importance of SOC in explaining QoL across the countries. METHODS: APPROACH-IS was a cross-sectional, observational study, with 4028 patients from 15 countries enrolled. SOC was measured using the 13-item SOC scale (range 13-91) and QoL was assessed by a linear analog scale (range 0-100). RESULTS: The mean SOC score was 65.5±13.2. Large intercountry variation was observed with the strongest SOC in Switzerland (68.8±11.1) and the lowest SOC in Japan (59.9±14.5). A lower SOC was associated with a younger age; lower educational level; with job seeking, being unemployed or disabled; unmarried, divorced or widowed; from a worse functional class; and simple CHD. Power distance index and individualism vs collectivism were cultural dimensions significantly related to SOC. SOC was positively associated with QoL in all participating countries and in the total sample, with an explained variance ranging from 5.8% in Argentina to 30.4% in Japan. CONCLUSION: In adults with CHD, SOC is positively associated with QoL. The implementation of SOC-enhancing interventions might improve QoL, but strategies would likely differ across countries given the substantial variation in explained variance. Published on behalf of the European Society of Cardiology. All rights reserved.
BACKGROUND: Previous studies have found that sense of coherence (SOC) is positively related to quality of life (QoL) in persons with chronic conditions. In congenital heart disease (CHD), the evidence is scant. AIMS: We investigated (i) intercountry variation in SOC in a large international sample of adults with CHD; (ii) the relationship between demographic and clinical characteristics and SOC; (iii) the relationship between cultural dimensions of countries and SOC; and (iv) variation in relative importance of SOC in explaining QoL across the countries. METHODS: APPROACH-IS was a cross-sectional, observational study, with 4028 patients from 15 countries enrolled. SOC was measured using the 13-item SOC scale (range 13-91) and QoL was assessed by a linear analog scale (range 0-100). RESULTS: The mean SOC score was 65.5±13.2. Large intercountry variation was observed with the strongest SOC in Switzerland (68.8±11.1) and the lowest SOC in Japan (59.9±14.5). A lower SOC was associated with a younger age; lower educational level; with job seeking, being unemployed or disabled; unmarried, divorced or widowed; from a worse functional class; and simple CHD. Power distance index and individualism vs collectivism were cultural dimensions significantly related to SOC. SOC was positively associated with QoL in all participating countries and in the total sample, with an explained variance ranging from 5.8% in Argentina to 30.4% in Japan. CONCLUSION: In adults with CHD, SOC is positively associated with QoL. The implementation of SOC-enhancing interventions might improve QoL, but strategies would likely differ across countries given the substantial variation in explained variance. Published on behalf of the European Society of Cardiology. All rights reserved.
Authors: Ana Anguas-Gracia; Ana Belén Subirón-Valera; Beatriz Rodríguez-Roca; Ángel Gasch-Gallén; Isabel Antón-Solanas; Fernando Urcola-Pardo Journal: Int J Environ Res Public Health Date: 2021-02-09 Impact factor: 3.390
Authors: Caroline Sophie Andonian; Sebastian Freilinger; Stephan Achenbach; Peter Ewert; Ulrike Gundlach; Jürgen Hoerer; Harald Kaemmerer; Lars Pieper; Michael Weyand; Rhoia Clara Neidenbach; Jürgen Beckmann Journal: BMJ Open Date: 2021-06-22 Impact factor: 2.692